Variables of interest |
Instruments |
Socioeconomic conditions of caregiver |
Questions related to the characteristics of the caregiver: age, gender, date of birth, schooling, marital status and whether they perform paid work. The items in this block were tested in the Fibra Study 2222 Neri AL, Yassuda MS, Moura JG de A, Araújo LF, Siqueira MEC, Santos GA, et al. Metodologia do Estudo Fibra Unicamp sobre fragilidade em idosos em Belém, Parnaíba, Campina Grande, Poços de Caldas, Ermelino Matarazzo, Campinas e Ivoti. In: Neri AL, editor. Fragilidade e qualidade de vida na velhice Dados do Estudo Fibra em Belém, Parnaíba, Campina Grande, Poços de Caldas, Ermelino Matarazzo, Campinas e Ivoti. Campinas: Alínea; 2013.. |
Physical health of caregiver |
Evaluated by a list of self-reported diseases, based on the question: Has a doctor ever told you that you have the following diseases? A list of signs and symptoms that have occurred in the last 12 months. The list of signs and symptoms was based on that used in the SABE Study2323 Lebrão ML, Duarte YA de O, Pan American Health Organization, editors. O Projeto SABE no município de São Paulo: uma abordagem inicial. 1a ed. Brasília, DF, Brasil: Organização Pan-Americana de Saúde, OPAS/OMS; 2003. and replicated in the Fibra Study2222 Neri AL, Yassuda MS, Moura JG de A, Araújo LF, Siqueira MEC, Santos GA, et al. Metodologia do Estudo Fibra Unicamp sobre fragilidade em idosos em Belém, Parnaíba, Campina Grande, Poços de Caldas, Ermelino Matarazzo, Campinas e Ivoti. In: Neri AL, editor. Fragilidade e qualidade de vida na velhice Dados do Estudo Fibra em Belém, Parnaíba, Campina Grande, Poços de Caldas, Ermelino Matarazzo, Campinas e Ivoti. Campinas: Alínea; 2013.. The measure of frailty validated by Nunes et al.2424 Nunes DP, Duarte YA de O, Santos JLF, Lebrão ML. Screening for frailty in older adults using a self-reported instrument. Rev Saúde Pública. 2015;49:1-9. was also used, according to the criteria of Fried et al.2525 Fried LP, Tangen CM, Walston J, Newman AB, Hirsch C, Gottdiener J, et al. Frailty in older adults: evidence for a phenotype. J Gerontol A Biol Sci Med Sci. 2001;56(3):M146-156.. This consists of five questions about weight loss, reduced strength, reduced physical activity, walking speed and fatigue. These measures are answered in a dichotomous manner. |
Self-assessment of health |
Contains a five-point question on how the participant evaluates their overall health, another on how they evaluate health care, a three-point question on how they evaluate their health compared to a year ago, and one on how they evaluate their health compared to other people of the same age. Suggested by Bowling2626 Bowling A. Measuring health: a review of quality of life measurement scales. 3. ed. Maidenhead: Open Univ. Press; 2005. and tested in the Fibra Study2222 Neri AL, Yassuda MS, Moura JG de A, Araújo LF, Siqueira MEC, Santos GA, et al. Metodologia do Estudo Fibra Unicamp sobre fragilidade em idosos em Belém, Parnaíba, Campina Grande, Poços de Caldas, Ermelino Matarazzo, Campinas e Ivoti. In: Neri AL, editor. Fragilidade e qualidade de vida na velhice Dados do Estudo Fibra em Belém, Parnaíba, Campina Grande, Poços de Caldas, Ermelino Matarazzo, Campinas e Ivoti. Campinas: Alínea; 2013.. |
Characteristics of elderly care recipient |
Age, main health problem, if caregiver resides with the elderly care recipient, if caregiver is the main and/or sole person responsible for them. |
Degree of dependence of elderly care recipient in IADLs and BADLs * |
Brazilian version of the Lawton and Brody scale2727 Lawton MP, Brody EM. Assessment of older people: self-maintaining and instrumental activities of daily living. The Gerontologist. 1969;9(3):179-86.,2828 Brito FC, Nunes MI. Multidimensionalidade em Gerontologia II: Instrumentos de avaliação. In: Netto MP, editor. Tratado de Gerontologia. São Paulo: Atheneu; 2007.: evaluates telephone use, transportation, shopping, preparing food, performing household chores, using medication and handling money. The respondent states whether, for each of the actions, they are independent, need help or are totally independent. Katz et al.2929 Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged. The index of adl: a standardized measure of biological and psychosocial function. JAMA. 1963. 21;185:914-9. scale validated for the Brazilian population by Lino et al.3030 Lino VTS, Pereira SRM, Camacho LAB, Ribeiro Filho ST, Buksman S. Adaptação transcultural da Escala de Independência em Atividades da Vida Diária (Escala de Katz). Cad Saúde Pública. 2008;24(1):103-12.. Evaluates the following activities: bathing, dressing, using the toilet, transference, continence and food. The caregiver indicates if the patient needs partial or total help or does not need help for each of these activities |
Cognitive dependence of elderly care recipient |
Clinical Dementia Rating (CDR): assesses cognitive impairment through six categories: memory, orientation, judgment or problem solving, community relations, home or leisure activities, and personal care. Each category is classified according to the degree of impairment (no change, questionable, mild, moderate and severe). This evaluation is performed through an interview with a person close to the patient. |
Satisfaction in quality of life needs |
Composed of 19 items answered through a four point Likert type scale (CASP-19)1414 Hyde M, Wiggins RD, Higgs P, Blane DB. A measure of quality of life in early old age: The theory, development and properties of a needs satisfaction model (CASP-19). Aging Ment Health. 2003;7(3):186-94.. |
Caregiver burden |
An instrument consisting of 22 questions, with answers given through a five-point scale. It was developed by Zarit et al.3131 Zarit SH, Reever KE, Bach-Peterson J. Relatives of the Impaired Elderly: Correlates of Feelings of Burden. The Gerontologist. 1980;20(6):649-55. and translated and validated for the Brazilian population by Scazufca3232 Scazufca M. Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses. Rev Bras Psiquiatr [Internet]. 2002 Mar [cited 2016 Aug 17];24(1). Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-44462002000100006&lng=en&nrm=iso&tlng=en
http://www.scielo.br/scielo.php?script=s...
(α=0.87). The study by Bianchi3333 Bianchi M. Indicadores de sobrecarga, estratégias de enfrentamento e sintomas depressivos em idosos que cuidam de outros idosos. [Campinas]: Unicamp; 2015. carried out a factorial analysis of the scale and found three factors. Factor 1 is the domain related to the perception of stresses attached to the role, Factor 2 is the domain of perception of intrapsychic tensions, Factor 3 can be interpreted as the domain related to the presence or absence of competence and negative expectations related to care. |