Illness experiences due to communicable chronic conditions: integrative literature review

Oliveira, Cassiara Boeno Borges de; Lima, Mônica Cristina Ribeiro Alexandre D’Auria de; Faria, Mayara Fálico; Ravanholi, Glaucia Morandim; Lopes, Lívia Maria; Souza, Káren Mendes Jorge de; Monroe, Aline Aparecida

doi:10.1590/S0104-12902017159587

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Articles • Saude soc. 26 (2) • Apr-Jun 2017 • https://doi.org/10.1590/S0104-12902017159587 copy

Illness experiences due to communicable chronic conditions: integrative literature review

Authorship SCIMAGO INSTITUTIONS RANKINGS

Abstract

The objective of this article is to identify and describe the illness experiences of people living with communicable chronic conditions. An integrative literature review was carried out in May 2015 in the PubMed, the Literature in the Health Sciences in Latin America and the Caribbean (LILACS) and in the Scopus databases. Through the intersection of keywords and controlled descriptors, eight search strategies were conducted and resulted in the final selection of 12 articles, which were catalogued into two theme categories, in order to group matching themes: (1) experiences with communicable chronic conditions; (2) coping strategies for communicable chronicle diseases. Stigma was identified as the most impacting experience in subjects’ lives, which reverberated negatives feelings. In spite of their illness, subjects adopted healthy lifestyle habits and found support on religiosity/spirituality and on the dimensionality of time as a way to live harmoniously with diseases. We also noticed that the support network (family, health services) plays a key role in the process of living with communicable chronicle diseases. Since the diagnostic, the subjects experience negative feelings and sensations not only because of the fragileness that the disease imposes on their body but also because of the maintenance of the condition, which make them more vulnerable to discrimination, prejudice and stigma. It becomes necessary to strengthen the support network around the subject, in order to encourage improvements in the quality of life of people living with communicable diseases.

Keywords:
Communicable Diseases; Communicable Chronic Conditions; Illness Experience

Group	Keywords
G1	(“doenças bacterianas sexualmente transmissíveis”), (“doenças virais sexualmente transmissíveis”), (“doenças transmissíveis”), “doença crônica transmissível,” “doenças crônicas transmissíveis,” “doença contagiosa,” “doença infectocontagiosa,” “doenças infectocontagiosas,” “doença infecciosa,” “doenças infecciosas,” “enfermidade transmissível,” “enfermidades transmissíveis,” “condição crônica,” “condições crônicas,” “condição crônica transmissível,” “condições crônicas transmissíveis,” “casos crônicos,” “quadros crônicos,” (“doenças crônicas”) and “moléstias crônicas.”
G2	“processo de adoecimento,” “processos de adoecimento,” “processo de adoecer,” “processos de adoecer,” “processo do adoecimento,” “processos do adoecimento,” “processo do adoecer” and “processos do adoecer.”
G3	“experiência do adoecimento,” “experiências do adoecimento,” “vivência do adoecimento,” “vivências do adoecimento,” “vivencia de adoecer” and “vivencias de adoecer.”
G4	(“pessoas”), “sujeitos,” “sujeito,” “indivíduo,” “indivíduos,” “pessoa,” “pessoas,” “pessoa vivendo com condições crônicas transmissíveis,” “pessoas que vivem com condições crônicas transmissíveis,” “pessoa vivendo com condição crônica transmissível” and “pessoas que vivem com condição crônica transmissível.”

Published Journal (year)	Title	Authors	Method	Core idea	Thematic category
Social Science & Medicine (2015)	The stories we tell: Qualitative research interviews, talking technologies and the “normalisation” of life with HIV	Mazanderani and Paparini	Qualitative	Stigma and discrimination as difficult processes of living with AIDS; The normalization of AIDS as a strategy for combating the disease.	1
Escola Anna Nery Revista de Enfermagem (2014)	“Tuberculose multirresistente: integralidade da atenção à saúde na perspectiva discursiva” [Multidrug-resistant tuberculosis: integrality of health care in discursive perspective]	Ballestero et al.	Qualitative	Health care coordination as a weakener of the confrontation of multidrug-resistant tuberculosis (MDR TB).	1
Revista da Escola de Enfermagem da USP (2013)	“Convivendo com hepatite: repercussões no cotidiano do indivíduo infectado” [Living with hepatitis: repercussions on the daily life of the individual infected]	Teston, Silva and Marcon	Qualitative	Fear, anxiety and stigma as feelings experienced in the course of living with hepatitis B and C.	1
Social Science & Medicine (2012)	HIV and tuberculosis: the construction and management of double stigma	Daftary	Qualitative	Different levels of stigma experienced in living with TB and HIV/AIDS.	1
Qualitative Health Research (2012)	Living positively: the experiences of Thai women living with HIV/AIDS in Central Thailand	Liamputtong, Haritavorn and Kiatying-Angsulee	Qualitative	Positive attitudes as a strategy for combating AIDS.	2
Social Science & Medicine (2012)	“Dying from” to “living with”: framing institutions and the coping processes of African American women living with HIV/AIDS	Watkins-Hayes, Pittman-Gay and Beaman	Qualitative	The healthcare providers and institutions that protect people living with HIV (PLWA) as enhancers in the fight against AIDS.	2
Interface - Comunicação, Saúde, Educação (2012)	“A influência da religiosidade no conviver com o HIV” [The influence of religiosity in living with HIV]	Ferreira, Favoreto and Guimarães	Qualitative	Religiosity/spirituality as a strategy for combating HIV/AIDS.	2
Issues in mental Health Nursing (2011)	Living in silence: a grounded theory study of vulnerability in the context of HIV infection	De Santis and Barroso	Qualitative	Negative experiences increase the personal sensation, as well as the social state of vulnerability of PLWA.	1
AIDS Care (2011)	In sickness and in health: a qualitative study of how Chinese women with HIV navigate stigma and negotiate disclosure within their marriages/partnerships	Chen et al.	Qualitative	Stigma as a potential disorganizer to the social and familiar support to people living with AIDS.	1
Journal of Family Psychology (2011)	Facing HIV as a Family: Predicting Depressive Symptoms with Correlated Responses	Li et al.	Quantitative	Family support as a catalyst of the psychological well-being of PLWA.	1
Physis - Revista de Saúde Coletiva (2011)	“ A análise da narrativa dos pacientes com HIV na construção da adesão terapêutica” [The narrative analysis of patients with HIV in the construction of therapeutic adhesion]	Ferreira and Favoreto	Qualitative	Protagonism as an enhancer in the fight against HIV.	2
Health (2010)	The phenomenology of time: lived experiences of people with HIV/AIDS in China	Zhou	Qualitative	Time as an ally in the construction and (re)signification of the experience of living with AIDS.	2

Faculdade de Saúde Pública, Universidade de São Paulo. Associação Paulista de Saúde Pública. Av. dr. Arnaldo, 715, Prédio da Biblioteca, 2º andar sala 2, 01246-904 São Paulo - SP - Brasil, Tel./Fax: +55 11 3061-7880 - São Paulo - SP - Brazil
E-mail: saudesoc@usp.br

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[1] Correspondência Cassiara Boeno Borges de Oliveira Av. dos Bandeirantes, 3.900, sala 27. Ribeirão Preto, SP, Brasil. CEP 14040-902.