Transition experiences of patients and families upon discharge from intensive care: a scoping review^*

Objective: to map available evidence on the experiences of adult patients and family members regarding the transition of care between intensive care and inpatient units.

Method: scoping review conducted according to Joanna Briggs Institute guidelines. Primary studies, reviews, dissertations, and theses published in Portuguese, English, or Spanish were included, with no time limit. The final search was conducted on health portals and databases and in digital libraries. The selection was performed by two reviewers in a blind and independent manner. The data were extracted using a script and presented in figures, descriptive and deductive qualitative analysis, categorizing the experiences between the stages of assessment, planning, execution, and follow-up after discharge.

Results: thirty articles comprised the sample. The experiences mapped highlight the transition as a critical moment in hospitalization, marked by emotional impact and informational weaknesses. Reports of unpreparedness, feelings of abandonment, and communication failures compromise the continuity of care and the adaptation of patients and family members.

Conclusion: the experiences described point to the transition of care between intensive care and inpatient units as a complex and multifaceted process. The gaps identified require structured communication strategies, timely information, and alignment between units.

Descriptors:
Patient Discharge; Patient-Centered Care; Continuity of Patient Care; Transitional Care; Patient Participation; Patient Transfer

Highlights:

(1) The transition between intensive care and inpatient care is complex and challenging. (2) Patients and family members experience an abrupt reduction and discontinuity of care. (3) Inaccurate or insufficient communication is present at all stages of the process. (4) The presence and involvement of family members as a source of emotional and informational support.