Avaliação
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Avaliar o conhecimento da criança/adolescente e/ou da família sobre a condição de saúde(1818 Chisolm DJ, Sarkar M, Kelleher KJ, Sanders LM. Predictors of health literacy and numeracy concordance among adolescents with special health care needs and their parents. J Health Commun[Internet]. 2015 [cited 2016 Jul 31];20(Suppl2):S43-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4699417/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Perguntar à criança/adolescente e/ou à família sua opinião sobre as estratégias para o autocuidado(1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
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Perguntar à criança/adolescente e/ou à família quais são as barreiras para o autocuidado(2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2323 Palermo TM, Lewandowski AS, Long AC, Burant CJ. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain[Internet]. 2008 [cited 2016 Jul 31];139(3):644-52. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3166250/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Avaliar a importância e o grau de confiança da criança/adolescente e/ou da família para o autocuidado(1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Avaliar a adesão da criança/adolescente e/ou da família em atividades presentes no plano de autocuidado(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2424 Blydt-Hansen TD, Pierce CB, Cai Y, Samsonov D, Massengill S, Moxey-Mims M, et al. Medication treatment complexity and adherence in children with CKD. Clin J Am Soc Nephrol [Internet]. 2014 [cited 2016 Jul 31];9(2):247-54. Available From: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3913241/
https://www.ncbi.nlm.nih.gov/pmc/article...
25 Pennarola BW, Rodday AM, Mayer DK, Ratichek SJ, Davies SM, Syrjala KL, et al. Factors associated with parental activation in pediatric hematopoietic stem cell transplant. Med Care Res Rev[Internet]. 2012 [cited 2016 Jul 31];69(2):194-214. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4160822/
https://www.ncbi.nlm.nih.gov/pmc/article...
26 Lapresa LB, Sanz-Barbero B. Variables associated with the use of dental services among preschool population in spain: a national health survey analysis. Rev Esp Salud Publica[Internet]. 2012 [cited 2016 Jul 31];86(1):115-24. Available from: http://www.msssi.gob.es/bibliopublic/publicaciones/recursos_propios/resp/revista_cdrom/vol86/vol86_1/rs861c_115.pdf
http://www.msssi.gob.es/bibliopublic/pub...
27 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
28 Hommel KA, Davis CM, Baldassano RN. Objective versus subjective assessment of oral medication adherence in pediatric. Inflamm Bowel Dis[Internet]. 2009 [cited 2016 Jul 31];15(4):589-93. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2663377/
https://www.ncbi.nlm.nih.gov/pmc/article...
-2929 Modi AC, Lim CS, Yu N, Geller D, Wagner MH, Quittner AL. A multi-method assessment of treatment adherence for children with Cystic Fibrosis. J Cyst Fibros[Internet]. 2006 [cited 2016 Jul 31];5(3):177-85. Available from: http://www.cysticfibrosisjournal.com/article/s1569-1993(06)00034-8/fulltext
http://www.cysticfibrosisjournal.com/art...
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Avaliar a capacidade dos pacientes e/ou família para a realização de uma intervenção(1414 Sleath B, Carpenter DM, Ayala GX, Williams D, Davis S, Tudor G, et al. Communication during pediatric asthma visits and child asthma medication device technique 1 month later. J Asthma [Internet]. 2012 [cited 2016 Jul 31];49(9):918-25. Available from: Http://Www.Tandfonline.Com/Doi/Full/10.3109/02770903.2012.719250?Scroll=Top&Needaccess=True
Http://Www.Tandfonline.Com/Doi/Full/10.3...
,1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3030 Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant[Internet]. 2015 [cited 2016 Jul 31];19(1):118-29. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4280334/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Conhecer as estratégias utilizadas pela criança/adolescente com doença crônica para reabilitação/enfrentamento (2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3131 Adams D, Dagenais S, Clifford T, Baydala L, King WJ, Hervas-Malo M, et al. Complementary and alternative medicine use by pediatric specialty outpatients. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(2):225-32. Available from: http://pediatrics.aappublications.org/content/pediatrics/early/2013/01/08/peds.2012-1220.full.pdf
http://pediatrics.aappublications.org/co...
