International collaboration networks for the surveillance of congenital anomalies: a narrative review

Abstract

Objective

to identify international congenital anomaly surveillance collaboration networks, to list the programs that compose them and to compare their main characteristics.

Methods

this was a narrative literature review by means of a MEDLINE database search (via PubMed) and searches involving websites, reports and official documents.

Results

six international congenital anomaly surveillance collaboration networks were identified (ECLAMC, ICBDSR, EUROCAT, BINOCAR, SEAR-NBBD and ReLAMC), comprised of 98 programs present in 58 different countries on all continents, except Africa; the main characteristics regarding type of surveillance, coverage and location were discussed in a comparative manner.

Conclusion

international collaborative networks are important players for congenital anomaly surveillance, contributing to the understanding of the global epidemiological scenario of these conditions, in addition to acting both to strengthen individual existing programs and also to create surveillance initiatives in unassisted regions.

Congenital Abnormalities; Epidemiological Monitoring; Review; International Cooperation; Health Services; Epidemiology