| 1 |
To characterize how users discuss the topic of “miscarriage” and “preterm births” on Twitter, analyze trends and drivers, and describe the perceived emotional state of women who have experienced a miscarriage. |
Descriptive-exploratory study with a qualitative approach. A total of 291,443 posts in English were obtained (from 138,658 users) between January 2017 and December 2018. |
The main topics of discussion were identified and combined, resulting in eight groups. Two tweets were selected as sample from each group. In the “Politics” group there is a tweet with the following: “It’s awful that they classify this as a late miscarriage and therefore there is no birth/death certificate. This law needs to be changed!” |
| 2 |
To explore the healthcare experiences of parents whose baby died before, during or shortly after birth, in order to identify practical ways to improve healthcare provision. |
Qualitative study through analysis of narrative interviews with 38 parents: 10 couples and 18 mothers. |
Parents report the difference between receiving an informal paper stating the death of their child and an official document declaring their death. For parents, while the informality of the hospital hurts and insults them, as it shows that there is no document capable of formalizing the situation, the official document confirms that they were parents and validates the birth of their babies, besides being important in the creation of memories that help in grieving. |
| 3 |
To identify how men experience grief following pregnancy loss and neonatal loss and the factors and/or predictors that contribute to men’s grief. |
A systematic review of a final sample of 46 articles published between 1998 and October 2018. |
Male parents reveal that rituals, symbolic objects and the sharing of memories help establish connections with their lost child. |
| 4 |
To explore men’s overall experience of miscarriage and the support received or neglected by both healthcare providers and social media. |
A qualitative study through semi-structured interviews with 10 Australian men. |
Male parents claim the death certificate confirms that the loss really happened and that, despite playing a small role, it helps in creating a memorial for the lost child as well as coping with grief. |
| 5 |
To analyze the experience of women after miscarriage with a view to making the surrounding community aware of their need for emotional support. |
A qualitative study through interviews with 15 women. |
Some women reported missing some sort of memorial for their babies and feeling as if they didn’t really exist for anyone else. |
| 6 |
To evaluate the quality of care provided to women in the event of a diagnosis of intrauterine death or “life-limiting fetal anomalies” and a comparative assessment with other countries. |
A cross-sectional descriptive study using an online self-completion questionnaire administered to 796 women who had experienced intrauterine fetal death between 16 weeks and birth, due either to late miscarriage/stillbirth or termination of pregnancy for medical reasons. |
In 35.8% of the cases, the families had no choice or were denied any possibility of private burial or cremation, with a strong correlation with the gestational age of the fetus (in 70.1% of the cases, less than 26 weeks), in disagreement with Spanish legislation, which grants parents the power to decide on the fate of the fetus’ body, regardless of gestational age. |
| 7 |
To explore the experiences of miscarriage, focusing on the accounts of men and women. |
A qualitative study—phenomenological framework—focusing on the report of 16 participants (10 women and 6 men). |
Recognizing the loss of the child through rituals was important to mark the occasion or remember the child. For parents, one such ritual was a funeral or similar ceremony. |