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Avaliar o estado emocional (depressão, humor, ansiedade, etc.) da criança/adolescente e/ou da família, o qual pode influenciar nas ações de autocuidado(1313 Warner CM, Colognori D, Kim RE, Reigada LC, Klein RG, Browner-Elhanan KJ, et al. Cognitive-behavioral treatment of persistent functional somatic complaints and pediatric anxiety: an initial controlled trial. Depress Anxiety[Internet]. 2011 [cited 2016 Jul 31];28(7):551-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3128648/
https://www.ncbi.nlm.nih.gov/pmc/article...
,1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2323 Palermo TM, Lewandowski AS, Long AC, Burant CJ. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain[Internet]. 2008 [cited 2016 Jul 31];139(3):644-52. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3166250/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3030 Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, et al. Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant[Internet]. 2015 [cited 2016 Jul 31];19(1):118-29. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4280334/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3232 Guilfoyle SM, Denson LA, Baldassano RN, Hommel KA. Paediatric parenting stress in Inflammatory Bowel Disease: application of the pediatric inventory for parents. Child Care Health Dev[Internet]. 2012 [cited 2016 Jul 31];38(2):273-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3123674/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
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Avaliar o processo de transição de cuidados de saúde (HCT) da assistência pediátrica até os sistemas de prestação de cuidados de saúde centrados no adulto(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,1818 Chisolm DJ, Sarkar M, Kelleher KJ, Sanders LM. Predictors of health literacy and numeracy concordance among adolescents with special health care needs and their parents. J Health Commun[Internet]. 2015 [cited 2016 Jul 31];20(Suppl2):S43-9. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4699417/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3434 Klassen AF, Grant C, Barr R, Brill H, Kraus OC, Ronen GM, et al. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev[Internet]. 2014 [cited 2016 Jul 31];41(4):547-58. Available from: http://onlinelibrary.wiley.com/doi/10.1111/cch.12207/pdf
http://onlinelibrary.wiley.com/doi/10.11...
-3535 Fishman LN, Ziniel SI, Adrichem ME, Fernandes SM, Arnold J. Provider awareness alone does not improve transition readiness skills in adolescent patients with Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr[Internet]. 2014 [cited 2016 Jul 31];59(2):221-4. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24762453/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Aconselhamento
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Informar à criança/adolescente e/ou à família sobre os sintomas da doença e/ou medidas terapêuticas(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
), reconhecendo a singularidade cultural(1919 Nightingale R, Sinha MD, Swallow V. Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5. BMC Health Serv Res[Internet]. 2014 [cited 2016 Jul 31];18(14):403-15. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4176584/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Informar à criança/adolescente e/ou à família que as mudanças comportamentais são tão importantes quanto tomar os medicamentos(2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Informar quais são as evidências sobre as mudanças de comportamento na saúde(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Compartilhar as diretrizes clínicas baseadas em evidências para encorajar a criança/adolescente e/ou a família a participarem do tratamento(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3535 Fishman LN, Ziniel SI, Adrichem ME, Fernandes SM, Arnold J. Provider awareness alone does not improve transition readiness skills in adolescent patients with Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr[Internet]. 2014 [cited 2016 Jul 31];59(2):221-4. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24762453/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Fornecer material educativo sobre autogerenciamento(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Incluir estratégias motivacionais(1515 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long
http://pediatrics.aappublications.org/co...
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Acordo
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Prover possíveis opções para a definição da meta de autocuidado(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
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Estimular a criança/adolescente a buscar a ajuda de parentes e amigos para a definição da meta(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Estabelecer de forma compartilhada estratégias para alcance da meta definida(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Assistência
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Encaminhar a criança/adolescente e/ou a família a um grupo ou a um curso sobre autocuidado apoiado (auto gestão)(2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Identificar com a pessoa possíveis recursos existentes na família e na comunidade que possam dar suporte ao autocuidado(1515 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long
http://pediatrics.aappublications.org/co...
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Estabelecer um programa de intervenção, com sessões semanais, com o objetivo de melhorar o conhecimento da criança/adolescente e/ou da família e envolvê-los no autocuidado(2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
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Implementar uma intervenção de autocuidado centrada no paciente e/ou sua família(2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
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Promover o trabalho em equipe multiprofissional(2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
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Intervenções com uso de recursos tecnológicos, como telemedicina, realidade virtual e programas computacionais, em variados aspectos da reabilitação(44 Margolis PA, Peterson LE, Seid M. Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(Suppl4):S219-23. Available from: http://pediatrics.aappublications.org/content/131/supplement_4/s219.long
http://pediatrics.aappublications.org/co...
