Acessibilidade / Reportar erro

The use of the Washington Group on Disability Statistics questionnaires to identify hearing disability: a systematic review

ABSTRACT

Purpose

To investigate the use of instruments from the Washington Group on Disability Statistics (WG) to obtain data on hearing disability (HD).

Research strategies

We conducted searches in the PubMed, Scopus, Science Direct, Web of Science, Lilacs databases and the grey literature. The software “The State of the Art through Systematic Review” and “Mendeley” were used to assist in the bibliographic reference organization, selection, and storage.

Selection criteria

we followed the guidelines proposed by the “Preferred Reporting Items for Systematic Reviews and Meta-Analysis” and we selected studies that met the following inclusion criteria: written in English or Portuguese, within the period of 2001 to 2017 and have used the WG hearing disability question.

Data analysis

The variables analyzed into the studies were: WG module, country and year of data collection, sample size and composition, objective of the study, publication journal, HD estimate of prevalence and accuracy measures.

Results

Sixty-five studies are included in the review, conducted with data from 30 countries. The WG Short Set of question was the most often used. Hearing disability prevalence ranged from 0.2 to 2.3% and only three studies estimated the accuracy of the instrument to identify HD.

Conclusion

The hearing disability question of WG has been used worldwide and mainly in developing countries. The short variation in the estimated prevalence measurements within studies seems favorable to the WG's goal of generate estimates that allow international comparison. However, the shortage of validity studies indicates the need for further investigations with this purpose.

Keywords
International Classification of Functioning Disability and Health; Hearing; Hearing Loss; Disability Evaluation; Surveys and Questionnaires

RESUMO

Objetivo

Investigar a aplicação dos instrumentos do Washington Group on Disability Statistics (WG) para obtenção de dados sobre incapacidade auditiva (IA).

Estratégia de pesquisa

Foram conduzidas buscas nas bases de dados PubMed, Scopus, Science Direct, Web of Science e Lilacs, e na literatura cinzenta. Os softwares State of the Art through Systematic Review e Mendeley foram utilizados como ferramentas para organização, seleção e armazenamento dos documentos.

Critérios de seleção

Seguiram-se orientações propostas pela Preferred Reporting Items for Systematic Reviews and Meta-Analyses. De acordo com critérios de inclusão, foram selecionados estudos publicados em inglês ou português, entre 2001 e 2017, que aplicaram a pergunta sobre IA do WG.

Análise dos dados

Foram definidas como variáveis de análise: módulo WG utilizado, país e ano da coleta de dados, tamanho e composição da amostra, objetivo do estudo, periódico de publicação, estimativa da prevalência de IA e medidas de acurácia.

Resultados

Foram 65 os estudos incluídos, conduzidos com dados de 30 países. O módulo curto do WG foi mais comumente utilizado. As estimativas de prevalência da IA variaram de 0,2 a 2,3%, e apenas três estudos estimaram a acurácia do instrumento para sua identificação. Conclusão: O emprego do instrumento do WG, módulo de incapacidade auditiva, tem ocorrido em nível mundial, principalmente em países em desenvolvimento. A pequena variação entre as medidas de prevalência estimadas pelos estudos parece ser favorável ao objetivo do WG em gerar estimativas que permitam comparação internacional. No entanto, a escassez de estudos de validade indica a necessidade de mais investigações.

Descritores
Classificação Internacional de Funcionalidade Incapacidade e Saúde; Audição; Perda Auditiva; Avaliação da Deficiência; Inquéritos e Questionários

INTRODUCTION

Through its Classification of Functioning, Disability and Health (ICF), the World Health Organization (WHO) recognizes that disability is not limited to a deviation from a standard norm, in other words it is not an individual attribute, but rather a complex interaction between people with impairments and contextual factors. Disability is considered an umbrella term for impairments and, above all, encompasses the negative aspects of this interaction, including behaviour and environmental barriers that limit activities and the individual’s full, effective, and egalitarian participation in society(11 WHO: World Health Organization. Relatório mundial sobre a deficiência [Internet]. Geneva: WHO; 2011 [citado em 2021 Out 21]. Disponível em: http://whqlibdoc.who.int/publications/2011/9788564047020_por.pdf?ua=1
http://whqlibdoc.who.int/publications/20...

2 Diniz D, Medeiros M, Squinca F. Comments on the Portuguese translation of the International Classification of Functioning, Disability and Health. Cad Saude Publica. 2007;23(10):2507-10. http://dx.doi.org/10.1590/S0102-311X2007001000025. PMid:17891310.
http://dx.doi.org/10.1590/S0102-311X2007...
-33 WHO: World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO; 2001.). In 2018, disabling hearing loss, defined by the WHO as hearing thresholds in the better ear below 40dB in adults and 30dB in children, affected 466 million people (6.1% of the global population), with an estimated projection of 630 million in 2030 and 900 million in 2050, in the absence of effective prevention activities(44 WHO: World Health Organization. Deafness and hearing loss [Internet]. Geneva: WHO; 2015 (Fact Sheet; 300) [citado em 2021 Out 21]. Disponível em: http://www.who.int/pbd/deafness/estimates/en/
http://www.who.int/pbd/deafness/estimate...
).

Hearing loss can have several negative impacts on the individual. When considering the four components defined by the ICF – body function, body structure, activity and participation, and contextual factors – hearing loss starts to be observed not only through the focus of damage to the hearing organ, but also by taking account of the multidimensional experience of individuals with hearing loss. In this sense, the functionality approach provided progress in terms of the possibility of more reliably characterizing the impact of disability on the subject’s life, although gaps remain in the development of adequate tools that enable the collection of data regarding hearing disabilities, preferably in order to provide international comparisons(33 WHO: World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO; 2001.,55 Loeb M, Chen L-H. Assessing injury-related movement difficulties: A method for analyzing the association between functional limitations and social participation. Disabil Health J. 2011;4(2):102-11. http://dx.doi.org/10.1016/j.dhjo.2010.05.007. PMid:21419373.
http://dx.doi.org/10.1016/j.dhjo.2010.05...
).

In 2001, the Washington Group on Disability Statistics (WG) was set up with support from the United Nations (UN) to develop tools to obtain data about disabilities and their impact on the individual’s quality of life. When the study was conducted, the WG contained three questionnaires: the WG Short Set on Functioning (WG-SS), the WG Extended Set on Functioning (WG-EF) and the WG/UNICEF Module on Child Functioning (WG/UNICEF). In all three questionnaires, the question regarding hearing disability considered the degree of difficulty and the use of sound amplification devices(55 Loeb M, Chen L-H. Assessing injury-related movement difficulties: A method for analyzing the association between functional limitations and social participation. Disabil Health J. 2011;4(2):102-11. http://dx.doi.org/10.1016/j.dhjo.2010.05.007. PMid:21419373.
http://dx.doi.org/10.1016/j.dhjo.2010.05...

6 Loeb M. Development of disability measures for surveys: the Washington Group Extended Set on Functioning. In: Altman B, editor. International Measurement of Disability. Cham: Springer; 2016. p. 97-122. http://dx.doi.org/10.1007/978-3-319-28498-9_7.
http://dx.doi.org/10.1007/978-3-319-2849...
-77 Visser M, Nel M, Bronkhorst C, Brown L, Ezendam Z, Mackenzie K, et al. Childhood disability population-based surveillance: assessment of the Ages and Stages Questionnaire Third Edition and Washington Group on Disability Statistics/UNICEF module on child functioning in a rural setting in South Africa. Afr J Disabil. 2016;5(1):265. http://dx.doi.org/10.4102/ajod.v5i1.265. PMid:28730058.
http://dx.doi.org/10.4102/ajod.v5i1.265...
).

