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Revista Brasileira de Educação Especial

versión impresa ISSN 1413-6538versión On-line ISSN 1980-5470

Resumen

VALVERDE, Bianca Beraldo dos Reis  y  JURDI, Andréa Perosa Saigh. Analysis of the Relationship Between Early Intervention and Family Quality of Life1. Rev. bras. educ. espec. [online]. 2020, vol.26, n.2, pp.283-298.  Epub 08-Jun-2020. ISSN 1980-5470.  https://doi.org/10.1590/1980-54702020v26e0116.

Due to the importance of family participation in early intervention programs, research has studied the theme of family quality of life in order to improve early childhood care. The objective of this paper was, therefore, to relate the forms of family organization for the early intervention process with the quality of family life, from the perspective of a family member. It is a qualitative and quantitative research, which used two instruments: the semi-structured interview and the Family Quality of Life Scale (FQOLS). Ten family members of ten children from zero to three years old with potential or already present developmental alterations attended at the Specialized Center for Rehabilitation II of a municipality in the Metropolitan Region of Baixada Santista, state of São Paulo, Brazil, participated in the study. It was found that the FQOLS score is similar to other studies, with greater satisfaction in support related to disability and less satisfaction with emotional well-being, in addition to the relationship between the presence of support networks and the quality of family life. It was observed the predominance of fragmented actions between services, the low school attendance of children and the exclusive participation of female family members; obstacles related to the feeling of overload and lack of support were also highlighted.

Palabras clave : Family; Quality of life; Early childhood.

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