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Relationship between elderly stroke patient caregivers scale and nursing diagnoses

Relação entre escala ecpicid-avc e diagnósticos de enfermagem da NANDA-I

Relación entre escala ecpicid-avc y diagnósticos de enfermería de NANDA-I

ABSTRACT

Objective:

To describe relationships between the ECPICID-AVC scale factors and the NANDA-I domains, classes, and Nursing Diagnoses (NDs).

Method:

Cross-mapping study between the NANDA-I taxonomy and ECPICID-AVC scale was constructed based on the eight ECPICID-AVC scale factors and the 13 NANDA-I domains. A descriptive analysis was performed to present the mapped elements.

Results:

Areas of similarity and intersection were found between the eight ECPICID-AVC factors and nine NANDA-I domains, 19 classes, and 72 NDs. All scale factors were mapped with the Domain 1/Health Promotion, Class 2/Health Management and the ND “Frail elderly syndrome”.

Final considerations:

The ECPICID-AVC scale factors were mapped with nine domains, their classes and diagnoses. This study demonstrates the importance of identifying nursing diagnoses and their relationship with factors that evaluate caregiving capacity. The ECPICID-AVC can help nurses generate nursing diagnoses regarding the caregiver’s needs and their capacities related to care to focus such needs.

Descriptors:
Aged; Caregivers; Home Care Services; Nursing Diagnosis; Stroke

RESUMO

Objetivo:

Descrever como os fatores da escala ECPICID-AVC se relacionam com os domínios, as classes e os Diagnótiscos de Enfermagem (DE) da NANDA-I.

Método:

Estudo de mapeamento cruzado entre os oito fatores da escala ECPICID-AVC e os 13 domínios da taxonomia NANDA-I. Realizou-se análise descritiva para apresentar os elementos mapeados.

Resultados:

Identificadas áreas de similaridade e interseção entre os oito fatores da escala e os nove domínios da NANDA-I, bem como entre esses fatores e 19 classes e 72 DEs. Todos os fatores da escala foram mapeados com o Domínio 1/Promoção da Saúde, Classe 2/Controle da Saúde, e o DE “Síndrome do idoso frágil”.

Considerações finais:

Os fatores da escala ECPICID-AVC foram mapeados de acordo com os nove domínios da NANDA-I, respectivas classes e diagnósticos. Este estudo demonstra ser importante que os enfermeiros compreendam como os DEs se relacionam com os fatores que avaliam a capacidade de cuidar de um idoso dependente por acidente vascular cerebral, pois isso permitirá o estabelecimento de diagnósticos mais adequados às necessidades do cuidador e condizentes com sua capacidade de oferecer este cuidado.

Descritores:
Diagnóstico de Enfermagem; Cuidadores; Serviços de Assistência Domiciliar; Idoso; Acidente Vascular Cerebral

RESUMEN

Objetivo:

Describir cómo los factores de la escala ECPICID-AVC se relacionan con los dominios, las clases y los Diagnósticos de Enfermería (DE) de la NANDA-I.

Método:

Estudio de mapeo cruzado entre los ocho factores de la escala ECPICID-AVC y los 13 dominios de la taxonomía NANDA-I. Se llevó a cabo un análisis descriptivo para presentar los elementos mapeados.

Resultados:

Se identificaron las áreas de similitud e intersección entre los ocho factores de la escala y los nueve dominios de la NANDA-I, así como entre estos factores y 19 clases y 72 DEs. Todos los factores de la escala se mapearon con el Dominio 1/Promoción de la Salud, Clase 2/Controle de la Salud, y el DE “Síndrome del anciano frágil”.

Consideraciones finales:

Se asignaron los factores de la escala ECPICID-AVC de acuerdo con los nueve dominios de la NANDA-I, sus clases y diagnósticos. Este estudio demuestra ser importante para que los enfermeros entiendan cómo los DEs se relacionan con los factores que evalúan la capacidad de cuidar de un anciano dependiente por accidente cerebrovascular, por lo que permitirá el establecimiento de diagnósticos más adecuados a las necesidades del cuidador y condizentes con su capacidad de ofrecer este cuidado.