The use of these questionnaires has been recorded on censuses in several countries, although there are few studies about the results obtained and the instrument’s validity in the countries where it has been applied(88 Miller K, Mont D, Maitland A, Altman B, Madans J. Results of a cross-national structured cognitive interviewing protocol to test measures of disability. Qual Quant. 2011;45(4):801-15. http://dx.doi.org/10.1007/s11135-010-9370-4.
http://dx.doi.org/10.1007/s11135-010-937...
,99 Mont D, Altman B, Braithwaite J, Friedman J, Loeb M, Vega JM, et al. Measuring disability prevalence [Internet]. Washington: World Bank; 2007. (Report; 0706) [citado em 2021 Out 21]. Disponível em: www.worldbank.org/sp
www.worldbank.org/sp...
). Identifying hearing disability is complex, since it involves several factors, including environmental, social and cultural ones, hampering differentiation between the health condition and its impact on functionality(1010 Mactaggart I, Kuper H, Murthy GVS, Sagar J, Oye J, Polack S. Assessing health and rehabilitation needs of people with disabilities in Cameroon and India. Disabil Rehabil. 2016;38(18):1757-64. http://dx.doi.org/10.3109/09638288.2015.1107765. PMid:26680511.
http://dx.doi.org/10.3109/09638288.2015....
,1111 Morrettin M, Bevilacqua MC, Cardoso MR. A aplicação da Classificação Internacional de Funcionalidade, Incapacidade e Saúde (CIF) na audiologia. Distúrb Comun. 2008;20(3):395-402.). It is, however, necessary, as part of the process to guarantee inclusion and the right to the dignified participation of all individuals in society.

The development of tools that enable the collection of data that identifies hearing disability in a way that allows for international comparisons is important for the generation of epidemiological evidence to support the planning and evaluation of public policies and intervention strategies.

OBJECTIVE

The study objective was to investigate the use of questionnaires from the Washington Group on Disability Statistics to obtain data about hearing disability.

RESEARCH STRATEGY

We undertook a systematic review of the quantitative and qualitative literature, using descriptive analysis, based on a selection of scientific articles, dissertations, theses and official publications which applied the question about hearing disability developed by the WG, and were published between January 2001 and December 2017. The initial year was chosen because 2001 was the year the WG was created.

In May 2018, we surveyed the literature by searching the PubMed (International Biomedical and Lifesciences), Lilacs (Scientific Health Information from Latin America and the Caribbean countries), Science Direct and Web of Science databases. Our descriptors were identified through the MeSH - Medical Subject Headings. In addition to these descriptors we added terms and expressions collected through previous readings of articles on this subject. The English language terms and descriptors were: “Washington group”; “short set”; “extended set”; “Washington questionnaire”; “disability module”; “health survey”; “hearing”; “hearing loss”. The combination of terms and descriptors for each of the databases can be found in Appendix 1 Appendix 1 Search strategy by database PUBMED SCOPUS SCIENCE DIRECT WEB OF SCIENCE LILACS Search (((“washington group”) OR (((“short set” OR “extended set”)) AND question))) AND (((((“washington group”) OR (((“short set” OR “extended set”)) AND question)) OR (((“washington questionnaire”) OR module disability) OR “do you have difficulty”))) AND (((((((((domain) OR function) OR disability) OR impairment) OR disorder) OR “health survey”[MeSH Terms]) OR hearing) OR “hearing loss”) OR difficulty)) ((TITLE-ABSKEY (“washington group”)) OR (((TITLE-ABS KEY (“short set”) OR TITLE-ABS-KEY (“extended set”))) AND (TITLE-ABS-KEY (question))) OR ((TITLE-ABS-KEY (“Washington question”)OR TITLE-ABS-KEY (“Washington module disability”) OR TITLE-ABS-KEY ({do you have difficulty})))) AND ((TITLE-ABS KEY (function) OR TITLE-ABS-KEY (domain) OR TITLE-ABS-KEY (disability) OR TITLE-ABS-KEY (impairment) OR TITLE-ABS-KEY (disorder) OR TITLE-ABS-KEY (“health survey”) OR TITLE-ABS-KEY (hearing) OR TITLE-ABS-KEY (“hearing loss”) OR TITLE-ABS-KEY (difficulty)) (((“washington group W/2 disability”) or (“washington group”)) OR ((({short set?}) or ({extended set?})) AND ({question?}))) AND (((hearing) OR (“hearing loss”) OR (difficulty)) AND ((function) OR (domain) OR (disability) OR (impairment) OR (disorder))) Topic: (function) OR Topic: (domain) OR Topic: (difficulty) OR Topic: (hearing) OR Topic: (“hearing loss”) OR Topic: (“health survey”) OR Topic: (impairment) OR Topic: (disorder*) OR Topic: (disability)AND Topic: (“Washington question*”) OR Topic: (“do you have difficulty”) OR Topic: (“washington module”) OR (“short set” OR “extended set”) OR (“Washington group”) (tw:(“washington group” OR “short set” OR “extended set”)) AND (tw:((tw:(domain)) OR (tw:(function)) OR (tw:(disability)) OR (tw:(impairment)) OR (tw:(disorder)) OR (mh:(“health survey”)) OR (tw:(hearing)) OR (tw:(“hearing loss”)) OR (tw:(difficulty)))) . As well as these databases, we also conducted searches in the grey literature by accessing the thesis database of the Coordination for the Improvement of Higher Education Personnel (Coordenação de Aperfeiçoamento de Pessoal de Nível Superior: CAPES) and the Google Scholar (https://scholar.google.com) search engine. We used the “Washington Group” AND “hearing” Boolean string in these searches. Recently, the Cochrane Handbook for Systematic Reviews of Interventions and the Institute of Medicine's Standards for Systematic Review have begun to recommend the incorporation of different data sources in systematic analyses(1212 Godin K, Stapleton J, Kirkpatrick SI, Hanning RM, Leatherdale ST. Applying systematic review search methods to the grey literature: a case study examining guidelines for school-based breakfast programs in Canada. Syst Rev. 2015;4(1):138. http://dx.doi.org/10.1186/s13643-015-0125-0. PMid:26494010.
http://dx.doi.org/10.1186/s13643-015-012...
) to include those not published in academic sources.

To support the storage of abstracts, and the organization and selection of bibliographical references obtained from the databases, we used free StArt (State of the Art through Systematic Review) software, a computer tool for bibliographical management specifically developed to carry out systematic reviews(1313 UFSCar: Universidade Federal de São Carlos. StArt [Internet]. 2021 [citado em 2021 Out 21]. Disponível em: http://lapes.dc.ufscar.br/tools/start_tool
http://lapes.dc.ufscar.br/tools/start_to...
). Using this tool, we identified duplicate works recovered from different databases, excluded any duplicates, to ensure we only considered one version. Mendeley free software(1414 Mendeley [Internet]. London; 2021 [citado em 2021 Out 21]. Disponível em: https://www.mendeley.com
https://www.mendeley.com...
) was used to store complete documents.

