Abstract
OBJECTIVE
To describe the experiences of parents of children and adolescents with leukemia in regards to the transition from hospital care to home.
METHOD
A qualitative, descriptive study conducted with nine mothers and two fathers, in a pediatric public hospital. The data were collected through semi-structured interviews, from May 2017 to January 2017, organized in the software Atlas.ti 7® and submitted to inductive content analysis. The Change Theory was used as theoretical framework.
RESULTS
The central category was "Returning home: the birth of a new reality", which originated three subcategories: apprehension with the new reality of care; immediate impact of changes; and implementing the guidance plan.
CONCLUSION
The transition to the home setting made parents adapt to a new and complex reality of care. Improvements in the planning and systematization of the first hospital discharge are necessary.
Keywords:
Pediatric nursing; Oncology nursing; Patient discharge; Child care; Caregivers
