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Psicologia: Reflexão e Crítica
On-line version ISSN 1678-7153
CHERUBINI, Zuleika Ana; BOSA, Cleonice Alves and BANDEIRA, Denise Ruschel. Stress and self-concept in parents of children with fragile X-syndrome. Psicol. Reflex. Crit. [online]. 2008, vol.21, n.3, pp. 409-417. ISSN 1678-7153. http://dx.doi.org/10.1590/S0102-79722008000300009.
The Fragile X Syndrome is the major inherited intellectual disability, superseded only by Down Syndrome, and it is transmitted mostly by females. Patients with Fragile X Syndrome show a set of physical, clinical, behavioral and cognitive features that may impact the family structures, especially the parental figures. This study investigates the stress and self-concept of 15 parents of boys with Fragile X Syndrome, 15 parents of boys with Down syndrome and 15 with typical development accordingly to the biopsychosocial model of Bradford. The results showed a significant difference of self-concept between mothers of children with Fragile X Syndrome and typical developmental groups, but not in those with Down Syndrome, suggesting that the transmission factor solely does not explain differences in self-concept.
Keywords : Fragile X Syndrome; Down Syndrome; parental stress; self-concept; social support.