SELECTION CRITERIA

The process for drafting and conducting the systematic review followed the guidelines of the Prisma (Preferred Reporting Items for Systematic Reviews and Meta-Analyses)(1515 Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097. http://dx.doi.org/10.1371/journal.pmed.1000097. PMid:19621072.
http://dx.doi.org/10.1371/journal.pmed.1...
) declaration. The PRISMA recommendations consist of a checklist containing 27 items and a flowchart with four stages. Once identified through the searches (stage 1), selection (stage 2) consisted of a systematic reading of the publications’ titles, abstracts and descriptors. We then excluded those works that did not fulfil the inclusion criteria (stage 3). Finally, we conducted a complete reading of the selected documents and included those that fulfilled all the eligibility criteria for review (stage 4). The inclusion criteria to select works were: original scientific articles, official documents, dissertations or theses, published in English or Portuguese between January 2001 and December 2017; and which asked the WG question about hearing disability to obtain data. Stages 2 to 4 were conducted independently by two reviewers, both Speech-Language-Hearing professionals. At any stage, cases of disagreement between the reviewers were resolved through consensus.

DATA ANALYSIS

We extracted data from the selected works with the support of a data extraction form and used Excel 2016 to construct the tables. The following data was extracted: objective, method, results and conclusion, journal and its respective impact factor, country and year the question was applied, participant demographic characteristics, the estimated prevalence of identified hearing disability and accuracy measures.

The variables for analysis were defined as: journal; year/time of application of WG module; study objective, categorized as (a) associates disability with other factors, (b) estimates disability prevalence, (c) undertakes comparison between instruments and (d) instrument validation; WG module used; country where the question was applied; sample size and composition; estimated prevalence of hearing disability; accuracy measures.

RESULTS

In all, 1,939 works were identified in the database searches and on Google Scholar. Of these, 969 were articles from scientific databases and 970 works were collected through a search of the grey literature. Works eliminated due to database duplication totalled 482. The 1,457 remaining works were screened as part of the first stage of the selection process. During this stage, following a reading and analysis of titles, abstracts and key words, 1,181 texts were excluded because they did not meet the established eligibility criteria. The 276 remaining works were read in full with the aid of the standardized information extraction form, of these, 211 works were excluded, since they did not include data about applying the hearing disability question. Sixty-five studies were therefore selected for synthesis within the systematic review, as seen in the Figure 1 flowchart.

Figure 1
Flowchart mapping the search and selection of scientific works for a systematic review of the use of the Washington Group on Disability Statistics hearing disability question, using PRISMA* criteria

Most of these studies were scientific articles published in journals with a high impact factor and h-index (Table 1). These indices, considered scientific coefficients, quantify the repercussion journals have within the academic environment. This finding suggests that the theme of functionality and/or use of WG questions for hearing disability is visible within the scientific community and well received by quality periodicals.

Table 1
Characteristics of studies selected in the review of literature about the use of the Washington Group on Disability Statistics’ tools to identify hearing disability, 2017

We observed a significant growth between 2009 and 2012 in the number of studies that applied WG instruments, with a similar level maintained over the following four years. This finding is consistent with the recommendation made at the 2008 UN Convention on the Rights of People with Disabilities to use questions developed by the WG in demographic censuses and population surveys(1717 Madans JH, Loeb ME, Altman BM. Measuring disability and monitoring the un Convention on the Rights of Persons with Disabilities: The work of the Washington Group on Disability Statistics. BMC Public Health. 2011;11(Suppl. 4):S4. http://dx.doi.org/10.1186/1471-2458-11-S4-S4. PMid:21624190.
http://dx.doi.org/10.1186/1471-2458-11-S...
).

In fact, the main aim of the WG was to create a tool capable of generating comparable data about disability at global level, which is easy to incorporate into censuses in different countries(1717 Madans JH, Loeb ME, Altman BM. Measuring disability and monitoring the un Convention on the Rights of Persons with Disabilities: The work of the Washington Group on Disability Statistics. BMC Public Health. 2011;11(Suppl. 4):S4. http://dx.doi.org/10.1186/1471-2458-11-S4-S4. PMid:21624190.
http://dx.doi.org/10.1186/1471-2458-11-S...
). In 2002, during the group’s first meeting, there was agreement about prioritizing the development of the WG Short Set, an instrument that analyses six functional domains or basic actions: vision, hearing, mobility, cognition, self-care and communication. In the English version, the question the group published about hearing is as follows: Do you have difficulty hearing, even if using a hearing aid?; versions are presented in several languages, with the recommendation that they be subject to a specific protocol in order to avoid inconsistencies and/or erroneous interpretations and to increase the validity and use of collected data. The response categories in the module vary according to degree of difficulty thus: No, no difficulty, Yes, some difficulty, Yes, a lot of difficulty and Cannot do it at all. In order to determine the status of disability in censuses, the WG recommends that disability be considered when the responses meet one of the following parameters: a) at least some difficulty in two domains b) and/or a lot of difficulty or worse in one domain(1818 Madans JH, Loeb M. Methods to improve international comparability of census and survey measures of disability. Disabil Rehabil. 2013;35(13):1070-3. http://dx.doi.org/10.3109/09638288.2012.720353. PMid:23020151.
http://dx.doi.org/10.3109/09638288.2012....
). The WG Extended Set on Functioning (WG-EF), created in 2005, was also based on the ICF and considers aspects of difficulty, that is, it seeks to establish the manifestation of limitations, the onset of disability, its duration, cause, and the practice of activities(66 Loeb M. Development of disability measures for surveys: the Washington Group Extended Set on Functioning. In: Altman B, editor. International Measurement of Disability. Cham: Springer; 2016. p. 97-122. http://dx.doi.org/10.1007/978-3-319-28498-9_7.
http://dx.doi.org/10.1007/978-3-319-2849...
). The group's most recent questionnaire is the child module. Created in 2011 in partnership with UNICEF, the WG/UNICEF Module on Child Functioning and Disability seeks to identify children with disabilities in the domains of vision, hearing, mobility, communication/understanding, learning, relationships and the ability to play.

We observed that the WG Short Set questionnaire was the more frequently used and was adopted by 53 of the 65 studies, probably because of its practical nature and ease of application(1919 Bachani AM, Galiwango E, Kadobera D, Bentley JA, Bishai D, Wegener S, et al. A new screening instrument for disability in low-income and middle-income settings: application at the Iganga-Mayuge Demographic Surveillance System (IM-DSS), Uganda. BMJ Open. 2014;4(12):e005795. http://dx.doi.org/10.1136/bmjopen-2014-005795. PMid:25526793.
http://dx.doi.org/10.1136/bmjopen-2014-0...
,2020 Ribeiro O, Teixeira L, Araújo L, Paúl C. Health profile of centenarians in Portugal: a census-based approach. Popul Health Metr. 2016;14(1):13. http://dx.doi.org/10.1186/s12963-016-0083-3. PMid:27076791.
http://dx.doi.org/10.1186/s12963-016-008...
). In 2014, the UN identified that 35 countries had used the short module in national censuses to identify disability or impairment(2121 United Nations. Secretary-General. A/68/95: the way forward: a disability-inclusive development agenda towards 2015 and beyond: report of the Secretary-General [Internet]. New York; 2014 [citado em 2021 Out 21]. Disponível em: https://digitallibrary.un.org/record/750428
https://digitallibrary.un.org/record/750...
). For our review, we only selected studies that recorded the WG question about hearing disability. We therefore identified 30 countries, with the African regions and Southeast Asia the most represented (Table 2). In addition to selection criteria, other factors may have contributed to the fact that not all countries that used the WG questions in censuses were represented in this review’s documents. For example, publication language (we only considered records in Portuguese/English) and availability (we only collected files indexed in digital media).