Descriptores:
Diagnóstico de Enfermería; Cuidadores; Servicios de Atención de Salud a Domicilio; Anciano; Accidente Cerebrovascular

INTRODUCTION

Annually, nearly 15 million people suffer strokes around the world11 World Health Organization-WHO. Global burden of stroke [Internet]. 2017 [cited 2017 Jul 9]. Available from: http://www.who.int/cardiovascular_diseases/en/cvd_atlas_15_burden_stroke.pdf?ua=1
http://www.who.int/cardiovascular_diseas...
). Of these, approximately 5 million are left with sequelae, which have a major impact on health services, society, and families(11 World Health Organization-WHO. Global burden of stroke [Internet]. 2017 [cited 2017 Jul 9]. Available from: http://www.who.int/cardiovascular_diseases/en/cvd_atlas_15_burden_stroke.pdf?ua=1
http://www.who.int/cardiovascular_diseas...
). In the United States, nearly one-fourth of strokes occur in people under the age of 6522 The Internet Stroke Center. Stroke Statistics. [Internet] St. Louis School of Medicine: Washington University; UT Southwestern Medical Center. 2018. [cited 2017 Jul 9]. Available from: http://www.strokecenter.org/patients/about-stroke/stroke-statistics/
http://www.strokecenter.org/patients/abo...
). Similarly, in Brazil, in 2017, there were 152.045 hospitalizations for stroke treatment, with older adults accounting for 109.238 (71.8%)33 Ministério da Saúde (BR). DATASUS. TABNET. Health indicators. Epidemiology and Morbidity. Hospital Morbidity of the Unified Health System (SIH/SUS) [Internet]. 2018. [cited 2017 Jul 9]. Available from: http://www2.datasus.gov.br/DATASUS/index.php?area=0203&id=6926
http://www2.datasus.gov.br/DATASUS/index...
).

In Brazil, after a stroke patient is discharged from hospital, care for the stroke survivor is usually provided by families who typically have restricted support networks and are often socioeconomically disadvantaged. The family has to manage aspects related to aging which are often aggravated by limitations arising from a stroke, including functional capacity and body image, and also assisting with rehabilitation and self-care(44 Rodrigues RAP, Marques S, Kusumota L, Santos EB, Fhon JRS, Fabrício-Wehbe SCC. Transition of care for the elderly after cerebrovascular accidents: from hospital to the home. Rev Latino-Am Enfermagem [Internet]. 2013 [cited 2017 Oct 03];21(1):216-24. Available from: http://dx.doi.org/10.1590/S0104-11692013000700027
http://dx.doi.org/10.1590/S0104-11692013...
). Caregivers may also experience insecurities related to caregiving and social isolation. These changes could lead to early hospital re-admission(55 Pereira RA, Santos EB, Fhon JRS, Marques S, Rodrigues RAP. Burden on caregivers of elderly victims of cerebrovascular accident. Rev Esc Enferm USP [Internet]. 2013 [cited 2018 Oct 04];47(1):185-192.).

Informal caregivers need guidance and supervision from nursing professionals, as family care plays a crucial role in whether or not the patient can readapt to the home environment(55 Pereira RA, Santos EB, Fhon JRS, Marques S, Rodrigues RAP. Burden on caregivers of elderly victims of cerebrovascular accident. Rev Esc Enferm USP [Internet]. 2013 [cited 2018 Oct 04];47(1):185-192.-66 Silva RCA, Monteiro GLM, Santos AG. Nurses' role in the education of caregivers of patients with stroke. Rev Aten Saúde. 2015;13(45):114-20.). Little is known about the actual capacities of informal caregivers. Additional research is needed to understand the extent to which caregivers are qualified to care for family members, as well as caregivers’ own issues and concerns.

In this context, the Capacity Scale for Informal Caregivers of Dependent Elderly Stroke Victims (Escala de Capacidades do Prestador Informal de Cuidados de Idosos Dependentes por AVC, ECPICID-AVC) is an instrument designed to objectively evaluate the capacities of informal caregivers of elderly adult stroke survivors. The ECPICID-AVC was developed and validated by Portuguese researchers, based on the Nursing Interventions Classification (NIC) and related existing research literature(77 Araújo OSSL. O cuidado informal a pessoas idosas dependentes no autocuidado após um acidente vascular cerebral: avaliação do impacto do programa InCARE na capacitação dos cuidadores[Thesis]. Lisboa: Universidade de Lisboa; 2015. 203f.

