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Network and social support to families of children with cerebral palsy

Objective:

To analyze the structure and composition of families with children with cerebral palsy and to identify the presence of support and social network they have.

Methods:

This is a descriptive and qualitative study conducted in a University Hospital in Londrina-PR. Data was collected with ten families at the hospital and the participants' residences, from October 2011 to March 2012 using field diary entry, genogram, ecomap and semi-structured interview. Data was analyzed using The Interpretation of Meaning Method.

Results:

The families were in most of the nuclear type. Their social network was composed by the maternal family, health professionals and religious institutions, highlighting the lack of the professionals of the Family Health Strategy. They received emotional, instrumental, informational and cognitive support, which were not sufficient and generated negative feelings.

Conclusion:

The nurse should detect frailties in the network and help families to look for and obtain the support needed.

Cerebral palsy; Family; Social Suport; Family Relations


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