Journal of Epilepsy and Clinical Neurophysiology
Print version ISSN 1676-2649
ALONSO, Neide Barreira et al. Epilepsy and quality of life symposium: future perspectives and practice actions to people with epilepsy. J. epilepsy clin. neurophysiol. [online]. 2010, vol.16, n.1, pp. 32-37. ISSN 1676-2649. http://dx.doi.org/10.1590/S1676-26492010000100007.
INTRODUCTION: Participants at a workshop sponsored by Associação Brasileira de Epilepsia (ABE) in Brazil, November, 2009 determined the importance of quality of life (QOL) studies. The goal of the symposium was to increase awareness among health care professionals of the importance of QOL reseaches. METHODS: QOL concepts, instruments validation to Brazil, the impact of seizures and influencing factors in QOL were discussed. RESULTS: Seizures severity and frequency, depression, anxiety, adverse drug effects, surgical treatment, and psychosocial factors affecting QOL of people with epilepsy (PWE). The final section looked at the important role of family burden. CONCLUSION: Future multicentric researches in Brazil will allow to understand the implication of seizures in PWE, and to provide tolls to prevent and diminish the negative impact of epilepsy in QOL.
Keywords : Epilepsy; quality of life; instruments validation; factors affecting QOL; family functioning and burden.