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Social representation of Alzheimer's disease for family caregivers: stressful and rewarding

Representación social de la enfermedad de Alzheimer a familiares cuidadores: desgastador y gratificante

Abstract

OBJECTIVE

To understand the content of Social Representation (SR) of family caregivers of Alzheimer's disease patients.

METHOD

Interviews were conducted with 26 caregivers and analyzed by the ALCESTE software.

RESULTS

The SR content was structured in two thematic axes called Daily Life and Care and Medical and Emotional Concepts and Outcomes. The first axis creates images related to the routine of interaction with the sick person, and contains a description of care procedures, experiences, and practices applied every day. The second is composed of subjective and conceptual aspects that make up the social representation of Alzheimer's disease, with meanings related to the emotional, medical, and biological contexts.

CONCLUSION

Due to the importance of topics related to patients' dependence and the personal and emotional consequences of the disease, overload is the main content of the SR of Alzheimer's disease for caregivers, and the understanding of these SR by health professionals should support the planning of interventions addressing this group of individuals.

Descriptors:
Alzheimer Disease; Caregivers; Family; Qualitative Research

Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br