Evaluation
|
To evaluate the knowledge of the child/adolescent and/or family about the health condition(1818 Chisolm DJ, Sarkar M, Kelleher KJ, Sanders LM. Predictors of health literacy and numeracy concordance among adolescents with special health care needs and their parents. J Health Commun[Internet]. 2015 [cited 2016 Jul 31];20(Suppl2):S43-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4699417/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Question the child/adolescent and/or his/her family about their strategies for self-care(1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
)
|
Ask the child/adolescent and/or family what are the barriers to self-care(2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2323 Palermo TM, Lewandowski AS, Long AC, Burant CJ. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain[Internet]. 2008 [cited 2016 Jul 31];139(3):644-52. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3166250/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
To assess the importance and degree of confidence of the child/adolescent and/or family for self-care(1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
To evaluate the child/adolescent and/or family adherence in activities present in the self-care plan(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2424 Blydt-Hansen TD, Pierce CB, Cai Y, Samsonov D, Massengill S, Moxey-Mims M, et al. Medication treatment complexity and adherence in children with CKD. Clin J Am Soc Nephrol [Internet]. 2014 [cited 2016 Jul 31];9(2):247-54. Available From: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3913241/
https://www.ncbi.nlm.nih.gov/pmc/article...
25 Pennarola BW, Rodday AM, Mayer DK, Ratichek SJ, Davies SM, Syrjala KL, et al. Factors associated with parental activation in pediatric hematopoietic stem cell transplant. Med Care Res Rev[Internet]. 2012 [cited 2016 Jul 31];69(2):194-214. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4160822/
https://www.ncbi.nlm.nih.gov/pmc/article...
26 Lapresa LB, Sanz-Barbero B. Variables associated with the use of dental services among preschool population in spain: a national health survey analysis. Rev Esp Salud Publica[Internet]. 2012 [cited 2016 Jul 31];86(1):115-24. Available from: http://www.msssi.gob.es/bibliopublic/publicaciones/recursos_propios/resp/revista_cdrom/vol86/vol86_1/rs861c_115.pdf
http://www.msssi.gob.es/bibliopublic/pub...
27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
28 Hommel KA, Davis CM, Baldassano RN. Objective versus subjective assessment of oral medication adherence in pediatric. Inflamm Bowel Dis[Internet]. 2009 [cited 2016 Jul 31];15(4):589-93. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2663377/
https://www.ncbi.nlm.nih.gov/pmc/article...
-2929 Modi AC, Lim CS, Yu N, Geller D, Wagner MH, Quittner AL. A multi-method assessment of treatment adherence for children with Cystic Fibrosis. J Cyst Fibros[Internet]. 2006 [cited 2016 Jul 31];5(3):177-85. Available from: http://www.cysticfibrosisjournal.com/article/s1569-1993(06)00034-8/fulltext
http://www.cysticfibrosisjournal.com/art...
)
|
To evaluate the capacity of the patients and/or family to perform an intervention(1414 Sleath B, Carpenter DM, Ayala GX, Williams D, Davis S, Tudor G, et al. Communication during pediatric asthma visits and child asthma medication device technique 1 month later. J Asthma [Internet]. 2012 [cited 2016 Jul 31];49(9):918-25. Available from: Http://Www.Tandfonline.Com/Doi/Full/10.3109/02770903.2012.719250?Scroll=Top&Needaccess=True
Http://Www.Tandfonline.Com/Doi/Full/10.3...
,1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3030 Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant[Internet]. 2015 [cited 2016 Jul 31];19(1):118-29. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4280334/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
To determine the strategies used by the child/adolescent with chronic disease for rehabilitation/coping(2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3131 Adams D, Dagenais S, Clifford T, Baydala L, King WJ, Hervas-Malo M, et al. Complementary and alternative medicine use by pediatric specialty outpatients. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(2):225-32. Available from: http://pediatrics.aappublications.org/content/pediatrics/early/2013/01/08/peds.2012-1220.full.pdf
http://pediatrics.aappublications.org/co...
)
|
To assess the emotional state (depression, mood, anxiety, etc.) of the child/adolescent and/or the family, which may influence self-care actions(1313 Warner CM, Colognori D, Kim RE, Reigada LC, Klein RG, Browner-Elhanan KJ, et al. Cognitive-behavioral treatment of persistent functional somatic complaints and pediatric anxiety: an initial controlled trial. Depress Anxiety[Internet]. 2011 [cited 2016 Jul 31];28(7):551-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3128648/
https://www.ncbi.nlm.nih.gov/pmc/article...
