Social network of family caregivers of disabled and dependent
						patients

Yamashita, Cintia Hitomi; Gaspar, Jaqueline Correia; Amendola, Fernanda; Alvarenga, Márcia Regina Martins; Oliveira, Maria Amélia de Campos

doi:10.1590/S0080-623420140000600014

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Artigo Original • Rev. esc. enferm. USP 48 (spe) • Aug 2014 • https://doi.org/10.1590/S0080-623420140000600014 copy

Social network of family caregivers of disabled and dependent patients^* * From the dissertation “Assessment of the network and social support of family caregivers of disabled and dependent patients”, School of Nursing, University of São Paulo; 2013.

Red social de cuidadores familiares de pacientes con discapacidad y dependencia

Authorship SCIMAGO INSTITUTIONS RANKINGS

Cross-sectional study that used the Social Network Index and the genogram to assess the social network of 110 family caregivers of dependent patients attended by a Home Care Service in São Paulo, Brazil. Data were analyzed using the test U of Mann-Whitney, Kruskal-Wallis and Spearman correlation. Results were considered statistically significant when p<0,05. Few caregivers participated in activities outside the home and the average number of people they had a bond was 4,4 relatives and 3,6 friends. Caregivers who reported pain and those who had a partner had higher average number of relatives who to trust. The average number of friends was higher in the group that reported use of medication for depression. Total and per capita incomes correlated with the social network. It was found that family members are the primary caregiver’s social network.    

Family; Caregivers; Home nursing; Family relations; Social support

Variables	N	%
Number of relatives whom they trust and can talk to about almost everything
1 – 3	64	58.1
4 – 6	20	18.2
7 – 10	9	8.2
≥ 11	10	9.1
None	7	6.4
Number of friends whom they trust and can talk to about almost everything
1 – 3	58	52.7
4 – 6	12	10.9
7 – 10	5	4.5
≥ 11	6	5.5
None	29	26.4
Participation in team sports or artistic activities
Once a week	5	4.5
Two or three times a week	5	4.5
Once a year	1	0.9
A few times a year	2	1.8
Does not participate	97	88.2
Participation in neighborhood or employees association meetings, or union or party meetings
Two or three times a week	1	0.9
Once a year	2	1.8
A few times a year	2	1.8
Does not participate	105	95.5
Participation in unpaid and volunteer work in NGOs and charity institutions or other activities
Once a week	1	0.9
Two or three times a week	2	1.8
Once a year	2	1.8
A few times a year	3	2.8
Does not participate	102	92.7
Total	110	100.0

Variables	With how many relatives do you feel free to talk about almost everything?			With how many friends do you feel free to talk about almost everything?
Variables	Mean (SD^† † SD = standard deviation † dp=desvio padrão )	Median	P	Mean (SD)	Median	p
Use of medicines for depression or tranquilizers
No	4.5 (6.7)	2.0	0.367	2.6 (4.5)	1.0	0.044^* * statistically significant difference * diferença estatisticamente significativa
Yes	3.8 (3.3)	3.0	0.367	6.8 (20.0)	2.0
Symptom of pain in some part of the body
No	2.4 (2.2)	2.0	0.003^* * statistically significant difference * diferença estatisticamente significativa	2.0 (3.6)	1.0	0.070
Yes	5.3 (7.1)	3.0		4.3 (12.1)	2.0	0.070
Partner
No	4.7 (4.8)	3.0	0.042^* * statistically significant difference * diferença estatisticamente significativa	4.4 (12.8)	1.5	0.507
Yes	3.8 (7.6)	2.0		2.2 (3.1)	1.0	0.507

Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br

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[1] Correspondence: Cintia Hitomi Yamashita . Av. Dr. Enéas de Carvalho Aguiar, 419 – Cerqueira César.  CEP 05403-000 – São Paulo, SP, Brazil. cintia.hitomi.yamashita@usp.br

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Social network of family caregivers of disabled and dependent patients* * From the dissertation “Assessment of the network and social support of family caregivers of disabled and dependent patients”, School of Nursing, University of São Paulo; 2013.

Red social de cuidadores familiares de pacientes con discapacidad y dependencia

Social network of family caregivers of disabled and dependent patients^* * From the dissertation “Assessment of the network and social support of family caregivers of disabled and dependent patients”, School of Nursing, University of São Paulo; 2013.