8 Araújo O, Cabrita J, Lage I. ECPICID-AVC: an instrument for measuring self-care in older people after a stroke. Rev Saude Pub [Internet]. 2014 [cited 2018 Oct 04];48(spec):74.
-99 Araújo O, Lage I, Cabrita J, Teixeira L. Development and psychometric properties of ECPICID-AVC to measure informal caregivers' skills when caring for older stroke survivors at home. Scand J Caring Sci [Internet]. 2016 [cited 2018 Oct 04];30(4):821-9. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12291
https://onlinelibrary.wiley.com/doi/abs/...
). A focus group with nine expert nurses and research literature reviews about the capacities of informal caregivers led us to identify preliminary capacity dimensions. Items that expressed the greatest relationship with these dimensions were defined using the Nursing Interventions Taxonomy (NIC)77 Araújo OSSL. O cuidado informal a pessoas idosas dependentes no autocuidado após um acidente vascular cerebral: avaliação do impacto do programa InCARE na capacitação dos cuidadores[Thesis]. Lisboa: Universidade de Lisboa; 2015. 203f.

8 Araújo O, Cabrita J, Lage I. ECPICID-AVC: an instrument for measuring self-care in older people after a stroke. Rev Saude Pub [Internet]. 2014 [cited 2018 Oct 04];48(spec):74.
-99 Araújo O, Lage I, Cabrita J, Teixeira L. Development and psychometric properties of ECPICID-AVC to measure informal caregivers' skills when caring for older stroke survivors at home. Scand J Caring Sci [Internet]. 2016 [cited 2018 Oct 04];30(4):821-9. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12291
https://onlinelibrary.wiley.com/doi/abs/...
). The ECPICID-AVC has since been adapted and validated for use in Brazil(1010 Dal Pizzol FLF. Adaptation and validation of the informal caregivers' skills when providing care to older people after a stroke (ECPICID-AVC) for use in Brazil [Dissertation]. Porto Alegre: Universidade Federal do Rio Grande do Sul (UFRGS); 2018. Available from: https://lume.ufrgs.br/handle/10183/179384
https://lume.ufrgs.br/handle/10183/17938...
). Accordingly, item-to-factor loadings range from 0.525 to 0.924, and there is evidence of strong internal consistency (ICC = 0.94, 95% CI) and homogeneity (Cronbach’s Alpha = 0.914).

The ECPICID-AVC scale covers eight factors: capacity to provide feeding/hydration via a nasogastric or gastrostomy tube; assisting with personal hygiene; assisting with transfer; assisting with positioning; providing technical assistance; assisting with bathroom use; feeding/hydrating; and assisting with dressing and undressing. In studies of informal caregivers of dependent older adult stroke survivors, the ECPICID-AVC has exhibited acceptable internal consistency(88 Araújo O, Cabrita J, Lage I. ECPICID-AVC: an instrument for measuring self-care in older people after a stroke. Rev Saude Pub [Internet]. 2014 [cited 2018 Oct 04];48(spec):74.-99 Araújo O, Lage I, Cabrita J, Teixeira L. Development and psychometric properties of ECPICID-AVC to measure informal caregivers' skills when caring for older stroke survivors at home. Scand J Caring Sci [Internet]. 2016 [cited 2018 Oct 04];30(4):821-9. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12291
https://onlinelibrary.wiley.com/doi/abs/...
).

The purpose of the ECPICID-AVC scale is to identify areas of caregiver uncertainties. To do this, the nurse should first make a critical judgment about actual responses to health conditions/life process/vulnerability of the elderly adult patient after stroke. The other purpose of the ECPICID-AVC is to identify areas for caregiver education. This requires transposing scale factors of care to prepare the caregiver within the specific context of patient-related nursing diagnoses (NDs). NANDA International (NANDA-I) is one of the most commonly standardized nursing diagnoses terminology nomenclatures(1111 Herdman TH, Kamitsuru S. NANDA International nursing diagnoses: definitions and classification, 2018-2020. New York: Thieme; 2017.).

