Acessibilidade / Reportar erro

The parental care partnership in the view of parents of children with special health needs

Abstract

OBJECTIVE

To understand how the care partnership was experienced by parents of children with special healthcare needs.

METHOD

Qualitative, descriptive and exploratory study, carried out from December 2013 to February 2014. The method used was the narrative. The population corresponded to parents of children admitted to a medical service of a Pediatric Hospital in Portugal. The sample consisted of 10 parents. The data collection included the sociodemographic characterization and the etnobiografic orientation interview. Once transcribed, the interviews yielded 10 narratives of partnership experiences between the parents and the nursing team.

RESULTS

It was noted, as partnership opportunities, the training of parents and the collaborative decision-making, established in a dynamic, unique and ongoing relational process.

CONCLUSION

The opportunities for partnership are key assumptions for the care delivery focusing on the child and on the parents as their resources.

Keywords:
Child; Nursing; Chronic disease; Parents; Caregivers

Universidade Federal do Rio Grande do Sul. Escola de Enfermagem Rua São Manoel, 963 -Campus da Saúde , 90.620-110 - Porto Alegre - RS - Brasil, Fone: (55 51) 3308-5242 / Fax: (55 51) 3308-5436 - Porto Alegre - RS - Brazil
E-mail: revista@enf.ufrgs.br