Table 2
Distribution of studies that used one of the Washington Group modules, by health region and country (N=65)

Despite this limitation, this study identified a significant number of records from countries that apply the WG questionnaire in order to estimate prevalence of hearing disability. However, most of the selected studies opted to use the questionnaires to measure and define the variable of hearing disability, in order to analyse how certain factors are related to the disability(55 Loeb M, Chen L-H. Assessing injury-related movement difficulties: A method for analyzing the association between functional limitations and social participation. Disabil Health J. 2011;4(2):102-11. http://dx.doi.org/10.1016/j.dhjo.2010.05.007. PMid:21419373.
http://dx.doi.org/10.1016/j.dhjo.2010.05...
,1010 Mactaggart I, Kuper H, Murthy GVS, Sagar J, Oye J, Polack S. Assessing health and rehabilitation needs of people with disabilities in Cameroon and India. Disabil Rehabil. 2016;38(18):1757-64. http://dx.doi.org/10.3109/09638288.2015.1107765. PMid:26680511.
http://dx.doi.org/10.3109/09638288.2015....
,2020 Ribeiro O, Teixeira L, Araújo L, Paúl C. Health profile of centenarians in Portugal: a census-based approach. Popul Health Metr. 2016;14(1):13. http://dx.doi.org/10.1186/s12963-016-0083-3. PMid:27076791.
http://dx.doi.org/10.1186/s12963-016-008...
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http://dx.doi.org/10.1016/j.worlddev.200...

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http://dx.doi.org/10.1080/09687599.2013....

24 Loeb ME, Eide AH. Living conditions among people with activity limitations in Malawi: a national representative study. SINTEF rapport [Internet]. Maryland: Washington Group on Disability Statistics; 2004 [citado em 2021 Out 21]. Disponível em: http://www.washingtongroup-disability.com/wp-content/uploads/2016/03/SINTEF_malawi_report.pdf
http://www.washingtongroup-disability.co...

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http://dx.doi.org/10.20344/amp.8060...

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37 Hanass-Hancock J, McKenzie TC. People with disabilities and income-related social protection measures in South Africa: where is the gap? Afr J Disabil. 2017;6:300. http://dx.doi.org/10.4102/ajod.v6i0.300. PMid:29062759.
http://dx.doi.org/10.4102/ajod.v6i0.300...

38 Groce N, Mitra S, Mont D, Nguyen C, Palmer M. The long-term impact of war: evidence on disability prevalence in Vietnam [Internet]. London: UCL Leonard Cheshire Disability and Inclusive Development Centre; 2015 (Report; 28) [citado em 2021 Out 21]. Disponível em: http://www.ucl.ac.uk/lc-ccr/centrepublications/workingpapers
http://www.ucl.ac.uk/lc-ccr/centrepublic...

39 Abimanyi-Ochom J, Mannan H, Groce NE, Mcveigh J. HIV/AIDS knowledge, attitudes and behaviour of persons with and without disabilities from the Uganda Demographic and Health Survey 2011: differential access to HIV/AIDS information and services. PLoS One. 2017;12(4):e0174877. http://dx.doi.org/10.1371/journal.pone.0174877. PMid:28406929.
http://dx.doi.org/10.1371/journal.pone.0...

40 Jagadesh S, Sevalie S, Fatoma R, Sesay F, Sahr F, Faragher B, et al. Disability among Ebola Survivors and their close contacts in Sierra Leone: a retrospective case-controlled cohort study. Clin Infect Dis. 2018;66(1):131-3. http://dx.doi.org/10.1093/cid/cix705. PMid:29020205.
http://dx.doi.org/10.1093/cid/cix705...

41 Zwang J. Needs assessment, persons with disabilities, Rakhine State, Myanmar [Internet]. Myanmar: Handicap International; 2016 [citado em 2021 Out 21]. Disponível em: http://themimu.info/sites/themimu.info/files/assessment_file_attachments/BTI323_-_Rakhine_study_pwd_-_Approved.pdf
http://themimu.info/sites/themimu.info/f...

42 Maart S, Jelsma J. Disability and access to health care: a community based descriptive study. Disabil Rehabil. 2014;36(18):1489-93. http://dx.doi.org/10.3109/09638288.2013.807883. PMid:23829353.
http://dx.doi.org/10.3109/09638288.2013....

43 Moyi P. Primary school attendance and completion among lower secondary school age children in Uganda. Curr Issues Educ. 2013;16(2):1-17.

44 Mont D, Nguyen C. Does parental disability matter to child education? Evidence from Vietnam. World Dev. 2013;48:88-107. http://dx.doi.org/10.1016/j.worlddev.2013.04.001.
http://dx.doi.org/10.1016/j.worlddev.201...

45 De Beaudrap P, Beninguisse G, Pasquier E, Tchoumkeu A, Touko A, Essomba F, et al. Prevalence of HIV infection among people with disabilities: a population-based observational study in Yaoundé, Cameroon (HandiVIH). Lancet HIV. 2017;4(4):e161-8. http://dx.doi.org/10.1016/S2352-3018(16)30209-0. PMid:28126484.
http://dx.doi.org/10.1016/S2352-3018(16)...

46 Vergunst R, Swartz L, Hem K-G, Eide AH, Mannan H, MacLachlan M, et al. Access to health care for persons with disabilities in rural South Africa. BMC Health Serv Res. 2017;17(1):741. http://dx.doi.org/10.1186/s12913-017-2674-5. PMid:29149852.
http://dx.doi.org/10.1186/s12913-017-267...

47 Ganle JK, Otupiri E, Obeng B, Edusie AK, Ankomah A, Adanu R. Challenges women with disability face in accessing and using maternal healthcare services in Ghana: a qualitative study. PLoS One. 2016;11(6):e0158361. http://dx.doi.org/10.1371/journal.pone.0158361. PMid:27347880.
http://dx.doi.org/10.1371/journal.pone.0...

48 Devkota HR, Clarke A, Murray E, Groce N. Do experiences and perceptions about quality of care differ among social groups in Nepal?: A study of maternal healthcare experiences of women with and without disabilities, and Dalit and non-Dalit women. PLoS One. 2017;12(12):e0188554. http://dx.doi.org/10.1371/journal.pone.0188554. PMid:29261691.
http://dx.doi.org/10.1371/journal.pone.0...

49 Seager JR, Tamasane T. Health and well-being of the homeless in South African cities and towns. Dev South Afr. 2010;27(1):63-83. http://dx.doi.org/10.1080/03768350903519358.
http://dx.doi.org/10.1080/03768350903519...

50 Palmer M. Health care utilization of persons with disabilities in Cambodia [Internet]. Geneva: WHO; 2017.

51 Pham H-L, Kizuki M, Takano T, Seino K, Watanabe M. Out-of-pocket Costs of Disabilities and Their Association with Household Socioeconomic Status Among School-aged Children in Vietnam. J Rural Med. 2013;8(2):212-21. http://dx.doi.org/10.2185/jrm.2876. PMid:25649134.
http://dx.doi.org/10.2185/jrm.2876...

52 Geda B, Berhane Y, Assefa N, Worku A. School Enrollment among children with disability in rural eastern Ethiopia: a community-based survey. J Commun Disord Deaf Stud Hear Aids. 2017;04(4):1000166. http://dx.doi.org/10.4172/2375-4427.1000166.
http://dx.doi.org/10.4172/2375-4427.1000...

