SciELO - Scientific Electronic Library Online

vol.25 issue5Burnout Syndrome and the socio-demographic aspects of nursing professionalsCoinfection of Tuberculosis / Human Immunodeficiency Virus in an administrative district in the city of São Paulo author indexsubject indexarticles search
Home Pagealphabetic serial listing  

Services on Demand




Related links


Acta Paulista de Enfermagem

On-line version ISSN 1982-0194


GOMES, Giovana Calcagno; PINTANEL, Aline Campelo; STRASBURG, Aline da Cruz  and  XAVIER, Daiani Modernel. Singular view of family care for children with the HIV / AIDS virus. Acta paul. enferm. [online]. 2012, vol.25, n.5, pp.749-754. ISSN 1982-0194.

OBJECTIVE: To understand the lived experience of the family in caring for children with the HIV/AIDS virus. METHODS: The study was conducted in a university hospital in the first semester of 2010. Participants included seven family caregivers. Data were collected through semi-structured interviews and analyzed using thematic analysis. RESULTS: There was evidence of a silencing of the diagnosis by the family caregiver whose life function became that of caregiver for the child. In terms of difficulties for care, these included: the health conditions of the mother or her death; hospitalizations that compromised schooling and reveaed the diagnosis; and fear of telling the diagnosis to the child. CONCLUSION: It is believed that health/nursing professionals need to employ strategies that enable these families to better cope with everyday life, advising them about care, providing information on HIV/AIDS to people in their social circle, and diminishing stigma and discrimination to which these children are exposed.

Keywords : Caregivers; Family; Child care; Acquired Immunodeficiency Syndrome [nursing].

        · abstract in Portuguese | Spanish     · text in English | Portuguese     · English ( pdf epdf ) | Portuguese ( pdf epdf )


Creative Commons License All the contents of this journal, except where otherwise noted, is licensed under a Creative Commons Attribution License