The ECPICID-AVC scale was developed using the NIC(88 Araújo O, Cabrita J, Lage I. ECPICID-AVC: an instrument for measuring self-care in older people after a stroke. Rev Saude Pub [Internet]. 2014 [cited 2018 Oct 04];48(spec):74.-99 Araújo O, Lage I, Cabrita J, Teixeira L. Development and psychometric properties of ECPICID-AVC to measure informal caregivers' skills when caring for older stroke survivors at home. Scand J Caring Sci [Internet]. 2016 [cited 2018 Oct 04];30(4):821-9. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12291
https://onlinelibrary.wiley.com/doi/abs/...
). The aim of this study is to build further knowledge about other NANDA taxonomy elements. Accordingly, we ask: how do the eight ECPICID-AVC scale factors relate to NANDA-I NDs. This requires describing relationships between the ECPICID-AVC scale factors and the NANDA-I domains, classes, and NDs that are relevant to family caregivers and to family care recipients. Descriptive nursing care planning work is important. In Brazil, patients and families do not always receive follow-up from health professionals after a hospital discharge. There is also very little support for patients and their caregivers, such as outpatient or home care services. Home support programs that are in place are not available to the entire population.

OBJECTIVE

To describe relationships between the ECPICID-AVC scale factors and the NANDA-I domains, classes, and Nursing Diagnoses (NDs).

METHOD

Ethical aspects

This study is part of a larger study approved by the Research Ethics Committee of the Hospital de Clínicas of Porto Alegre (CEP HCPA, No. 160580).

Type of study

This study uses a cross-mapping design: a method developed to identify and compare similar data across nursing classifications and existing information in order to validate objects of study in different contexts(1212 Lucena AF, Barros ALBL. Cross-mapping: an alternative to data analysis in nursing. Acta Paul Enferm [Internet]. 2005 [cited 2018 Oct 03];18(1):82-88. Available from: http://dx.doi.org/10.1590/S0103-21002005000100011
http://dx.doi.org/10.1590/S0103-21002005...
-1313 Moorhead S, Delayne C. Mapping nursing intervention data into the Nursing Interventions Classifications (Nic): process and rules. Nurs Diag [Internet]. 1997 [cited 2018 Apr 8];8(4):137-44. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1111/j.1744-618X.1997.tb00468.x
https://onlinelibrary.wiley.com/doi/epdf...
).

Methodological procedures

The general rule of cross-mapping for this study was to seek not only exact synonyms, but also similar meanings between ECPICID-AVC scale care factors and the NANDA-I taxonomy domains, classes, and NDs. The mapping process was focused on identifying NDs related to the specific needs of elderly adults after a stroke for which caregiver support is required.

Collection and organization of data

The ECPICID-AVC scale was mapped on to the NANDA-I taxonomy in order to identify similarities (or the lack thereof) between them. NANDA-I taxonomy consists of hierarchical levels with 13 domains of nursing care, with these domains being further categorized into 47 classes and 234 nursing diagnoses. Each domain and class contains nursing diagnoses that share similar properties that cluster them together into one group(1111 Herdman TH, Kamitsuru S. NANDA International nursing diagnoses: definitions and classification, 2018-2020. New York: Thieme; 2017.). Then, researchers navigate from a ‘domain’ to a ‘class’ and then to ‘diagnoses within a particular class’. Each nursing diagnosis or ND also has a set definition and set list of defining characteristics and related risk factors. Cross-mapping helps researchers identify similarities between an object of study (in our case, this object is the ECPICID-AVC scale) and each successive element of NANDA-1 taxonomy(1212 Lucena AF, Barros ALBL. Cross-mapping: an alternative to data analysis in nursing. Acta Paul Enferm [Internet]. 2005 [cited 2018 Oct 03];18(1):82-88. Available from: http://dx.doi.org/10.1590/S0103-21002005000100011
http://dx.doi.org/10.1590/S0103-21002005...

