Clientele profile of early intervention services: a focus on eye health

Nascimento, Gabriela Cordeiro Corrêa do; Gagliardo, Heloisa Gagheggi Ravanini Gardon

doi:10.5935/0034-7280.20170049

Gabriela Cordeiro Corrêa do Nascimento Corresponding author: Gabriela Cordeiro Corrêa do Nascimento, Av. LothárioMeissner, 632. Universidade Federal do Paraná. Campus Botânico, Bloco Didático II, Departamento de Terapia Ocupacional. Bairro Jardim Botânico, Curitiba, PR. ZIP Code: 80210-170. E-mail: gabriela.correa@ufpr.br

Department of Occupational Therapy, Universidade Federal do Paraná, Curitiba, PR, Brazil.

Heloisa Gagheggi Ravanini Gardon Gagliardo

Department of Human Development and Rehabilitation, Universidade Estadual de Campinas, Campinas, SP, Brazil.

Corresponding author: Gabriela Cordeiro Corrêa do Nascimento, Av. LothárioMeissner, 632. Universidade Federal do Paraná. Campus Botânico, Bloco Didático II, Departamento de Terapia Ocupacional. Bairro Jardim Botânico, Curitiba, PR. ZIP Code: 80210-170. E-mail: gabriela.correa@ufpr.br

The authors declare no conflicts of interests.

Tables (9)

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NPM/C*:__________________ 1) Que idade tem a criança que você acompanha? □ Entre 0 e 1 ano □ Entre 1 e 2 anos □ Entre 2 e 3 anos □ Entre 3 e 4 anos □ Maior de 4 anos 2) Qual a sua idade: □ Menor de 20 anos □ Entre 20 e 25 anos □ Entre 25 e 30 anos □ Entre 30 e 40 anos □ Entre 40 e 50 anos □ Maior de 50 anos 3) Você é parente da criança? □ Sim □ Não 4) Se for parente, qual o grau de parentesco com a criança. □ Pai □ Mãe □ Avô □ Avó □ Tio □ Tia □ Irmão □ Irmã 5) Se não for parente, identifique:___________________________________________ 6) Se você não for a mãe da criança, você sabe qual a idade dela? □ Menor de 20 anos □ Entre 20 e 25 anos □ Entre 25 e 30 anos □ Entre 30 e 40 anos □ Entre 40 e 50 anos □ Maior de 50 anos 7) A criança já passou por consulta com oftalmologista? □ Sim □ Não 8) Quantas vezes? ▭ 9) O que os médicos falaram que seu filho tem nos olhos?_________________________________________________________________________ __________________________________________________________________________________________________________________________________________________ 10) Que idade tinha a criança quando foi pela primeira vez ao oftalmologista? ▭ 11) Com que idade a criança começou a frequentar a Intervenção/Estimulação Precoce? ▭ 12) Você foi orientado sobre o desenvolvimento da visão da criança? □ Sim □ Não 13) Se sim, quem te orientou?___________________________________________ 14) A criança realizou o "Teste do Olhinho" (Teste do Reflexo Vermelho)? □ Sim □ Não 15) Se sim, este foi realizado nas primeiras 48 horas de vida? □ Sim □ Não

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Table 1
Distribution by age group of mothers/caregivers

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Table 2
Average age of entry into early intervention service in months

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Table 3
Age group of children accompanied by mothers or caregivers

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Table 4
Distribution of children frequencies according to the perception of mothers or caregivers in relation to the initial diagnosis obtained^* * Possibility of multiple responses

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Table 5
Average age in months of first appointment with an ophthalmologist

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Table 6
Distribution of children frequencies according to the perception of mothers or caregivers in relation to the presence of visual change

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Tabela 7
Distribution of children frequencies who had visual change according to the perception of mothers or caregivers in relation to the type of visual change^* * Possibility of multiple responses

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NPM/C*:__________________ 1) How old is the child you accompany? □ Between 0 and 1 year □ Between 1 and 2 years □ Between 2 and 3 year □ Between 3 and 4 years □ Over 4 years 2) How old are you? □ Less than 20years Between 20 and 25 years □ Between 25 and 30 years □ Between 30 and 40 years □ Between 40 and 50 years □ Over 50 years 3) Are you related to the child? □ Yes □ No 4) If you are related, what is your relationship with the child. □ Father □ Mother □ Grandfahter □ Grandmother □ Uncle □ Aunt □ Brother □ Sister 5) If you are not related identify yourself:___________________________________________ 6) If you are not the child's mother, do you know how old s/he is? □ Less than 20years □ Between 20 and 25 years □ Between 25 and 30 years □ Between 30 and 40 years □ Between 40 and 50 years □ Over 50 years 7) Has the child had an appointment with an ophthalmologist? □ Yes □ No 8) How many times? ▭ 9) What have the doctors said that your child has in their eyes?_________________________________________________________________________ __________________________________________________________________________________________________________________________________________________ 10) How old was the child when s/he first went to the ophthalmologist? ▭ 11) How old was the child when s/he started attending Intervention/Early Stimulation? ▭ 12) Have you been guided about the development of child sight? □ Yes □ No 13) If so, who guided you?___________________________________________ 14) Did the child undergo the "Negative Eye Test" (Red Reflex Test)? □ Yes □ No 15) If so, was it done within the first 48 hours of life? □ Yes □ No *

n=273
Age	ƒ	%
Less than 20 years	17	6.2
Between 20 and 25 years	46	16.8
Between 25 and 30 years	46	16.8
Between 30 and 40 years	106	38.8
Between 40 and 50 years	47	17.2
Over 50 anos	11	4.0

