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Ciência & Saúde Coletiva

Print version ISSN 1413-8123

Abstract

GALANO, Eliana et al. Interviews with family members: a fundamental tool for planning the disclosure of a diagnosis of HIV/aids for children and adolescents. Ciênc. saúde coletiva [online]. 2012, vol.17, n.10, pp. 2739-2748. ISSN 1413-8123.  http://dx.doi.org/10.1590/S1413-81232012001000022.

The scope of this study was to present the participation of caregivers in creating strategies for disclosure of their condition to HIV-positive children, as well as discussing the interventions that might contribute to overcoming the difficulties that commonly prevent family members from accepting this process. The participants included 23 caregivers of 18 patients referred for diagnosis disclosure, monitored at two pediatric AIDS units in the municipality of São Paulo, Brazil. This is a qualitative study and data were collected through semi-structured interviews. The results showed that legitimating reasons why caregivers are reluctant to disclose the diagnosis to the children, as well as their motivations, are interventions that contribute to reduce resistance, facilitating the acceptance of disclosure. The collaboration of caregivers has provided valuable insights for conducting the work, and has enabled the establishment of a receptive and supportive relationship minimizing inhibitions that could be harmful to the continuity of the process.

Keywords : Acquired Immunodeficiency Syndrome; HIV; Child; Adolescent; Caregivers; Disclosure.

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