13 Moorhead S, Delayne C. Mapping nursing intervention data into the Nursing Interventions Classifications (Nic): process and rules. Nurs Diag [Internet]. 1997 [cited 2018 Apr 8];8(4):137-44. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1111/j.1744-618X.1997.tb00468.x
https://onlinelibrary.wiley.com/doi/epdf...
-1414 Pereira AGS, Santos CT, Menegon DB, Mello B, Azambuja F, Lucena AF. Mapping the nursing care with the nic for patients in risk for pressure ulcer. Rev Esc Enferm USP [Internet]. 2014 [cited 2017 Oct 20];48(3):454-61. Available from: http://dx.doi.org/10.1590/S0080-623420140000300010
http://dx.doi.org/10.1590/S0080-62342014...
). Cross-mapping also requires that researchers draw upon existing research literature to further support any similarity claims.

Stages of work

The study was divided into three stages: 1) reading of each ECPICID-AVC scale care factor; 2) reading of each NANDA-I domain, class, and NDs; 3) mapping of each of the ECPICID-AVC factors and NANDA-I domains, classes, and NDs, seeking similarities and intersections between them. The mapping itself was performed by the first and second authors, considering the components of each of the ECPICID-AVC factors and the definition, defining characteristics, related factors, or risk factors of each NANDA-I NDs. The first two authors reviewed the mapping among themselves. Afterwards, the final author reviewed and approved the cross-mapping. This stage took three months to be completed, reviewed, and approved.

Data analysis

A descriptive analysis was then carried out to present the findings of the cross-mapping process.

RESULTS

The cross-mapping process revealed similarities between all eight ECPICID-AVC factors with nine domains (1-Health Promotion; 2-Nutrition; 3-Elimination/Exchange; 4-Activity/Rest; 5-Perception/Cognition; 7-Role Relationship; 9-Coping/Stress Tolerance; 11-Safety/Protection; and 12-Comfort), and 19 classes and 72 NDs of the NANDA-I taxonomy.

Four NANDA-I domains were not mapped with the ECPICID-AVC scale. Non-mapped domains were: Self-Perception, Sexuality, Life Principles, and Growth/Development. All eight ECPICID-AVC care factors were mapped in Domain 1-Health Promotion and Class 2- Health Management, as well as within the ND of “Frail elderly syndrome (00257)”. ECPICID-AVC care factors were related to 72 (31.9%) of the 234 NANDA-I NDs (see Chart 1).

Chart 1
Summary of ECPICID-AVC factors with the respective mapped nursing diagnoses, Porto Alegre, Rio Grande do Sul, Brazil, 2018

DISCUSSION

The discussion was constructed by approaching similar investigations, since no studies with the same theme were identified.

In this study, similarities were found between eight ECPICID-AVC scale care factors and nine domains, 19 classes, and 72 nursing diagnoses of the NANDA-I taxonomy. The mapping process identified issues related to the needs of elderly adult stroke patients that were associated with ECPICID-AVC scale care factors and the nursing diagnoses of those patients. Caregivers should understand the needs of stroke patients before they provide care. The nurse should keep in mind NDs for elderly adult care recipients when (s)he is utilizing the scale in order to assess caregiver capabilities.

The mapping process for any one particular factor was not an isolated mapping process. Similarities between care activities and corresponding ECPICID-AVC scale care factors meant that factors had to be mapped together. For example, the factors “Capacity to feed/hydrate” and “Capacity to feed/hydrate by nasogastric/gastrostomy tube” were mapped with Domain 2-Nutrition, Classes 1-Ingestion, 4-Metabolism, and 5-Hydration, and their respective NDs. The relationship of these ECPICID-AVC scale care factors to Domain 2 makes sense because many elderly patients are unable to feed themselves after a stroke due to - for example - dysphagia.

