R: How do you usually play? |
S: Hide and seek behind my grandmother’s house, in the shade. That is because I get ill under the sun, with pain in my back, in my stomach, in my arm, in my leg and headaches because of the sickle cell anemia. That is when a person feels pain. |
Play and physical activities |
R: Are there any games that you think can influence your health? Why? |
S: Pool. When I stay in too long, I feel arm pain, stomach pain, back pain, leg pain... because there is a pool in my house, then, when I got in and stayed in too long with my cousin, I felt pain. |
R: I understand. And what do you usually eat? |
S: Macaroni and filled cookies. |
Feeding |
R: Among the foods you usually eat, which ones are good for your health? |
S: Rice, beans, meat and salad and sausage. |
R: And among the foods you usually eat, which ones are not good for your health? |
S: And candy. My mom said I cannot eat candy. |
R: I understand. I want to know if you take any medication, drugs at home? |
S: Hydroxyurea, not to feel pain. |
Handling of sickle cell disease |
R: With whom did you learn this information on the drugs? |
S: With the doctor. She said I have to take them. Back home, my mother put the powder that came inside the capsule in water for me to drink, but it did not work. I did not improve, so, I had to take it whole. |
R: Who takes care of you when you are sick? |
S: My mom. She gives me medicine. And when my pain increases, she goes to the hospital with me. |
R: And what do you do to take care of your health? |
S: I take some medicine and go to the doctor. |
R: What do you usually drink in breakfast, lunch, snack time, dinner and in-between? |
S: Water, pop, chocolate milk, juice, a little. In the school, water, a little. |
Bodily hydration |
R: How is it to you to use the school bathroom? |
S: You always can, but when we go inside the classroom, the teacher does not allow us. We have to drink water and go to the bathroom so we do not feel the need. |
R: Why is it important to drink liquids? |
S: Because we die if we do not drink water. |
R: And among these liquids you usually drink, which ones are good for your health? |
S: Water, pop... |
R: And among the liquids you usually drink, which ones are not good for the health? |
S: None here. |
R: Let us discuss clothing, then? How do you usually dress in cold days? |
S: Coat, pants, sweater and a cap. |
Clothes |
R: Why do you dress like that when it is cold? |
S: Because. |
R: And when the day is too hot? |
S: Light clothes. |
R: Does someone tell you how you should dress? |
S: Yes, my mother. When it is cold, she tells me to put on pants and sweaters. When it is hot, to put on a blouse and shorts. |