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Physis: Revista de Saúde Coletiva

versión impresa ISSN 0103-7331versión On-line ISSN 1809-4481

Resumen

PAEZ, Anita Silva  y  MOREIRA, Martha Cristina Nunes. On the performance of suffering on the web: narratives of mothers of children with complex chronic health conditions in an online journal. Physis [online]. 2019, vol.29, n.1, e290104.  Epub 18-Abr-2019. ISSN 1809-4481.  https://doi.org/10.1590/s0103-73312019290104.

This paper aims discuss the performance of suffering from the narratives of mothers of children with complex chronic health conditions published in a web journal, also following the trail of some links that lead to blogs. The visibility of shared content on the internet, whatever the platform, and its growing social function of joint construction, leads us to turn our attention specifically to this contemporary space. From an immersion of ethnographic inspiration in the writings, movements generated by the narratives were identified: capture, affirmation of a place, constitution of a vector of forces and symbolic struggle. In the form of an essay, we sought to articulate the empirical material discursively with theoretical questions. Internet is an important resource of approximation and linkage in allowing the circulation of counter-hegemonic narratives. Showing their faces and names and their children's can be part of a movement that affirms a suffering individuality, but can also culminate in the production of new senses, expanding the field of possibilities, including symbolic ones for mothers and children with complex chronic health conditions.

Palabras clave : chronic disease; child; narratives.

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