53 Eide AH, Loeb ME. Living conditions among people with activity limitations in Zambia: anational representative study [Internet]. Oslo: (SINTEF) Health Research; 2006. 188 p. [citado em 2021 Out 21]. Disponível em: http://www.sintef.no/globalassets/upload/helse/levekar-og-tjenester/zambialcweb.pdf
http://www.sintef.no/globalassets/upload...

54 Eide AH, Shailes N, Karl‐G H. Living conditions among people with disabilities in Nepal: a national representative study [Internet]. Oslo: (SINTEF) Health Research; 2016.

55 Reyes CM, Tabuga AD, Mina CDD, Asis R, Datu MBG. Persons with Disability (PWDs) in rural Philippines: results from the 2010 field survey in Rosario, Batangas [Internet]. 2011 (PIDS Discussion Paper Series; 2011-06) [citado em 2021 Out 21]. Disponível em: http://library.pcw.gov.ph/sites/default/files/PWDs in rural philippines.pdf
http://library.pcw.gov.ph/sites/default/...

56 Mont D, Nguyen C. Spatial variation in the poverty gap between people with and without disabilities: evidence from Vietnam. Soc Indic Res. 2018;137(2):745-63. http://dx.doi.org/10.1007/s11205-017-1619-z.
http://dx.doi.org/10.1007/s11205-017-161...

57 UNICEF: United Nations Children's Fund. Raising the profile of disability in Guyana: an agenda for action [Internet]. 2021 [citado em 2021 Out 21]. Disponível em: http://www.devnet.org.gy/guyanagateway/node/161
http://www.devnet.org.gy/guyanagateway/n...
-5858 Andrade FCD, López-Ortega M. Educational differences in health among middle-aged and older adults in Brazil and Mexico. J Aging Health. 2017;29(6):923-50. http://dx.doi.org/10.1177/0898264317705781. PMid:28553819.
http://dx.doi.org/10.1177/08982643177057...
).

In the context of a shortage of human and technological resources in developing countries, the use of low cost instruments to estimate hearing disabilities is one alternative(5959 Braithwaite J, Mont D. Disability and poverty: a survey of World Bank Poverty Assessments and implications. Alter. 2009;3(3):219-32. http://dx.doi.org/10.1016/j.alter.2008.10.002.
http://dx.doi.org/10.1016/j.alter.2008.1...
). Fujiura et al.(6060 Fujiura GT, Park HJ, Rutkowski-Kmitta V. Disability statistics in the developing world: A reflection on the meanings in our numbers. J Appl Res Intellect Disabil. 2005;18(4):295-304. http://dx.doi.org/10.1111/j.1468-3148.2005.00268.x.
http://dx.doi.org/10.1111/j.1468-3148.20...
) confirmed that the way different nations understand disability and impairment is reflected in the method they use to identify them. At the time, developing countries generally used questions in their population research that related to disability based on the identification of the presence or lack of physical limitations, while developed countries were preoccupied with identifying aspects related to functionality and disability.

Recognition of the concept and the identification of disability supports an understanding of processes related to the experience of disability, since it considers aspects of interaction between an individual (with a health problem) and the contextual and environmental factors they experience(6161 Leonardi M, Bickenbach J, Ustun TB, Kostanjsek N, Chatterji S. The definition of disability: what is in a name? Lancet. 2006;368(9543):1219-21. http://dx.doi.org/10.1016/S0140-6736(06)69498-1. PMid:17027711.
http://dx.doi.org/10.1016/S0140-6736(06)...
). By considering multiple interactions, any discussion of functionality and disability based on this theoretical model favours a board understanding of different levels and the severity of an individual’s limitations. According to Schneider(6262 Schneider M. The difference a word makes: responding to questions on “disability” and “difficulty” in South Africa. Disabil Rehabil. 2009;31(1):42-50. http://dx.doi.org/10.1080/09638280802280338. PMid:19194809.
http://dx.doi.org/10.1080/09638280802280...
), using the term “difficulty” in the WG modules allows for the identification of people who would not otherwise be captured by the term “disability”, for example the elderly; and the identification of people with more severe difficulties, in other words, those who recognize that they are disabled, who respond with the answers “a lot of difficulty” or “cannot do it at all.” This more inclusive WG strategy to identify disabilities therefore keeps track of estimated disability and also enables access to those who experience mild or moderate difficulty. In this context, the assessment of disability is a fundamental approach to monitoring and modulating strategies, at both individual and collective level, aimed at advances in functionality, that is, at reducing disability despite the impairment, helping to reduce inequality in social participation(99 Mont D, Altman B, Braithwaite J, Friedman J, Loeb M, Vega JM, et al. Measuring disability prevalence [Internet]. Washington: World Bank; 2007. (Report; 0706) [citado em 2021 Out 21]. Disponível em: www.worldbank.org/sp
www.worldbank.org/sp...
). From this perspective, the skills of people with disabilities may expand, and they may experience improvements in their well-being and freedom, thereby expanding their rights(6363 WHO: World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO; 2007.).

Of the 65 studies identified, the majority were conducted with large samples, varying from 30 to 513,219 individuals, with a median of 3,140. Of the 17 studies focused on estimating the prevalence of hearing disability and/or accuracy measures, 65% investigated samples of more than 4,000 individuals. In population studies, principally conducted to generate estimates of health indicators, having a large sample provides a representative population(6464 Patel M, Doku V, Tennakoon L. Challenges in recruitment. Adv Psychiatr Treat. 2003;9(3):229-38. http://dx.doi.org/10.1192/apt.9.3.229.
http://dx.doi.org/10.1192/apt.9.3.229...
). Given that one of the WG’s main objectives is to support the dissemination of questions about functionality in censuses, national studies, and other applications, the studies analysed in this review demonstrate the feasibility of using the question to investigate hearing disability on a large scale. We note other factors that demonstrate the WG questionnaire’s large-scale application, including the fact that it is a rapid assessment instrument with multiple choice answers, and specific training is not required to apply it. In this context, Sprunt et al.(6565 Sprunt B, Hoq M, Sharma U, Marella M. Validating the UNICEF/Washington Group Child Functioning Module for Fijian schools to identify seeing, hearing and walking difficulties. Disabil Rehabil. 2019;41(2):201-1. http://dx.doi.org/10.1080/09638288.2017.1378929. PMid:28931311.
http://dx.doi.org/10.1080/09638288.2017....
) expanded the instruments’ feasibility by using key informants, such as teachers, given that, if the structure to hold clinical tests is limited, these professionals can be the main responders for the identification of disabilities in children. Similarly, Khandaker et al.(3434 Khandaker G, Muhit M, Rashid H, Khan A, Islam J, Jones C, et al. Infectious causes of childhood disability: results from a pilot study in rural Bangladesh. J Trop Pediatr. 2014;60(5):363-9. http://dx.doi.org/10.1093/tropej/fmu031. PMid:24929076.
http://dx.doi.org/10.1093/tropej/fmu031...
) argued that, as well as being effective and low-cost, the key informant method provides high sensitivity for the identification of children with disabilities. Other researchers have applied the questionnaire with carers(77 Visser M, Nel M, Bronkhorst C, Brown L, Ezendam Z, Mackenzie K, et al. Childhood disability population-based surveillance: assessment of the Ages and Stages Questionnaire Third Edition and Washington Group on Disability Statistics/UNICEF module on child functioning in a rural setting in South Africa. Afr J Disabil. 2016;5(1):265. http://dx.doi.org/10.4102/ajod.v5i1.265. PMid:28730058.
http://dx.doi.org/10.4102/ajod.v5i1.265...
,6565 Sprunt B, Hoq M, Sharma U, Marella M. Validating the UNICEF/Washington Group Child Functioning Module for Fijian schools to identify seeing, hearing and walking difficulties. Disabil Rehabil. 2019;41(2):201-1. http://dx.doi.org/10.1080/09638288.2017.1378929. PMid:28931311.
http://dx.doi.org/10.1080/09638288.2017....

