Knowing what is being a mother of a child with cystic fibrosis is essential to the care of these individuals, because she usually divides the responsibilities related to treatment, with the child who has this grave and incurable illness. This paper aimed to know the experience of being a mother of a child with cystic fibrosis. This is a descriptive exploratory study of qualitative phenomenological nature. Were interviewed 14 women and the data collection was carried out through a semi-structured interview. The analysis of the transcribed speeches followed directions proposed by phenomenology. This is an experience where the sorrow, anguish, doubt, suffering and fear are present, making these women reflect on their lives and their children's, promoting changes in their life world and a reorganization of the entire family.
Cystic fibrosis; Mother-child relations; Family