Abstract
Our focus are the narratives of relatives of children with long-term conditions on the process of dehospitalization experienced by them, privileging the daily spaces of two families. Women continue to be the primary caretakers of children, and feel overwhelmed, unable to identify supports and support networks. The process of going home is challenging, requiring mothers to re-signify their lives after a long hospital stay. Children spend most of their time at home. Other community spaces that are in addition to the health services are still very scarce and almost not available. Rather than offering "parent training", emotional elements must be worked on, linked to the feelings of security and insecurity that may represent the hospital / home dialogue.
Keywords:
children; family; de-hospitalization; long-term condition; narrative