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Chronic disease in children and adolescents: professional-family bond for the promotion of social support

Abstract

OBJECTIVE

To analyze the bond in social support delivery by a multidisciplinary team to families during the hospital stay of children/adolescents with chronic disease.

METHOD

Qualitative research, conducted in the pediatric unit of a public hospital in Paraíba State, Brazil, from November 2012 to July 2013, involving fourteen health professionals, by means of a semi-structured interview. The data were subjected to thematic analysis.

RESULTS

The bond between the team and the family is promoted by dialogue and listening, which are recognized sources of social support. The encountered difficulties that interfered with the delivery of social support were weakness in team-family communication and interaction, gaps in the organization of the work process and lack of hospital infrastructure. Possible approaches to overcome these obstacles were follow-up beyond hospital discharge and a stronger team-family bond.

CONCLUSION

Satisfying social support has an influence on coping with chronic disease in children and adolescents, and its proper delivery relies upon bonding and embracement.

Keywords:

Social support. Chronic disease. Family. Professional-family relations. Child.

Palabras clave:
Apoyo social; Enfermedad crónica; Familia; Relaciones profesional-familia; Niño

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E-mail: revista@enf.ufrgs.br