Abstract
Objective
To learn about the experiences of adolescents with type 1 diabetes mellitus from the perspective of the Ethics of Alterity.
Methods
Descriptive-exploratory study with a qualitative approach conducted from February to October 2016, with nine adolescents through focus groups and semi-structured interviews. The data were subjected to thematic analysis, with reflections from the perspective of the Ethics of Alterity.
Results
The following categories were defined: learning of the diagnosis and living with diabetes. Since diagnosis, parents assumed the responsibility for the care of their children, and from the perspective of the Ethics of Alterity, they were present and open to welcome them as the Other. The adolescents were found to be confident individuals with intact self-esteem, despite coping with adversity related to disease management, including dietary restrictions and a lack of insulin pump supplies. Hypoglycemia and hyperglycemia were common events among the adolescents, and the carbohydrate counting method was indicated as an excellent resource for disease acceptance. The independence so desired by adolescents was dependent on their self-care capacity. The adolescents reported maintaining an excellent relationship with relatives, friends and members of the multidisciplinary team, which favored disease acceptance.
Conclusion
Respect for the Alterity of the Other by the Self is crucial in caring relationships with family members, friends, the multidisciplinary team and the State for maintaining the dignity of adolescents with diabetes.
Nursing; Diabetes mellitus, type 1; Adolescent; Family; Ethics