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Social construction of the experience of living with chronic kidney disease1 1 Paper extracted from doctoral dissertation “El cuidado de personas con enfermedad renal crónica que han sido trasplantadas: un acercamiento fenomenológico-hermenéutico desde la perspectiva de los pacientes, familiares cuidadores y personal de enfermería”, presented to Facultad de Enfermería, Universidad de Antioquia, Medellín, Ant, Colombia.

ABSTRACT

Objective:

To understand the experience of people living with Chronic Kidney Disease who have been transplanted, from the meanings constructed based on the experienced phenomenon.

Method:

Hermeneutic-phenomenological study based on the five lifeworld existentials, according to Van Manen’s theoretical framework. Eleven transplanted patients participated in the study and data collection was carried out through semi-structured interviews, after approval of the study by the Ethics Committee of the University of Antioquia.

Results:

The theme of Living with Chronic Kidney Disease emerged, and the subthemes were grouped as lifeworld existentials of Temporality: something unexpected, being present and not seeing it, being young and sick. Relationality: support, feeling stuck and Terminal Chronic Renal Failure. Spatiality: changes in life, sadness and depression. Corporeality: body deterioration and changes in sex life. Materiality: effects on the economic status.

Conclusions:

The care provided to people must be oriented in order to recognize their individualities, understanding what the illness means for the individual and his family, how they live with it and what the changes are, leading them to modify their lives and start a long process, such as living with a chronic disease.

Descriptors:
Kidney Disease Chronic; Kidney Transplantation; Qualitative Research; Hermeneutic; Nursing; Care

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