66 Geda B, Berhane Y, Assefa N, Worku A. In rural eastern Ethiopia hearing loss is the most frequent disability during childhood: a community based survey. PLoS One. 2016;11(5):e0152791. http://dx.doi.org/10.1371/journal.pone.0152791. PMid:27149094.
http://dx.doi.org/10.1371/journal.pone.0...

67 Ensink RJH, Kuper H. Is hearing impairment associated with HIV? A systematic review of data from low- and middle-income countries. Trop Med Int Heal. 2017;22(12):1493-504. http://dx.doi.org/10.1111/tmi.12993. PMid:29078020.
http://dx.doi.org/10.1111/tmi.12993...

68 Mactaggart I, Cappa C, Kuper H, Loeb M, Polack S. Field testing a draft version of the UNICEF/Washington Group Module on child functioning and disability: background, methodology and preliminary findings from Cameroon and India. Alter Eur J Disabil Res. 2016;10(4):345-60. http://dx.doi.org/10.1016/j.alter.2016.09.003. PMid:31049115.
http://dx.doi.org/10.1016/j.alter.2016.0...
-6969 Rojas-Martínez R, Castro F, Villalobos A, Romero M, Allen B, Hubert C, et al. Population profiles associated with severe functioning difficulties and disability among two to four years old children in Mexico. Salud Publica Mex. 2017;59(4):361-9. http://dx.doi.org/10.21149/8485. PMid:29211256.
http://dx.doi.org/10.21149/8485...
) and old people(2020 Ribeiro O, Teixeira L, Araújo L, Paúl C. Health profile of centenarians in Portugal: a census-based approach. Popul Health Metr. 2016;14(1):13. http://dx.doi.org/10.1186/s12963-016-0083-3. PMid:27076791.
http://dx.doi.org/10.1186/s12963-016-008...
,2525 Brandão D, Ribeiro Ó, Paúl C. Functional, sensorial, mobility and communication difficulties in the portuguese oldest old (80+). Acta Med Port. 2017;30(6):463-71. http://dx.doi.org/10.20344/amp.8060. PMid:28898613.
http://dx.doi.org/10.20344/amp.8060...
,7070 Tareque MI, Tiedt AD, Islam TM, Begum S, Saito Y. Gender differences in functional disability and self-care among seniors in Bangladesh. BMC Geriatr. 2017;17(1):177. http://dx.doi.org/10.1186/s12877-017-0577-2. PMid:28789638.
http://dx.doi.org/10.1186/s12877-017-057...
,7171 Wandera SO, Ntozi J, Kwagala B. Prevalence and correlates of disability among older Ugandans: evidence from the Uganda National Household Survey. Glob Health Action. 2014;7(1):25686. http://dx.doi.org/10.3402/gha.v7.25686. PMid:25413721.
http://dx.doi.org/10.3402/gha.v7.25686...
).

Regarding estimates of hearing disability prevalence (Table 3), we observed that when the cut-off point recommended by the WG (“a lot of difficulty”) was applied, there was little variation between the estimates obtained (0.2-2.3%). However, when using the “some difficulty” cut-off point, the estimates in these studies differed considerably, from 1.4% to 15.9%. The “some difficulty” option appears to provide a broader and more diverse interpretation for the level of severity experienced by the individual, favouring the identification of impairments but hindering the comparability of estimates between populations. We note that 16 studies (24.6%) made adaptations to the modules(7373 Ramachandra SS, Allagh KP, Kumar H, Grills N, Marella M, Pant H, et al. Prevalence of disability among adults using Rapid Assessment of Disability tool in a rural district of South India. Disabil Health J. 2016;9(4):624-31. http://dx.doi.org/10.1016/j.dhjo.2016.05.010. PMid:27343046.
http://dx.doi.org/10.1016/j.dhjo.2016.05...
,7676 Islam FMA, Bhowmik JL, Islam SZ, Renzaho AMN, Hiller JE. Factors associated with disability in rural Bangladesh: Bangladesh Population-Based Diabetes and Eye Study (BPDES). PLoS One. 2016;11(12):e0165625. http://dx.doi.org/10.1371/journal.pone.0165625. PMid:27936096.
http://dx.doi.org/10.1371/journal.pone.0...
,7777 Marella M, Huq NL, Devine A, Baker SM, Quaiyum MA, Keeffe JE. Prevalence and correlates of disability in Bogra district of Bangladesh using the rapid assessment of disability survey. BMC Public Health. 2015;15(1):867. http://dx.doi.org/10.1186/s12889-015-2202-7. PMid:26346063.
http://dx.doi.org/10.1186/s12889-015-220...
), in particular to the response options, which is not recommended by the WG, and compromises comparative analysis between studies(1919 Bachani AM, Galiwango E, Kadobera D, Bentley JA, Bishai D, Wegener S, et al. A new screening instrument for disability in low-income and middle-income settings: application at the Iganga-Mayuge Demographic Surveillance System (IM-DSS), Uganda. BMJ Open. 2014;4(12):e005795. http://dx.doi.org/10.1136/bmjopen-2014-005795. PMid:25526793.
http://dx.doi.org/10.1136/bmjopen-2014-0...
,6666 Geda B, Berhane Y, Assefa N, Worku A. In rural eastern Ethiopia hearing loss is the most frequent disability during childhood: a community based survey. PLoS One. 2016;11(5):e0152791. http://dx.doi.org/10.1371/journal.pone.0152791. PMid:27149094.
http://dx.doi.org/10.1371/journal.pone.0...
,6969 Rojas-Martínez R, Castro F, Villalobos A, Romero M, Allen B, Hubert C, et al. Population profiles associated with severe functioning difficulties and disability among two to four years old children in Mexico. Salud Publica Mex. 2017;59(4):361-9. http://dx.doi.org/10.21149/8485. PMid:29211256.
http://dx.doi.org/10.21149/8485...

70 Tareque MI, Tiedt AD, Islam TM, Begum S, Saito Y. Gender differences in functional disability and self-care among seniors in Bangladesh. BMC Geriatr. 2017;17(1):177. http://dx.doi.org/10.1186/s12877-017-0577-2. PMid:28789638.
http://dx.doi.org/10.1186/s12877-017-057...

71 Wandera SO, Ntozi J, Kwagala B. Prevalence and correlates of disability among older Ugandans: evidence from the Uganda National Household Survey. Glob Health Action. 2014;7(1):25686. http://dx.doi.org/10.3402/gha.v7.25686. PMid:25413721.
http://dx.doi.org/10.3402/gha.v7.25686...

72 Ahmad NA, Mohamad Kasim N, Mahmud NA, Mohd Yusof Y, Othman S, Chan YY, et al. Prevalence and determinants of disability among adults in Malaysia: results from the National Health and Morbidity Survey (NHMS) 2015. BMC Public Health. 2017;17(1):756. http://dx.doi.org/10.1186/s12889-017-4793-7. PMid:28962562.
http://dx.doi.org/10.1186/s12889-017-479...