,1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2323 Palermo TM, Lewandowski AS, Long AC, Burant CJ. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain[Internet]. 2008 [cited 2016 Jul 31];139(3):644-52. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3166250/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3030 Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant[Internet]. 2015 [cited 2016 Jul 31];19(1):118-29. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4280334/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3232 Guilfoyle SM, Denson LA, Baldassano RN, Hommel KA. Paediatric parenting stress in Inflammatory Bowel Disease: application of the pediatric inventory for parents. Child Care Health Dev[Internet]. 2012 [cited 2016 Jul 31];38(2):273-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3123674/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
)
|
To evaluate the process of health care transition (HCT) from pediatric to adult-centered health care delivery systems(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,1818 Chisolm DJ, Sarkar M, Kelleher KJ, Sanders LM. Predictors of health literacy and numeracy concordance among adolescents with special health care needs and their parents. J Health Commun[Internet]. 2015 [cited 2016 Jul 31];20(Suppl2):S43-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4699417/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3434 Klassen AF, Grant C, Barr R, Brill H, Kraus OC, Ronen GM, et al. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev[Internet]. 2014 [cited 2016 Jul 31];41(4):547-58. Available from: http://onlinelibrary.wiley.com/doi/10.1111/cch.12207/pdf
http://onlinelibrary.wiley.com/doi/10.11...
-3535 Fishman LN, Ziniel SI, Adrichem ME, Fernandes SM, Arnold J. Provider awareness alone does not improve transition readiness skills in adolescent patients with Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr[Internet]. 2014 [cited 2016 Jul 31];59(2):221-4. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24762453/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
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Counseling
|
Inform the child/adolescent and/or family about the symptoms of the disease and/or therapeutic measures(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
), while recognizing the cultural uniqueness(1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Inform the child/adolescent and/or family that behavioral changes are as important as taking medications (2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
To report the evidence on behavioral changes in health(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Sharing evidence-based clinical guidelines to encourage the child/adolescent and/or family to participate in treatment(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3535 Fishman LN, Ziniel SI, Adrichem ME, Fernandes SM, Arnold J. Provider awareness alone does not improve transition readiness skills in adolescent patients with Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr[Internet]. 2014 [cited 2016 Jul 31];59(2):221-4. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24762453/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Provide educational material on self-management(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Include motivational strategies (1515 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long
http://pediatrics.aappublications.org/co...
)
|
Agreement
|
Provide possible options for defining the goal of self-care(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
)
|
Encourage the child/adolescent to seek the help of relatives and friends for goal setting(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Establish shared strategies for reaching the defined goal(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Care
|
Refer the child/adolescent and/or family to a group or self-care course (self-management)(2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|
Identify possible resources in the family and community that can support self-care(1515 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long
http://pediatrics.aappublications.org/co...
)
|
Establish an intervention program, with weekly sessions, with the aim of improving the knowledge of the child/adolescent and/or the family and involving them in self-care(2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
)
|
Implement a self-care intervention centered on the patient and/or his/her family(2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
)
|
Promoting multi-professional teamwork(2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
)
|
Interventions using technological resources, such as telemedicine, virtual reality and computer programs, in various aspects of rehabilitation(44 Margolis PA, Peterson LE, Seid M. Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(Suppl4):S219-23. Available from: http://pediatrics.aappublications.org/content/131/supplement_4/s219.long
http://pediatrics.aappublications.org/co...
,1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
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Accompaniment |
Distance monitoring (by phone or mail) of the self-care plan(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
,3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
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Helping the person to use important community resources in his/her self-care(1515 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long
http://pediatrics.aappublications.org/co...
)
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Groups of pairs with professional support(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
)
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Accompany the child/adolescent and/or the family through questionnaires that assess activities of daily living, self-care and/or quality of life in a continuous form(3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
)
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Analyzing the achievement of goals in conjunction with the patient(3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
)
|
Implement a self-care intervention centered on the patient and/or his/her family(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
)
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Interventions using technological resources to empower the individual in self-care actions(44 Margolis PA, Peterson LE, Seid M. Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(Suppl4):S219-23. Available from: http://pediatrics.aappublications.org/content/131/supplement_4/s219.long
http://pediatrics.aappublications.org/co...
,1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
|