n=273
Average	Standard Deviation	Minimum	Maximum
7.93	7.47	0.2	42

n=273
Age	ƒ	%
Less than 1 years	62	22.7
Between 1 and 2 years	95	34.8
Between 2 and 3 years	67	24.5
Between 3 and 4 years	43	15.8
Over 4 years	6	2.2

n=273
Diagnosis	ƒ	%
Down syndrome	73	26.7
Cerebral palsy	47	17.2
Developmental delay
not specified	47	17.2
Other neurological changes	46	16.8
Ophthalmologic changes	22	8.1
No closed diagnosis	14	5.1
Congenital infections	12	4.4
Other	9	3.3
Other syndromes	8	2.9
Hearing impairment	4	1.5
Couldn't explain	2	0.7

n=223^* * Number of people who reported the age of the first appointment
Average	Standard Deviation	Minimum	Maximum
6.8	6.35	0.1	48

n=226^* * Number of children who had undergone ophthalmological appointment
Presence of visual change	ƒ	%
Change	103	45.6
No change	96	42.5
Did not know	19	8.4
No closed diagnosis	8	3.5

n=103^ The calculation of the relative frequency did not considered those who did not have closed diagnosis or did not know to inform the type of the visual change
Visual change	ƒ	%
Strabismus	42	40,8
Refractive errors	19	18,4
Toxoplasmosis	8	7,8
Changes of the optic nerve	8	7,8
Cerebral visual impairment	7	6,8
Nystagmus	6	5,8
Cataract	6	5,8
Retinopathy of prematurity	2	1,9
Low vision	5	4,9
Congenital malformation	4	3,9
Glaucoma	3	2,9
Retinoblastoma	1	1,0
Albinism	1	1,0
Others	10	9,7

NPM/C^* * Number in the project concerning mother or caregiver. :__________________

1) How old is the child you accompany?

□ Between 0 and 1 year □ Between 1 and 2 years □ Between 2 and 3 year □ Between 3 and 4 years □ Over 4 years

2) How old are you?

□ Less than 20years Between 20 and 25 years □ Between 25 and 30 years □ Between 30 and 40 years

□ Between 40 and 50 years □ Over 50 years

3) Are you related to the child?

□ Yes □ No

4) If you are related, what is your relationship with the child.

□ Father □ Mother □ Grandfahter □ Grandmother □ Uncle □ Aunt □ Brother □ Sister

5) If you are not related identify yourself:___________________________________________

6) If you are not the child's mother, do you know how old s/he is?

□ Less than 20years □ Between 20 and 25 years □ Between 25 and 30 years

□ Between 30 and 40 years □ Between 40 and 50 years □ Over 50 years

7) Has the child had an appointment with an ophthalmologist?

□ Yes □ No

8) How many times? ▭

9) What have the doctors said that your child has in their eyes?_________________________________________________________________________

__________________________________________________________________________________________________________________________________________________

10) How old was the child when s/he first went to the ophthalmologist? ▭

11) How old was the child when s/he started attending Intervention/Early Stimulation? ▭

12) Have you been guided about the development of child sight?

□ Yes □ No

13) If so, who guided you?___________________________________________

14) Did the child undergo the "Negative Eye Test" (Red Reflex Test)?

□ Yes □ No

15) If so, was it done within the first 48 hours of life?

□ Yes □ No

NPM/C*:__________________

1) Que idade tem a criança que você acompanha?

□ Entre 0 e 1 ano □ Entre 1 e 2 anos □ Entre 2 e 3 anos □ Entre 3 e 4 anos □ Maior de 4 anos

2) Qual a sua idade:

□ Menor de 20 anos □ Entre 20 e 25 anos □ Entre 25 e 30 anos □ Entre 30 e 40 anos □ Entre 40 e 50 anos □ Maior de 50 anos

3) Você é parente da criança?

□ Sim □ Não

4) Se for parente, qual o grau de parentesco com a criança.

□ Pai □ Mãe □ Avô □ Avó □ Tio □ Tia □ Irmão □ Irmã

5) Se não for parente, identifique:___________________________________________

6) Se você não for a mãe da criança, você sabe qual a idade dela?

□ Menor de 20 anos □ Entre 20 e 25 anos □ Entre 25 e 30 anos □ Entre 30 e 40 anos □ Entre 40 e 50 anos □ Maior de 50 anos

7) A criança já passou por consulta com oftalmologista?

□ Sim □ Não

8) Quantas vezes? ▭

9) O que os médicos falaram que seu filho tem nos olhos?_________________________________________________________________________

__________________________________________________________________________________________________________________________________________________

10) Que idade tinha a criança quando foi pela primeira vez ao oftalmologista? ▭

11) Com que idade a criança começou a frequentar a Intervenção/Estimulação Precoce? ▭

12) Você foi orientado sobre o desenvolvimento da visão da criança?

□ Sim □ Não

13) Se sim, quem te orientou?___________________________________________

14) A criança realizou o "Teste do Olhinho" (Teste do Reflexo Vermelho)?

□ Sim □ Não

15) Se sim, este foi realizado nas primeiras 48 horas de vida?

□ Sim □ Não

[1] Corresponding author: Gabriela Cordeiro Corrêa do Nascimento, Av. LothárioMeissner, 632. Universidade Federal do Paraná. Campus Botânico, Bloco Didático II, Departamento de Terapia Ocupacional. Bairro Jardim Botânico, Curitiba, PR. ZIP Code: 80210-170. E-mail: gabriela.correa@ufpr.br

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Clientele profile of early intervention services: a focus on eye health

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