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Impositions and conflicts on the daily routine of families of children with chronic disease

Descriptive-exploratory study with qualitative approach in order to identify the impositions and conflicts faced on the daily routine by the families of children with chronic disease. Data were collected between November/2008 and January/2009 through semi-structured interviews conducted in a public hospital, reference for the treatment of chronic disease, with three families that live in the city of João Pessoa - PB, and processed through thematic analysis. The results show that the conflicts and impositions in the family routine include the abandonment of the job, resulting in financial problems; reduction/interruption of leisure moments; social and family misunderstanding; over demanding the main caretaker; loss of family structure and weakened relationships with negative repercussions for the whole family. It is emphasized that the health professionals need to know the life context of the children with chronic disease and their families in order to have elements for an appropriate planning to overcome the constraints that result from the disease.

Chronic disease; Family; Pediatric nursing; Child


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