Abstract

GANZELLA, Marcela  and  ZAGO, Márcia Maria Fontão. The experience of thalassemic adults with their treatment. Rev. Latino-Am. Enfermagem [online]. 2011, vol.19, n.4, pp. 968-976. ISSN 0104-1169.  http://dx.doi.org/10.1590/S0104-11692011000400016.

This study, based on medical anthropology and oral reports, analyzes the meanings attributed by thalassemic adults to their experiences with the treatment. Interviews were used to collect data, which were analyzed through inductive thematic analysis. Eleven young adults, six of whom were men, at different ages, with different educational levels and occupations participated in the study. The meanings are discussed through the theme "the lives of patients with thalassemia in relation to their treatment". This core meaning highlights the difference made in their identity by having the disease trait, the recognition of the importance of adhering to their treatment, the difficulties in maintaining their social functions, the patients' irregular treatment adherence and their justifications for non-adherence to their treatment. Thalassemic patients conform to their condition and employ a normalization strategy to control the disease and justify irregular treatment adherence.

Keywords : Beta-Thalassemia [therapy]; Culture; Nursing.