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The family of children with cerebral palsy: perception about health team orientations

Becoming the family of a child with cerebral palsy is a complex process, demanding professional preparation from the health team, besides the ethical and esthetical aspects of these families' care process. In this context, the aim was to get to know how families of children with cerebral palsy perceive the health team's information transmission for care delivery to children with cerebral palsy. The study was based on the perspective of Heidegger and Gadamer. A qualitative, exploratory and descriptive study was developed in Rio Grande-RS, Brazil, involving six families, with a total of nine subjects. Semi-structured interviews were used to collect data, later analyzed according to Thematic Analysis. When interpreting the information, incongruities were found between the health team's orientations and the families' demands for appropriate care delivery to children with special needs. It is relevant for health teams to be well equipped for holistic care delivery, focusing on the needs of these children and their families.

Care; Disabled children; Family; Cerebral palsy; Nursing


Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem Campus Universitário Trindade, 88040-970 Florianópolis - Santa Catarina - Brasil, Tel.: (55 48) 3721-4915 / (55 48) 3721-9043 - Florianópolis - SC - Brazil
E-mail: textoecontexto@contato.ufsc.br