Quality of life of caregivers for patients of cerebrovascular accidents:
               association of (socio-demographic) characteristics and burden

Costa, Tatiana Ferreira da; Costa, Kátia Nêyla de Freitas Macêdo; Fernandes, Maria das Graças Melo; Martins, Kaisy Pereira; Brito, Silmery da Silva

doi:10.1590/S0080-623420150000200009

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Original Article • Rev. esc. enferm. USP 49 (02) • Mar-Apr 2015 • https://doi.org/10.1590/S0080-623420150000200009 copy

Quality of life of caregivers for patients of cerebrovascular accidents: association of (socio-demographic) characteristics and burden^* * Extracted from the dissertation "Qualidade de vida relacionada à saúde de cuidadores familiares de indivíduos com sequela de acidente vascular encefálico," Post-Graduate program in Nursing, Universidade Federal da Paraíba, 2014.

Cualidad de vida de cuidadores de individuos con accidente vascular encefálico: asociación con características y sobrecarga

Authorship SCIMAGO INSTITUTIONS RANKINGS

OBJECTIVE

Investigating the association between quality of life with socio-demographic characteristics and the burden of caregivers for individuals with cerebrovascular accident sequelae.

METHOD

A descriptive, cross-sectional study with a sample composed of 136 caregivers. For data collection, a semi-structured questionnaire, the Barthel, Burden Interview and Short-Form-36 scales were used. Correlation analysis, t-Student test and F-test were used for the analysis in order to compare averages.

RESULTS

Significant averages in quality of life were demonstrated in association with female caregivers and those over 60 years in the field 'functional capacity,' and in the domains of 'mental health' and 'vitality' for those with higher income. Regarding burden association, the highlighted areas were 'functional capacity,' 'physical aspects,' 'emotional aspects' and 'pain.'

CONCLUSION

The creation of public policies and social support to effectively reduce the burden on caregivers is a necessity.

Stroke; Caregivers; Family; Quality of Life

HRQoL Domains	Female (n=115)	Male (n=21)
Physical Aspects	53.70	65.00
Emotional Aspects	59.42	66.67
Pain	41.81	31.22
Functional Capacity	71.13^* * Statistically significant average scores	83.81^* * Statistically significant average scores
Social Aspects	52.87	60.95
Mental Heath	53.73	53.06
Vitality	65.51	64.76
State of General Heath	54.58	52.01

HRQoL Domains	< 40 years (n=39)	40 - 60 years (n=70)	> 60 years (n=27)
Physical Aspects	64.74	48.55	59.26
Emotional Aspects	64.96	55.71	66.67
Pain	30.48^* * Statistically significant average scores	44.61^* * Statistically significant average scores	42.80^* * Statistically significant average scores
Functional Capacity	84.62^* * Statistically significant average scores	70.29^* * Statistically significant average scores	63.70^* * Statistically significant average scores
Social Aspects	57.95	52.29	53.33
Mental Heath	54.03	55.20	48.94
Vitality	65.81	65.71	63.95
State of General Heath	53.85	57.14	47.01

HRQoL Domains	Single/Divorced/Widowed (n=58)	Married (n=78)
Physical Aspects	52.16	57.79
Emotional Aspects	53.45^* * Statistically significant average scores	65.81^* * Statistically significant average scores
Pain	39.46	40.69
Functional Capacity	74.66	71.92
Social Aspects	50.34	56.92
Mental Heath	48.52^* * Statistically significant average scores	57.42^* * Statistically significant average scores
Vitality	64.71	65.90
State of General Heath	53.58	54.64

HRQoL Domains	Less than 1 M.W. (n=20)	Between 1 - 3 M.W. (n=79)	Between 3 - 5 M.W. (n=15)	More than 5 M.W. (n=21)
Physical Aspects	50.00	61.39	38.33	50.00
Emotional Aspects	55.00	63.71	33.33	71.43
Pain	47.22	37.83	47.62	38.10
Functional Capacity	72.00	75.63	56.67	75.24
Social Aspects	58.00	54.43	46.67	54.29
Mental Heath	54.29^* * Statistically significant average scores	52.35^* * Statistically significant average scores	43.33^* * Statistically significant average scores	64.63^* * Statistically significant average scores
Vitality	63.67^* * Statistically significant average scores	64.64^* * Statistically significant average scores	56.89^* * Statistically significant average scores	76.51^* * Statistically significant average scores
State of General Heath	58.46	55.79	51.79	46.52

HRQoL Domains	Zarit
HRQoL Domains	R	Valor-p
Physical Aspects	-0.363	0.0000^* * Significant correlation at 5%
Emotional Aspects	-0.361	0.0000^* * Significant correlation at 5%
Pain	0.373	0.0000^* * Significant correlation at 5%
Functional Capacity	-0.310	0.0002^* * Significant correlation at 5%
Social Aspects	-0.047	0.5880
Mental Heath	-0.164	0.0563
Vitality	0.056	0.5174
State of General Heath	0.042	0.6257

Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br

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[1] Correspondence: Kaisy Pereira Martins. Rua Mário Batista Júnior, 75 - Miramar. CEP 58043-130 - João Pessoa, PB, Brasil. E-mail: kaisyjp@hotmail.com