,1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Acompanhamento
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Monitorar, a distância, por telefone ou correio, o plano de autocuidado(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
,3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
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Interferir para que a pessoa possa utilizar os recursos comunitários importantes no seu autocuidado(1515 Pomietto M, Docter AD, Van Borkulo N, Alfonsi L, Krieger J, Liu LL. Small steps to health: building sustainable partnerships in pediatric obesity care. Pediatrics [Internet]. 2009 [cited 2016 Jul 31];123 (Suppl 5):S308-16. Available from: http://pediatrics.aappublications.org/content/123/supplement_5/s308.long
http://pediatrics.aappublications.org/co...
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Grupo de pares com apoio de profissionais(1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2727 Allen LB, Tsao JC, Hayes LP, Zeltzer LK. Peer mentorship to promote effective pain management in adolescents: study protocol for a randomised controlled trial. Trials [Internet]. 2011 [cited 2016 Jul 31];12:132. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3113991/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
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Acompanhar a criança/adolescente e/ou a família por meio de questionários que avaliem atividades da vida diária, autocuidado e/ou qualidade de vida de forma contínua(3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
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Analisar o alcance de metas em conjunto com o paciente(3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
)
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Implementar uma intervenção de autocuidado centrada no paciente e/ou sua família(1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2020 Tulloch J, Irwin D, Pascuet E, Vaillancourt R. Evaluation, modification and validation of a set of asthma illustrations in children with chronic asthma in the emergency department. Can Respir J[Internet]. 2012 [cited 2016 Jul 31];19(1):26-31. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3299044/
https://www.ncbi.nlm.nih.gov/pmc/article...
,3838 Omori CH, Silva CA, Sallum AM, Pereira RMR, Pinto ALS, Roschel H, et al. Exercise training in juvenile dermatomyositis. Arthritis Care Res[Internet]. 2012 [cited 2016 Jul 31];64(8):1186-94. Available from: http://onlinelibrary.wiley.com/doi/10.1002/acr.21684/pdf
http://onlinelibrary.wiley.com/doi/10.10...
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Intervenções utilizando recursos tecnológicos para empoderar o indivíduo nas ações de autocuidado(44 Margolis PA, Peterson LE, Seid M. Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care. Pediatrics[Internet]. 2013 [cited 2016 Jul 31];131(Suppl4):S219-23. Available from: http://pediatrics.aappublications.org/content/131/supplement_4/s219.long
http://pediatrics.aappublications.org/co...
,1616 Gorter JW, Stewart D, Cohen E, Hlyva O, Morrison A, Galuppi B, et al. Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study. BMJ Open [Internet]. 2015 [cited 2016 Jul 31];5(5):E007553. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4431136/
http://www.ncbi.nlm.nih.gov/pmc/articles...
-1717 Wise M, Gustafson DH, Sorkness CA, Molfenter T, Staresinic A, Meis T, et al. Internet telehealth for pediatric asthma case management: integrating computerized and case manager features for tailoring a web-based asthma education program. Health Promot Pract[Internet]. 2007 [cited 2016 Jul 31];8(3):282-91. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2366971/
https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, et al. iCancope With Pain(tm): user-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag[Internet]. 2014 [cited 2016 Jul 31];19(5):257-65. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc4197753/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,3333 Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, et al. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform[Internet]. 2010 [cited 2016 Jul 31];43(5Suppl):S9-12. Available from: http://linkinghub.elsevier.com/retrieve/pii/s1532-0464(10)00066-3
tp://linkinghub.elsevier.com/retrieve/pi...
,3636 Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals attitudes towards using a web 2.0 portal for child and adolescent diabetes care: qualitative study. J Med Internet Res[Internet]. 2009 [cited 2016 Jul 31];11(2):E12. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc2762803/
https://www.ncbi.nlm.nih.gov/pmc/article...
-3737 Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol[Internet]. 2012 [cited 2016 Jul 31];37(8):893-903. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3437681/
https://www.ncbi.nlm.nih.gov/pmc/article...
)
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