Illness management and Treatment
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The management of food cravings and thirst in hemodialysis patients: A qualitative study1414. Yu J, Ng HJ, Nandakumar M, Griva K. The management of food cravings and thirst in hemodialysis patients: A qualitative study. J Heal Psychol 2016; 21(2):217-227.
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Singapore 2016 |
Semi-structured interview |
Thematic analysis (Braun and Clarke, 2006) NVivo® 9 software (QSR International™) |
Food cravings and thirst were common in patients undergoing cognitive-behavioral therapy: nonadherence, controlled intake and substitution, self-monitoring and compensation. |
Symptoms among patients receiving in-center hemodialysis: A qualitative study1515. Cox KJ, Parshall MB, Hernandez SHA, Parvez SZ, Unruh ML. Symptoms among patients receiving in-center hemodialysis: A qualitative study. Hemodial Int 2016; 21(4):524-533.
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United States 2016 |
Semi-structured interview / group discussion |
NVivo®
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Most uncomfortable symptoms: muscle cramps; fatigue, pruritus, and depression. Basic coping strategies: partnership with dialysis team and “taking control of your own self-management”. |
A Qualitative study to explore patient and staff perceptions of intradialytic exercise1717. Thompson S, Tonelli M, Klarenbach S, Molzahn A. A Qualitative Study to Explore Patient and Staff Perceptions of Intradialytic Exercise. Clin J Am Soc Nephrol 2016; 11(6):1024-1033.
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Canada 2016 |
Semi-structured interview |
Coding using a broad–based coding scheme |
Three main themes emerged: support, the role of the dialysis nurse, and norms within the unit. |
Managing treatment for end-stage renal disease--a qualitative study exploring cultural perspectives on facilitators and barriers to treatment adherence1818. Griva K, Ng HJ, Loei J, Mooppil N, McBain H, Newman SP. Managing treatment for end-stage renal disease--a qualitative study exploring cultural perspectives on facilitators and barriers to treatment adherence. Psychol Health 2013; 28(1):13-29.
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Singapore 2013 |
Semi-structured interview and focus group |
Thematic analysis Nvivo®
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Two themes analyzed: facilitators and barriers to treatment adherence. |
Knowledge deficit of patients with stage 1-4 CKD: a focus group study1919. Lopez-Vargas PA, Tong A, Phoon RKS, Chadban SJ, Shen Y, Craig JC. Knowledge deficit of patients with stage 1-4 CKD: a focus group study. Nephrol 2014; 19(4):234-243.
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Australia 2016 |
Focus group |
Thematic analysis using Hyper RESEARCH® |
Six themes emerged: medical attentiveness; learning self-management; contextualizing comorbidities; prognostic uncertainty; motivation and coping mechanisms; and knowledge gaps. |
Exploring motivation and confidence in taking prescribed medicines in coexisting diseases: a qualitative study2020. Williams A, Manias E. Exploring motivation and confidence in taking prescribed medicines in coexisting diseases: a qualitative study. J Clin Nurs 2014; 23(3-4):471-481.
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Australia 2015 |
Motivational interview |
Thematic analysis in the health beliefs model |
Motivation and confidence were frustrated by complex prescribed medication and clinical conditions. Development of health risk coping strategies. |
Dry weight from the haemodialysis patient perspective2121. Lindberg M, Bӓckstrӧm-Andersson H, Lindstrӧm R, Lindberg M. Dry weight from the haemodialysis patient perspective. Ren Soc Australas J 2013; 9(2):68-73.
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Switzerland 2015 |
Semi-structured and open interviews |
Manifest content analysis, Krippendorff (2004) |
Four categories related to care actions: self-care control strategies; transfer of responsibility to hemodialysis team; management of physical consequences; management of social and psychological concerns. |
Clinical conditions and health care demand behavior of chronic renal patients2222. Torchi TS, Araújo STC, Monteiro Moreira AG, Oliveira Koeppe GB, Santos BTU. Clinical conditions and health care demand behavior of chronic renal patients. Acta Paul Enferm 2014; 27(6):585-590.
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Brazil 2014 |
Semi-structured interview |
Collective subject discourse. Software Qualiquantisoft®
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Delays in treatment and nonacceptance of the disease and treatment were factors that affected disease control. |
The delicate balance of keeping it all together: Using social capital to manage multiple medications for patients on dialysis1616. Parker WM, Ferreira K, Vernon L, Cardone KE. The delicate balance of keeping it all together: Using social capital to manage multiple medications for patients on dialysis. Res Soc Adm Pharm 2016; 13(4):738-745.
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United States 2016 |
Semi-structured interview |
Thematic and structural analysis (Creswell J., 2009) |
Patients engaged in various coping strategies, including reliance on activating social capital and/or family social support, to manage their medications and health; most respondents thought medication management services would be beneficial, but not necessarily for themselves. |
A qualitative study of treatment burden among haemodialysis recipients2323. Karamanidou C, Weinman J, Horne R. A qualitative study of treatment burden among haemodialysis recipients. J Health Psychol 2014; 19(4):556-569.
