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Caring for a child with congenital anomalies: the experience of the family

The survival of children with congenital anomaly comes with improved prognosis, so that it is important to know the experiences of the family to accept and place the child in society. However, health professionals, including nurses, still have difficulties related to the monitoring and guidance of this family. The objective of this study was to identify the family's experience in caring children with a congenital anomaly. The theoretical framework used was Symbolic Interactionism and narrative as methodology, respectively. From the experiences reported, the time of diagnosis was considered a major cause for the family suffering. After this period, facing daily health and welfare of the child became the prime objective. So, it was concluded that the assistance the family must rely on a support network assisting the family at the diagnosis and during the particularities of child care.

Congenital abnormality; Nursing; Family; Child


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