Stroke: patient characteristics and quality of life of caregivers

Costa, Tatiana Ferreira da; Gomes, Thayris Mariano; Viana, Lia Raquel de Carvalho; Martins, Kaisy Pereira; Costa, Kátia Nêyla de Freitas Macêdo

doi:10.1590/0034-7167-2015-0064

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RESEARCH • Rev. Bras. Enferm. 69 (5) • Sep-Oct 2016 • https://doi.org/10.1590/0034-7167-2015-0064 copy

Stroke: patient characteristics and quality of life of caregivers

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objective:

to investigate the association between the domains of health-related quality of life of family caregivers and sociodemographic characteristics of individuals with stroke sequelae.

Method:

descriptive, cross-sectional, quantitative research, conducted with 136 family caregivers of individuals with stroke sequelae by means of home interviews from April to June 2013.

Results:

we found that caregivers of individuals aged under 65 years, married, with 10 to 12 years of formal education, presented higher scores, respectively, in the domains 'Social aspects', 'Emotional aspects', and 'Mental health'. However, caregivers of patients with higher degree of disability obtained lower score in the 'Mental Health' domain.

Conclusion:

the results foster reflection on the need of including the family caregivers of individuals with stroke sequelae in the planning of care provided by health professionals.

Descriptors:
Nursing; Stroke; Caregivers; Quality of life; Characteristics of population

Domains of health-related quality of life	Mean ± sd⁽¹⁾ (1) standard deviation.	Median	Observed variation
Physical aspects	55.37 ± 43.66	75.00	0 – 100
Emotional aspects	60.54 ± 45.76	100.00	0 – 100
Pain	40.16 ± 27.18	33.33	0 – 100
Functional capacity	73.09 ± 24.82	80.00	0 – 100
Social aspects	54.12 ± 19.49	60.00	0 – 100
Mental Health	53.62 ± 20.03	57.14	0 – 100
Vitality	65.39 ± 17.75	66.67	0 – 100
General health status	54.19 ± 19.5	53.84	0 – 100

Domains of health-related quality of life⁽¹⁾ (1) For each domain, different letters	< 65 years (n=44)	65–80 years (n=61)	> 80 years (n=31)
Physical aspects	53.41 ^a (a, b) indicate that the mean scores are statistically different	59.17 ^a (a, b) indicate that the mean scores are statistically different	50.81 ^a (a, b) indicate that the mean scores are statistically different
Emotional aspects	52.27 ^a (a, b) indicate that the mean scores are statistically different	69.40 ^a (a, b) indicate that the mean scores are statistically different	54.84 ^a (a, b) indicate that the mean scores are statistically different
Pain	42.12 ^a (a, b) indicate that the mean scores are statistically different	38.80 ^a (a, b) indicate that the mean scores are statistically different	40.14 ^a (a, b) indicate that the mean scores are statistically different
Functional capacity	77.50 ^a (a, b) indicate that the mean scores are statistically different	72.70 ^a (a, b) indicate that the mean scores are statistically different	67.58 ^a (a, b) indicate that the mean scores are statistically different
Social aspects	60.00 ^a (a, b) indicate that the mean scores are statistically different	49.84 ^b (a, b) indicate that the mean scores are statistically different	54.19 ^a (a, b) indicate that the mean scores are statistically different ,^b (a, b) indicate that the mean scores are statistically different
Mental Health	50.32 ^a (a, b) indicate that the mean scores are statistically different	56.91 ^a (a, b) indicate that the mean scores are statistically different	51.84 ^a (a, b) indicate that the mean scores are statistically different
Vitality	65.45 ^a (a, b) indicate that the mean scores are statistically different	64.92 ^a (a, b) indicate that the mean scores are statistically different	66.24 ^a (a, b) indicate that the mean scores are statistically different
General health status	56.29 ^a (a, b) indicate that the mean scores are statistically different	52.71 ^a (a, b) indicate that the mean scores are statistically different	54.09 ^a (a, b) indicate that the mean scores are statistically different

