Abstract

GILBERT, Maria José; MELLO, Débora Falleiros de  and  LIMA, Regina Aparecida Garcia de. Experiences of mothers in care to children with Hirschsprung Disease: supports for nursing care. Esc. Anna Nery [online]. 2009, vol.13, n.4, pp. 793-801. ISSN 1414-8145.  http://dx.doi.org/10.1590/S1414-81452009000400015.

This study aimed to know the experiences of mothers of daughters with Hirschsprung Disease attended at a school-hospital in the interior of the state of São Paulo. This descriptive and exploratory study adopted a qualitative methodological approach, with semi-structured interviews with 13 mothers of children and adolescents with Hirschsprung Disease. Data taken from the interviews were grouped in two themes: knowing the disease and care experience. Involvement of parents in care to children in situations of disease has been a big challenge for health professionals. To have success in this intervention, technical and interpersonal ability from both parents and health professionals is needed. Results enabled the identification of aspects that need intervention by the health team, specially nursing, aiming a better quality of life for children and adolescents with Hirschsprung Disease and their families.

Keywords : Mothers; Nursing Care; Hirschsprung Disease.