Acessibilidade / Reportar erro

(Un)receptiveness in interactions with professionals: experiences of parents of children with retinopathy of prematurity* * Extracted from the dissertation “Caminhando apesar dos limites: o cuidado parental à criança com retinopatia da prematuridade”, Programa de Pós-Graduação em Enfermagem, Universidade Federal de São Carlos, 2015.

(Des)acogida en las Interacciones con los Profesionales: Experiencias de Padres de Niños con Retinopatía de la Prematuridad

Abstract

OBJECTIVE

To analyze the influence of health professionals' receptiveness on parental care of children with retinopathy of prematurity (ROP).

METHOD

A qualitative study developed under the theoretical framework of Symbolic Interactionism and using a narrative research methodology. Six women and three men, being parents of children with retinopathy of prematurity were individually interviewed in depth.

RESULTS

From the scope of information, emotions and their rights, the parents experienced receptiveness from some professionals and unreceptiveness from others. The predominance of unreceptive attitudes in the parental narratives originated the following analysis themes: Informational (un)receptiveness, Emotional (un)receptiveness, and (Un)receptiveness of rights.

CONCLUSION

The study supports human and comprehensive healthcare in the context of retinopathy of prematurity by pointing out the interactive process with health professionals as a potential stressor of parental care. The results signal a nuclear of attitudinal changes and reinforce challenges to the child and family-centered approach.

Descriptors
Retinopathy of Prematurity; Parents; Professional-Family Relations; Neonatal Nursing; User Embracement

Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br