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United Kingdom 2014 |
Semi-structured interview |
Interpretative phenomenological analysis (Osborn and Smith, 1998) |
Patients have a range of beliefs about their illness and treatment consistent with the self-regulatory model of illness: identity, cause, consequences, timeline and cure. |
The experience and self-management of fatigue in patients on hemodialysis2424. Horigan AE, Schneider SM, Docherty S, Barroso J. The experience and self-management of fatigue in patients on hemodialysis. Nephrol Nurs J 2013; 40(2):113-122;
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United States 2013 |
In-depth interview |
Manifest and latent content analysis (Hsieh & Shannon, 2005) |
Four themes: the nature of fatigue, management of fatigue, consequences of fatigue, and factors associated with fatigue. |
Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit2525. Aasen EM, Kvangarsnes M, Heggen K. Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit. Scand J Caring Sci 2012; 26(1):61-69.
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Norway 2012 |
Semi-structured interview |
Critical discourse analysis (Fairclough - three-dimensional conception of discourse) |
Two discourses were identified: the health‐care team’s power and dominance and the patients struggling for shared decision‐making |
The experience of empowerment in the patient-staff encounter: the patient’s perspective2626. Nygårdh A, Malm D, Wikby K, Ahlström G. The experience of empowerment in the patient-staff encounter: the patient’s perspective. J Clin Nurs 2012; 21(5-6):897-904.
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Switzerland 2012 |
Semi-structured interview |
Inductive content analysis (Krippendorff 2004) |
Comprehensive theme: creation of trust and learning through encounter. Sub-themes representing empowerment/non empowerment |
Involvement in the Decision-making Process
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Development of a decision aid to inform patients’ and families’ renal replacement therapy selection decisions2727. Ameling JM, Auguste P, Ephraim PL, Lewis-Boyer L, DePasquale N, Greer RC, Crews DC, Powe NR, Rabb H, Boulware LE. Development of a decision aid to inform patients’ and families’ renal replacement therapy selection decisions. BMC Med Inf Decis Mak 2012; 12:140.
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United States 2012 |
Focus group |
Thematic analysis |
Three themes emerged: difficulties in identifying type of treatment; complexity of information; and desire to have clear and understandable quantitative data and scientific studies. |
Are you sure about your vascular access? Exploring factors influencing vascular access decisions with chronic hemodialysis patients and their nurses2828. Murray MA, Thomas A, Wald R, Marticorena R, Donnelly sandra, Jeffs L. Are you sure about your vascular access? Exploring factors inluencing vascular access decisions with chronic hemodialysis patients and their nurses. CANNT J 2016; 26(2):21-28.
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Canada 2016 |
Semi-structured interview |
Content analysis (Bradley, Curry & Devers, 2007) |
Patients’ decisions regarding vascular access were influenced by observations, experiences, and dialogue in the dialysis unit. |
Patients’ experiences of involvement in choice of dialyses mode2929. Erlang AS, Nielsen IH, Hansen HOB, Finderup J. Patients experiences of involvement in choice of dialysis mode. J Ren Care 2015; 41(4):260-267.
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Denmark 2015 |
Semi-structured interview |
Systematic text condensation (Malterud 2012) |
Three main themes: patients are a significant part of the decision; health care professionals contribute to the experience of being involved; patients keep putting off the final choice. |
Dialysis modality decision-making for older adults with chronic kidney disease3030. Harwood L, Clark AM. Dialysis modality decision-making for older adults with chronic kidney disease. J Clin Nurs 2014; 23(23/24):3378-3390.
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Canada 2014 |
Semi-structured interview |
Thematic analysis NVivo®
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The following factors influence dialysis modality decision-making among older adults: older adults are often in a precarious state with limitations on modality options, personal factors, gender differences, and support needs. |
Advanced Care Plan
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Advance care planning: The patient perspective3131. Armistead N, Bova-Collis R. Advance care planning: The patient perspective. Nephrol News Issues 2016; 30(11):32-34.
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United States 2016 |
Semi-structured interview |
Thematic analysis |
Themes identified included a precipitating health care crisis, the experience of decision-making for others, and availability of advance directive information. |
Advance care planning: a qualitative study of dialysis patients and families3232. Goff SL, Eneanya ND, Feinberg R, Germain MJ, Marr L, Berzoff J, Cohen LM, Unruh M. Advance care planning: a qualitative study of dialysis patients and families. Clin J Am Soc Nephrol 2015; 10(3):390-400.
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United States 2015 |
Semi-structured interview and nonparticipant observation. |
Thematic analysis Dedoose® |
Three themes emerged: prior experiences with ACP, factors that may affect perspectives on ACP, and recommendations for discussing ACP. |
Home Peritoneal Dialysis
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Patients’ experiences of peritoneal dialysis at home: a phenomenological approach3333. Sadala MLA, Bruzos GAS, Pereira ER, Bucuvic EM. Patients’ experiences of peritoneal dialysis at home: a phenomenological approach. Rev Lat Am Enferm 2012; 20(1):68-75.
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Brazil 2012 |
Semi-structured interview |
Thematic analysis Paul Ricoeur Hermeneutic phenomenology |
Three themes emerged: facing up to the world of kidney failure and dialysis; experiencing body changes, and sources of support. |
Patient and family perspectives on peritoneal dialysis at home: findings from an ethnographic study3434. Baillie J, Lankshear A. Patient and family perspectives on peritoneal dialysis at home: findings from an ethnographic study. J Clin Nurs 2015; 24(1-2):222-234.
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Kingdom 2014 |
Semi-structured interview and observation of the home dialysis process |
Thematic analysis (Wolcott’s, 1994) NVivo®
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Four themes emerged: initiation, limitation, uncertainty, and freedom. |