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NETWORK AND SOCIAL SUPPORT IN CHILDREN WITH CHRONIC DISEASES: UNDERSTANDING THE CHILD'S PERCEPTION1 1 Article connected to the research project - Rede, apoio social e cuidado em saúde na condição crônica na infância, financed by CNPq, Universal Edital 475841/2010-7.

RED DE APOYO SOCIAL EN LA ENFERMEDAD CRÓNICA INFANTIL: COMPRENDIENDO LA PERCEPCIÓN DEL NIÑO

ABSTRACT

Objective

to identify the network and social support in the perception of children with chronic disease.

Method

qualitative research conducted with eight children with chronic disease, between November 2012 and June 2013 in a public hospital in Paraiba, Brazil. An adaptation of the drawing-story process with theme was used. The data were interpreted by thematic analysis.

Results

in some moments of life, the child receives different types of support that are offered by strengthened links that make up their social network. But this network has not always proven to be strengthened and able to provide the necessary support to adequately cope with the disease.

Conclusion

health professionals need to direct their focus on the child, listening to them and their singularities and helping to identify links in their social network which can provide them with the support they need to cope with chronic illness.

DESCRIPTORS:
Pediatric nursing; Social networking; Social support; Chronic disease; Child

Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem Campus Universitário Trindade, 88040-970 Florianópolis - Santa Catarina - Brasil, Tel.: (55 48) 3721-4915 / (55 48) 3721-9043 - Florianópolis - SC - Brazil
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