73 Ramachandra SS, Allagh KP, Kumar H, Grills N, Marella M, Pant H, et al. Prevalence of disability among adults using Rapid Assessment of Disability tool in a rural district of South India. Disabil Health J. 2016;9(4):624-31. http://dx.doi.org/10.1016/j.dhjo.2016.05.010. PMid:27343046.
http://dx.doi.org/10.1016/j.dhjo.2016.05...

74 Ferrite S, Mactaggart I, Kuper H, Oye J, Polack S. Prevalence and causes of hearing impairment in Fundong Health District, North-West Cameroon. Trop Med Int Health. 2017;22(4):485-92. http://dx.doi.org/10.1111/tmi.12840. PMid:28102004.
http://dx.doi.org/10.1111/tmi.12840...

75 Danquah L, Polack S, Brus A, Mactaggart I, Houdon CP, Senia P, et al. Disability in post-earthquake Haiti: prevalence and inequality in access to services. Disabil Rehabil. 2015;37(12):1082-9. http://dx.doi.org/10.3109/09638288.2014.956186. PMid:25178862.
http://dx.doi.org/10.3109/09638288.2014....

76 Islam FMA, Bhowmik JL, Islam SZ, Renzaho AMN, Hiller JE. Factors associated with disability in rural Bangladesh: Bangladesh Population-Based Diabetes and Eye Study (BPDES). PLoS One. 2016;11(12):e0165625. http://dx.doi.org/10.1371/journal.pone.0165625. PMid:27936096.
http://dx.doi.org/10.1371/journal.pone.0...

77 Marella M, Huq NL, Devine A, Baker SM, Quaiyum MA, Keeffe JE. Prevalence and correlates of disability in Bogra district of Bangladesh using the rapid assessment of disability survey. BMC Public Health. 2015;15(1):867. http://dx.doi.org/10.1186/s12889-015-2202-7. PMid:26346063.
http://dx.doi.org/10.1186/s12889-015-220...

78 Loeb ME, Eide AH, Mont D. Approaching the measurement of disability prevalence: the case of Zambia. Alter. 2008;2(1):32-43. http://dx.doi.org/10.1016/j.alter.2007.06.001.
http://dx.doi.org/10.1016/j.alter.2007.0...

79 Moniruzzaman M, Zaman MM, Mashreky SR, Rahman AKMF. Prevalence of disability in Manikganj district of Bangladesh: results from a large-scale cross-sectional survey. BMJ Open. 2016;6(7):e010207. http://dx.doi.org/10.1136/bmjopen-2015-010207. PMid:27431897.
http://dx.doi.org/10.1136/bmjopen-2015-0...

80 Oye J, Mactaggart I, Polack S, Schmidt E, Tamo V, Okwen M, et al. Prevalence and causes of visual impairment in Fundong District, North West Cameroon: results of a population-based survey. Ophthalmic Epidemiol. 2017;24(6):394-400. http://dx.doi.org/10.1080/09286586.2017.1313992. PMid:28886257.
http://dx.doi.org/10.1080/09286586.2017....

81 Giraldo-Rodríguez L, Rosas-Carrasco O, Mino-León D. Abuse in Mexican older adults with long-term disability: national prevalence and associated factors. J Am Geriatr Soc. 2015;63(8):1594-600. http://dx.doi.org/10.1111/jgs.13552. PMid:26289685.
http://dx.doi.org/10.1111/jgs.13552...
-8282 Smythe T, Mactaggart I, Kuper H, Oye J, Sieyen NC, Lavy C, et al. Prevalence and causes of musculoskeletal impairment in Fundong District, North-West Cameroon: results of a population-based survey. Trop Med Int Health. 2017;22(11):1385-93. http://dx.doi.org/10.1111/tmi.12971. PMid:28881434.
http://dx.doi.org/10.1111/tmi.12971...
).

Table 3
Studies which contained data about the prevalence of hearing disability according to type of Washington Group module used

The studies in the review aimed at analysing factors associated with hearing disability were able, amongst other factors, to identify a lower level of country development, aging, lower socio-economic conditions (family income, employment and the granting of benefits) and gender(2525 Brandão D, Ribeiro Ó, Paúl C. Functional, sensorial, mobility and communication difficulties in the portuguese oldest old (80+). Acta Med Port. 2017;30(6):463-71. http://dx.doi.org/10.20344/amp.8060. PMid:28898613.
http://dx.doi.org/10.20344/amp.8060...
,2828 Moscoso-Porras MG, Alvarado GF. Association between perceived discrimination and healthcare–seeking behavior in people with a disability. Disabil Health J. 2018;11(1):93-8. http://dx.doi.org/10.1016/j.dhjo.2017.04.002. PMid:28420592.
http://dx.doi.org/10.1016/j.dhjo.2017.04...
,3030 Cherry N, Chowdhury M, Haque R, McDonald C, Chowdhury Z. Disability among elderly rural villagers: report of a survey from Gonoshasthaya Kendra, Bangladesh. BMC Public Health. 2012;12(1):379. http://dx.doi.org/10.1186/1471-2458-12-379. PMid:22632632.
http://dx.doi.org/10.1186/1471-2458-12-3...
,4242 Maart S, Jelsma J. Disability and access to health care: a community based descriptive study. Disabil Rehabil. 2014;36(18):1489-93. http://dx.doi.org/10.3109/09638288.2013.807883. PMid:23829353.
http://dx.doi.org/10.3109/09638288.2013....
,5858 Andrade FCD, López-Ortega M. Educational differences in health among middle-aged and older adults in Brazil and Mexico. J Aging Health. 2017;29(6):923-50. http://dx.doi.org/10.1177/0898264317705781. PMid:28553819.
http://dx.doi.org/10.1177/08982643177057...
). People in more vulnerable situations more frequently referred to having hearing difficulties(3737 Hanass-Hancock J, McKenzie TC. People with disabilities and income-related social protection measures in South Africa: where is the gap? Afr J Disabil. 2017;6:300. http://dx.doi.org/10.4102/ajod.v6i0.300. PMid:29062759.
http://dx.doi.org/10.4102/ajod.v6i0.300...
,4646 Vergunst R, Swartz L, Hem K-G, Eide AH, Mannan H, MacLachlan M, et al. Access to health care for persons with disabilities in rural South Africa. BMC Health Serv Res. 2017;17(1):741. http://dx.doi.org/10.1186/s12913-017-2674-5. PMid:29149852.
http://dx.doi.org/10.1186/s12913-017-267...
,4848 Devkota HR, Clarke A, Murray E, Groce N. Do experiences and perceptions about quality of care differ among social groups in Nepal?: A study of maternal healthcare experiences of women with and without disabilities, and Dalit and non-Dalit women. PLoS One. 2017;12(12):e0188554. http://dx.doi.org/10.1371/journal.pone.0188554. PMid:29261691.
http://dx.doi.org/10.1371/journal.pone.0...
). In self-reported questionnaires, the prevalence of hearing disability was more frequently reported by women than men(2222 Mitra S, Sambamoorthi U. Disability and the rural labor market in India: evidence for males in Tamil Nadu. World Dev. 2008;36(5):934-52. http://dx.doi.org/10.1016/j.worlddev.2007.04.022.
http://dx.doi.org/10.1016/j.worlddev.200...
,3535 Bernabe-Ortiz A, Diez-Canseco F, Vasquez A, Kuper H, Walsham M, Blanchet K. Inclusion of persons with disabilities in systems of social protection: a population-based survey and case–control study in Peru. BMJ Open. 2016;6(8):e011300. http://dx.doi.org/10.1136/bmjopen-2016-011300. PMid:27566630.
http://dx.doi.org/10.1136/bmjopen-2016-0...
,6666 Geda B, Berhane Y, Assefa N, Worku A. In rural eastern Ethiopia hearing loss is the most frequent disability during childhood: a community based survey. PLoS One. 2016;11(5):e0152791. http://dx.doi.org/10.1371/journal.pone.0152791. PMid:27149094.
http://dx.doi.org/10.1371/journal.pone.0...
,7070 Tareque MI, Tiedt AD, Islam TM, Begum S, Saito Y. Gender differences in functional disability and self-care among seniors in Bangladesh. BMC Geriatr. 2017;17(1):177. http://dx.doi.org/10.1186/s12877-017-0577-2. PMid:28789638.
http://dx.doi.org/10.1186/s12877-017-057...
). The diversity of these association studies appears to ratify and reinforce the use of the WG module to measure and define the variable of hearing disability in different contexts.