Domains of health-related quality of life⁽¹⁾ (1) For each domain, different letters	Single/divorced/ widowed (n=67)	Married/other (n=69)
Physical aspects	52.65 ^a (a, b) indicate that the mean scores are statistically different	57.97 ^a (a, b) indicate that the mean scores are statistically different
Emotional aspects	51.24 ^a (a, b) indicate that the mean scores are statistically different	69.57 ^b (a, b) indicate that the mean scores are statistically different
Pain	40.13 ^a (a, b) indicate that the mean scores are statistically different	40.20 ^a (a, b) indicate that the mean scores are statistically different
Functional capacity	71.79 ^a (a, b) indicate that the mean scores are statistically different	74.35 ^a (a, b) indicate that the mean scores are statistically different
Social aspects	52.54 ^a (a, b) indicate that the mean scores are statistically different	55.65 ^a (a, b) indicate that the mean scores are statistically different
Mental Health	52.99 ^a (a, b) indicate that the mean scores are statistically different	54.24 ^a (a, b) indicate that the mean scores are statistically different
Vitality	65.07 ^a (a, b) indicate that the mean scores are statistically different	65.70 ^a (a, b) indicate that the mean scores are statistically different
General health status	55.57 ^a (a, b) indicate that the mean scores are statistically different	52.84 ^a (a, b) indicate that the mean scores are statistically different

Domains of health-related quality of life⁽¹⁾ (1) For each domain, different letters	Illiterate/ literate (n=61)	Elementary school (n=38)	High School (n=24)	Higher Education (n=13)
Physical aspects	55.33 ^a (a, b) indicate that the mean scores are statistically different.	48.65 ^a (a, b) indicate that the mean scores are statistically different.	65.63 ^a (a, b) indicate that the mean scores are statistically different.	55.77 ^a (a, b) indicate that the mean scores are statistically different.
Emotional aspects	57.92 ^a (a, b) indicate that the mean scores are statistically different.	61.40 ^a (a, b) indicate that the mean scores are statistically different.	59.72 ^a (a, b) indicate that the mean scores are statistically different.	71.79 ^a (a, b) indicate that the mean scores are statistically different.
Pain	44.63 ^a (a, b) indicate that the mean scores are statistically different.	39.18 ^a (a, b) indicate that the mean scores are statistically different.	31.48 ^a (a, b) indicate that the mean scores are statistically different.	38.46 ^a (a, b) indicate that the mean scores are statistically different.
Functional capacity	70.74 ^a (a, b) indicate that the mean scores are statistically different.	71.32 ^a (a, b) indicate that the mean scores are statistically different.	77.71 ^a (a, b) indicate that the mean scores are statistically different.	80.77 ^a (a, b) indicate that the mean scores are statistically different.
Social aspects	55.08 ^a (a, b) indicate that the mean scores are statistically different.	54.21 ^a (a, b) indicate that the mean scores are statistically different.	52.50 ^a (a, b) indicate that the mean scores are statistically different.	52.31 ^a (a, b) indicate that the mean scores are statistically different.
Mental Health	48.59 ^a (a, b) indicate that the mean scores are statistically different.	56.20 ^a (a, b) indicate that the mean scores are statistically different. ,^b (a, b) indicate that the mean scores are statistically different.	52.98 ^a (a, b) indicate that the mean scores are statistically different.	70.88 ^b (a, b) indicate that the mean scores are statistically different.
Vitality	64.59^a (a, b) indicate that the mean scores are statistically different.	64.21 ^a (a, b) indicate that the mean scores are statistically different.	66.67 ^a (a, b) indicate that the mean scores are statistically different.	70.26 ^a (a, b) indicate that the mean scores are statistically different.
General health status	56.12 ^a (a, b) indicate that the mean scores are statistically different.	54.45 ^a (a, b) indicate that the mean scores are statistically different.	50.64 ^a (a, b) indicate that the mean scores are statistically different.	50.89 ^a (a, b) indicate that the mean scores are statistically different.

Domains of health-related quality of life	Barthel
Domains of health-related quality of life	R	p value
Physical aspects	0.061	0.4822
Emotional aspects	-0.049	0.5702
Pain	-0.141	0.1028
Functional capacity	-0.031	0.7238
Social aspects	0.111	0.1974
Mental Health	0.176	0.0404*
Vitality	0.133	0.1220
General health status	0.006	0.9468

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[1] CORRESPONDING AUTHOR: Thayris Mariano Gomes. E-mail: thayris_mariano@hotmail.com