Satisfaction and quality of life in users of auditory brainstem implant

Fernandes, Nayara Freitas; Goffi-Gomez, Maria Valéria Schmidt; Magalhães, Ana Tereza De Matos; Tsuji, Robinson Koji; De Brito, Rubens Vuono; Bento, Ricardo Ferreira

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Original Articles • CoDAS 29 (2) • 2017 • https://doi.org/10.1590/2317-1782/20172016059 copy

Satisfaction and quality of life in users of auditory brainstem implant

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Purpose

To evaluate satisfaction and quality of life of users of Auditory Implant Brainstem.

Methods

This is a cross-sectional and descriptive study conducted at Divisão de Clínica Otorrinolaringológica of Hospital das Clínicas of Faculdade de Medicina da Universidade de São Paulo, Brazil. For the research, 19 users of an Auditory Brainstem Implant answered the following questionnaires: KINDLR (Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents), for children and adolescents, their parents and/or caregivers; WHOQOL-BREF questionnaire, for adult participants; and the Satisfaction with Amplification in Daily Life (SADL) questionnaire culturally adapted to Brazilian Portuguese.

Results

The quality of life of children using Auditory Brainstem Implant from the perspective of their parents showed global results above average, as for most domains, except for the emotional well-being domain. Adults showed results above average for all domains. Regarding satisfaction with the device, the adult users of auditory brainstem implant were satisfied in general, except with regard to personal image. The parents of the children showed dissatisfaction in all subscales, except for the subscale of services and cost.

Conclusion

The results indicated that although patients are dissatisfied with the device in some aspects, overall the quality of life was rated as good for most of the aspects assessed.

Keywords
Deafness; Auditory Brainstem Implant; Hearing; Quality of Life; Patient Satisfaction

	Individuals	Gender	Etiology	Age at surgery	Time of use	Age at assessment	Speech processor brand	Speech perception (Closed context)
ADULTS	1	Male	Meningitis	39 years	6 months	39 years	Cochlear	Recognition of segmental aspects 42%
	2	Female	Meningitis	51 years	2 years	53 years	Cochlear	Recognition of supra-segmental aspects 50%
	3	Male	Meningitis	56 years	2 years and 1 month	58 years	Cochlear	Recognition of supra-segmental aspects 50%
	4	Male	Neurofibromatosis type 2	23 years	7 years and 9 months	31 years	Cochlear	Sentence recognition 80%
	5	Male	Neurofibromatosis type 2	27 years	2 years	29 years	Cochlear	Recognition of segmental aspects 23%
	6	Female	Meningitis	53 years	3 months	53 years	Cochlear	Recognition of segmental aspects 58%
	7	Male	Meningitis	21 years	4 years and 7 months	25 years	Cochlear	Sentence recognition 40%
	8	Male	Meningitis	29 years	1 year and 2 months	30 years	Cochlear	Recognition of segmental aspects 41%
	9	Female	Meningitis	41 years	2 years and 1 month	43 years	Cochlear	Recognition of segmental aspects 58%
	10	Male	Neurofibromatosis type 2	26 years	8 years and 7 months	34 years	Cochlear	Recognition of segmental aspects 50%
								Language Category	Hearing Category
CHILDREN	1	Female	Cochlear Nerve Aplasia	4 years	5 years	9 years	Cochlear	2	1
	2	Male	Mondini dysplasia type 2	5 years and 11 months	1 year and 6 months	7 years and 5 months	Medel	1	1
	3	Male	Cochlear Nerve Aplasia	3 years and 8 months	1 year and 9 months	5 years and 5 months	Cochlear	1	1
	4	Female	Mondini dysplasia	4 years and 4 months	5 months	4 years and 9 months	Cochlear	2	1
	5	Male	Cochlear Nerve Aplasia	2 years and 11 months	5 years and 8 months	8 years and 7 months	Cochlear	3	2
	6	Female	Cochlear Nerve Aplasia	6 years	8 years	14 years	Cochlear	1	1
	7	Female	Cochlear Nerve Aplasia	5 years and 6 months	2 years and 1 month	7 years and 7 months	Medel	2	2
	8	Female	Inner Ear Malformation	4 years and 7 months	2 years	6 years and 7 months	Medel	1	1
	9	Female	Meningitis	11 years and 1 month	2 months	11 years and 3 months	Medel	2	1

Score	Mean	Standard Deviation	20th Percentile	80th Percentile
Global	4.9	0.8	4.3	5.6
Services and Cost	4.7	1.2	4.5	6.5
Positive effects	4.9	1.3	3.8	6.1
Negative effects	3.6	1.4	2.3	5.0
Personal image	5.6	1.4	5.0	6.7

Domains	Mean (%)	SD	Minimum (%)	Maximum (%)
Physical well-being	50	0	16	58
Emotional well-being	29	0.4	25	58
Self-esteem	75	0.5	0	100
Family	100	0.8	8	100
Social contacts	100	0	100	100
School	86	0.3	8	100
Global	74	0.1	44	90
p ^* * Kruskal-Wallis test, p<0.05= statistically significant	0.198

Domains	Mean (%)	SD	Minimum (%)	Maximum (%)
Physical	76	18.4	36	100
Psychological	76	19.2	46	96
Social	66	23.3	25	100
Environmental	66	19.8	38	96
Global	66	26.3	38	100
p ^* * Kruskal-Wallis test, p<0.05= statistically significant	0.143

SADL	Mean	Standard Deviation	Maximum	Minimum	Level of satisfaction
Global	2.9	0.4	3.5	2.0	Dissatisfied
Positive effects	2.7	0.9	3.8	1.0	Dissatisfied
Service and Cost	6.1	2.5	7.0	0.0	Very satisfied
Negative factors	1.0	0.5	2.3	0.3	Dissatisfied
Personal image	3.0	0.6	4.3	2.0	Dissatisfied
p ^* * Kruskal-Wallis test, p<0.05= statistically significant	0.189

SADL	Mean	Standard Deviation	Maximum	Minimum	Level of satisfaction
Global	3.6	0.4	4.5	2.8	Dissatisfied
Positive effects	4.1	0.1	6.1	3.6	Satisfied
Service and Cost	5.1	0.1	7.0	0.0	Satisfied
Negative factors	2.4	0.1	4.3	1.0	Satisfied
Personal image	3.2	0.5	4.3	2.6	Dissatisfied
p ^* * Kruskal-Wallis test, p<0.05= statistically significant	0.176

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[1] Conflict of interests: nothing to declare.