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Acta Paulista de Enfermagem
versão On-line ISSN 1982-0194
MILBRATH, Viviane Marten; AMESTOY, Simone Coelho; SOARES, Deise Cardoso e SIQUEIRA, Hedi Crecencia Heckler de. Integration and accessibility of care for children with brain paralysis. Acta paul. enferm. [online]. 2009, vol.22, n.6, pp.755-760. ISSN 1982-0194. http://dx.doi.org/10.1590/S0103-21002009000600005.
Objective: To determine the Brazilian Universal Health Care System (Sistema Único de Saúde [SUS]) health services integration and accessibility of care for children with brain paralysis. Methods: This was an exploratory, descriptive, qualitative study. Six families with children who have brain paralysis caused by asphyxia neonatorum and who were residents in Rio Grande, RS, participated in the study. Data were collected in the participants' home through a semi-structured interview. Results: Families had difficulties with the SUS health services' integration and accessibility. There were gaps between the care the SUS proposes to provide and the care the families actually received. Conclusion: The lack of access to adequate care extends beyond primary care and not always observes reference and contra reference.
Palavras-chave : Cerebral palsy; Asphyxia neonatorum; Child care; Health services accessibility; Child health services [utilization].