Family Management and socioeconomic situation of children and adolescents with neurological disorders

Weissheimer, Gisele; Mazza, Verônica de Azevedo; Teodoro, Fernanda Cassanho; Szylit, Regina; Ichikawa, Carolliny Rossi de Faria; Schepelski, Umbelina Guedes de Figueiredo Alcoforado

doi:10.1590/0034-7167-2019-0042

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Revista Brasileira de Enfermagem

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ORIGINAL ARTICLE • Rev. Bras. Enferm. 73 (4) • 2020 • https://doi.org/10.1590/0034-7167-2019-0042 copy

Family Management and socioeconomic situation of children and adolescents with neurological disorders

Manejo Familiar y situación socioeconómica de niños y adolescentes con trastornos neurológicos

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objectives:

to identify the relation between family management and socioeconomic situation of children and adolescents with neurological disorders.

Methods:

a descriptive and correlational study with 141 family members who answered a questionnaire on socioeconomic and family management information. Data collection took place between May and September 2016 in a pediatric neurology center. A descriptive and analytical analysis was carried out with the use of statistical tests in order to assess the relation of the variables researched.

Results:

a higher early childhood disease time was related with higher scores of management difficulty. There was relation between the highest family income and management skills and the lowest scores of family difficulty. The highest schooling level of mothers was associated with the lowest scores of disease impact view and family difficulty.

Conclusions:

family members with unfavorable socioeconomic situation had more difficulty with family management.

Descriptors:
Social Class; Nervous System Diseases; Child; Adolescent; Family Caregivers

Variables	n	%
Demographic data
Family members
Age (years)
21-30	25	17.73
31-40	69	48.94
41-60	47	33.33
Gender
Female	121	85.82
Male	20	14.18
Relationship with child/adolescent
Mother	117	83.00
Father	19	13.00
Other members	5	4.00
Children/adolescents
Age (years)
2-10	84	60.00
11-17	57	40.00
Gender
Female	47	36.00
Male	94	67.00
Socioeconomic situation
Time (years) of disease of children/adolescents
<1	9	6.40
1-2	16	11.30
3-4	22	15.30
5-9	49	34.80
≥10	45	31.90
Access to early childhood education
Yes	130	92.00
No	7	5.00
Not applicable^a a children who were not old enough to be compulsorily enrolled in Brazilian basic education (under four years old);	4	3.00
Type of teaching
Regular	80	61.54
Special	48	36.92
Mixed	2	1.54
Type of school^b b n = 130.
Public	119	92.00
Private	11	8.00
Per capita family income
No income	2	1.00
Up to ½ minimum wage	61	43.00
½ to 1 minimum wage	52	37.00
1 to 1 and ½ minimum wage	18	13.00
1 and ½ to 2 minimum wages	5	4.00
2 to 5 minimum wages	3	2.00
Years of maternal studies
0	1	0.70
1-4	19	13.50
5-8	33	23.40
9-11	67	47.50
12-15	19	13.50
16 and more	2	1.40

Dimensions	n	Time of disease		Per capita income		Year of maternal studies
Dimensions	n	Rho^a a Spearman's correlation coefficient;	p value	Rho^a a Spearman's correlation coefficient;	p value	Rho^a a Spearman's correlation coefficient;	p value
Child identity	141	-0.194	0.022^* * p≤0.05.	0.144	0.087	0.169	0.046^* * p≤0.05.
Management skills	141	-0.097	0.254	0.330	0.000^* * p≤0.05.	0.147	0.082
Management effort	141	0.141	0.094	-0.058	0.493	-0.123	0.146
Family difficulty	141	0.260	0.002^* * p≤0.05.	-0.224	0.007^* * p≤0.05.	-0.224	0.007^* * p≤0.05.
Mutuality among parents^b b dimension applied to family members with partner/spouse (n = 113);	113	0.043	0.648	0.123	0.192	0.017	0.861
Disease impact view	141	0.175	0.038^* * p≤0.05.	-0.191	0.022^* * p≤0.05.	-0.284	0.001^* * p≤0.05.

Dimensions	Type of teaching				p value^b b the difference between the means of the variables was assessed by the Mann-Whitney test (regular or special education and access to public or private schools);	Type of school				p value^b b the difference between the means of the variables was assessed by the Mann-Whitney test (regular or special education and access to public or private schools);
Dimensions		n	Mean	SD^a a SD - Standard Deviation			n	Mean	SD^a a SD - Standard Deviation
Child identity
	Regular	80	18.2	5.15	0.000^* * p≤0.05.	Private	11	18.2	4.78	0.172
	Special	48	13.2	3.95	0.000^* * p≤0.05.	Public	119	16.1	5.30	0.172
Management skills
	Regular	80	46.6	6.45	0.005^* * p≤0.05.	Private	11	49.4	5.18	0.028^* * p≤0.05.
	Special	48	43.5	5.68	0.005^* * p≤0.05.	Public	119	45.1	6.32	0.028^* * p≤0.05.
Management effort
	Regular	80	11.9	4.56	0.000^* * p≤0.05.	Private	11	10.4	4.76	0.054
	Special	48	14.6	3.26	0.000^* * p≤0.05.	Public	119	13.3	4.24	0.054
Family difficulty
	Regular	80	31.3	12.47	0.000^* * p≤0.05.	Private	11	25.7	11.89	0.008^* * p≤0.05.
	Special	48	39.7	11.30	0.000^* * p≤0.05.	Public	119	35.5	12.60	0.008^* * p≤0.05.
Mutuality among parents^c c dimension applied to family members with partner/spouse (n = 113);
	Regular	63	35.4	5.58	0.047^* * p≤0.05.	Private	9	35.5	2.96	0.900
	Special	39	33.2	5.70	0.047^* * p≤0.05.	Public	95	34.5	5.86	0.900
Disease impact view
	Regular	80	23.6	6.35	0.000^* * p≤0.05.	Private	11	21.7	7.62	0.041^* * p≤0.05.
	Special	48	28.9	5.13	0.000^* * p≤0.05.	Public	119	26.0	6.21	0.041^* * p≤0.05.

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[1] Corresponding author: Gisele Weissheimer. E-mail: gisele.weissheimer@gmail.com