Few studies estimated accuracy measures (Table 4). Sprunt et al.(6565 Sprunt B, Hoq M, Sharma U, Marella M. Validating the UNICEF/Washington Group Child Functioning Module for Fijian schools to identify seeing, hearing and walking difficulties. Disabil Rehabil. 2019;41(2):201-1. http://dx.doi.org/10.1080/09638288.2017.1378929. PMid:28931311.
http://dx.doi.org/10.1080/09638288.2017....
) recommend that any investigation of validity should analyse each domain separately and that different cut-off points for the degree of difficulty should be considered. When analysing the question about hearing in isolation, for the “some difficulty or worse” cut-off point, sensitivity and specificity values of 67% and 88% were found respectively, while for “a lot of difficulty or worse” these values were 22% and 99.6% respectively(7474 Ferrite S, Mactaggart I, Kuper H, Oye J, Polack S. Prevalence and causes of hearing impairment in Fundong Health District, North-West Cameroon. Trop Med Int Health. 2017;22(4):485-92. http://dx.doi.org/10.1111/tmi.12840. PMid:28102004.
http://dx.doi.org/10.1111/tmi.12840...
). The sensitivity and specificity measures for the hearing disability question in the WG child module were close to those obtained for the short set. It is worth noting that better accuracy was observed when the instrument was used with a teacher(6565 Sprunt B, Hoq M, Sharma U, Marella M. Validating the UNICEF/Washington Group Child Functioning Module for Fijian schools to identify seeing, hearing and walking difficulties. Disabil Rehabil. 2019;41(2):201-1. http://dx.doi.org/10.1080/09638288.2017.1378929. PMid:28931311.
http://dx.doi.org/10.1080/09638288.2017....
). The Mactaggart et al.(1010 Mactaggart I, Kuper H, Murthy GVS, Sagar J, Oye J, Polack S. Assessing health and rehabilitation needs of people with disabilities in Cameroon and India. Disabil Rehabil. 2016;38(18):1757-64. http://dx.doi.org/10.3109/09638288.2015.1107765. PMid:26680511.
http://dx.doi.org/10.3109/09638288.2015....
) study of a population of children and adults in Cameroon and India demonstrated that the “a lot of difficulty” cut-off point missed a large proportion of individuals with disabilities, usually between the different domains, and that this pattern is accentuated when considering the vision and hearing domains, where functional limitations are less likely to be self-reported.

Table 4
Distribution of studies that presented accuracy measures for hearing disability obtained from the Washington Group hearing module compared to pure tone audiometry

When applying the WG as a screening instrument for functionality at population level, the adoption of a cut-off point of analysis should therefore take account of its implications, while the results obtained for each cut-off point should be assessed parsimoniously.

CONCLUSION

The instruments of the Washington Group on Disability Statistics are used to identify hearing disability at global level, particularly in developing countries. The small variation between prevalence measures appears to be a favourable factor for the international comparability of estimates, which is one of its main strengths.

However, in this review, we observed that the cut-off point and other methodological differences may compromise the comparability of estimates; for this reason we recommend using the instrument in the format proposed by the WG and, wherever possible, presenting results that consider the two most common cut-off points: “a lot of difficulty” or worse; “some difficulty” or worse. More studies of the instrument's validity are also required, particularly to investigate the different cut-off points.

The positive points and advantages of using the instrument to measure hearing disability, such as ease of application and understanding, favour its dissemination for use in different scientific investigations, which go beyond censuses and prevalence studies.

Appendix 1 Search strategy by database

PUBMED SCOPUS SCIENCE DIRECT WEB OF SCIENCE LILACS
Search (((“washington group”) OR (((“short set” OR “extended set”)) AND question))) AND (((((“washington group”) OR (((“short set” OR “extended set”)) AND question)) OR (((“washington questionnaire”) OR module disability) OR “do you have difficulty”))) AND (((((((((domain) OR function) OR disability) OR impairment) OR disorder) OR “health survey”[MeSH Terms]) OR hearing) OR “hearing loss”) OR difficulty)) ((TITLE-ABSKEY (“washington group”)) OR (((TITLE-ABS KEY (“short set”) OR TITLE-ABS-KEY (“extended set”))) AND (TITLE-ABS-KEY (question))) OR ((TITLE-ABS-KEY (“Washington question”)OR TITLE-ABS-KEY (“Washington module disability”) OR TITLE-ABS-KEY ({do you have difficulty})))) AND ((TITLE-ABS KEY (function) OR TITLE-ABS-KEY (domain) OR TITLE-ABS-KEY (disability) OR TITLE-ABS-KEY (impairment) OR TITLE-ABS-KEY (disorder) OR TITLE-ABS-KEY (“health survey”) OR TITLE-ABS-KEY (hearing) OR TITLE-ABS-KEY (“hearing loss”) OR TITLE-ABS-KEY (difficulty)) (((“washington group W/2 disability”) or (“washington group”)) OR ((({short set?}) or ({extended set?})) AND ({question?}))) AND (((hearing) OR (“hearing loss”) OR (difficulty)) AND ((function) OR (domain) OR (disability) OR (impairment) OR (disorder))) Topic: (function) OR Topic: (domain) OR Topic: (difficulty) OR Topic: (hearing) OR Topic: (“hearing loss”) OR Topic: (“health survey”) OR Topic: (impairment) OR Topic: (disorder*) OR Topic: (disability)AND Topic: (“Washington question*”) OR Topic: (“do you have difficulty”) OR Topic: (“washington module”) OR (“short set” OR “extended set”) OR (“Washington group”) (tw:(“washington group” OR “short set” OR “extended set”)) AND (tw:((tw:(domain)) OR (tw:(function)) OR (tw:(disability)) OR (tw:(impairment)) OR (tw:(disorder)) OR (mh:(“health survey”)) OR (tw:(hearing)) OR (tw:(“hearing loss”)) OR (tw:(difficulty))))

Acknowledgements

We would like to thank Fernanda Reis for her careful review of the manuscript.

  • Study conducted at Universidade Federal da Bahia – UFBA - Salvador (BA), Brasil.
  • Financial support: nothing to declare.

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Publication Dates

  • Publication in this collection
    12 Jan 2022
  • Date of issue
    2022

History

  • Received
    21 Oct 2020
  • Accepted
    14 July 2021
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