Post-stroke neurological deficits, in which changes in swallowing occur mainly in the acute phase(1515 Mourão AM, Almeida EO, Lemos SMA, Vicente LCC, Teixeira AL. Evolution of swallowing in post-acute stroke: a descriptive study. Rev CEFAC [Internet]. 2016 [cited 2018 Oct 03];18(2):417-25. Available from: http://dx.doi.org/10.1590/1982-0216201618212315
http://dx.doi.org/10.1590/1982-021620161...
, influences nutritional status. These difficulties probably explained mapping the factors “Capacity to feed/hydrate” and “Capacity to feed/hydrate by nasogastric/gastrostomy tube” in the NDs Impaired swallowing (00103) and Imbalanced nutrition, less than body requirements (00002). This highlights the importance of nurses identifying, correcting, or preventing problems while considering the functional capacity, socioeconomic context, and comorbidities of elderly patients. This way, nurses can provide guidance to caregivers both during a hospitalization and after discharge about how to manage feeding/hydration issues(1616 Clares JWB, Guedes MVC, Silva LF, No´brega MML, Freitas MC. Subset of nursing diagnoses for the elderly in Primary Health care. Rev Esc Enferm USP [Internet]. 2016 [cited 2017 Oct 03];50(2):272-8. Available from: http://dx.doi.org/10.1590/S0080-623420160000200013
http://dx.doi.org/10.1590/S0080-62342016...
).

The factor “Capacity to assist with feeding/hydrating by nasogastric/gastrostomy tube” was also mapped with other two NDs: “Risk for aspiration (00039)” and “Risk for injury (00035)”. The ND “Risk for aspiration (00039)” has been clinically validated in patients hospitalized for a stroke(1717 Cavalcante TF, Araújo TL, Moreira RP, Guedes NG, Lopes MVO, Silva VM. Clinical validation of the nursing diagnosis Risk for Aspiration among patients who experienced a cerebrovascular accident. Rev Latino-Am Enfermagem [Internet]. 2013 [cited 2017 Oct 03];21(1):250-8. Available from: http://dx.doi.org/10.1590/S0104-11692013000700031
http://dx.doi.org/10.1590/S0104-11692013...
among 58.3% of elderly adult stroke patients. The most prevalent risk factors for aspiration were dysphagia (54.2%) and decreased body mobility (41.7%). It is important for nurses to guide caregivers to observe diet by nasogastric/gastrostomy tube to prevent patient aspiration, especially in a developing country context in which the nasogastric/gastrostomy tube is handled by the family.

The factors “Capacity to assist with personal hygiene” and “Capacity to assist with bathroom use” were mapped into various NDs of the Domain 3-Elimination/Exchange, in the Classes 1-Urinary system and 2-Gastrointestinal system. This is consistent with the fact that stroke is one of the leading causes of urinary incontinence, as it can alter the brain structures responsible for micturition(1818 Leandro TA, Araujo TL, Cavalcante TF, Lopes MVO, Oliveira TMF, Lopes ACM. Urinary incontinence nursing diagnoses in patients with stroke. Rev Esc Enferm USP [Internet]. 2015[cited 2017 Oct 01];49(6):923-30. Available from: http://dx.doi.org/10.1590/S0080-623420150000600007
http://dx.doi.org/10.1590/S0080-62342015...
and patients often exhibit a lack of sphincter control (both urinary and fecal) due to advancing age or dependency(1919 Silva MA, Aguiar ESS, Matos SDO, Lima JO, Costa MML, Soares MJGO. Prevalência de incontinência urinária e fecal em idosos: estudo em instituições de longa permanência para idosos. Estud Interdiscip Envelhec[Internet]. 2016 [cited 2018 Mar 10];21(1):249-61. Available from: http://www.seer.ufrgs.br/RevEnvelhecer/article/view/46484/40727
http://www.seer.ufrgs.br/RevEnvelhecer/a...
). In addition, especially after stroke, older adults may need incontinence pads to manage their excreta, depending on the level of dependence. Incontinence diaper changes are complex as many caregivers are not accustomed to doing so routinely(2020 Bierhals CCBK, Santos NO, Fengler FL, Raubustt KD, Forbes DA, Paskulin LM. Needs of family caregivers in home care for older adults. Rev Latino-Am Enfermagem [Internet]. 2017 [cited 2017 Oct 03];25:e2870. Available from: http://dx.doi.org/10.1590/1518-8345.1511.2870
http://dx.doi.org/10.1590/1518-8345.1511...
). Incontinence diaper changes require training by health care professionals using a return demonstration method(2020 Bierhals CCBK, Santos NO, Fengler FL, Raubustt KD, Forbes DA, Paskulin LM. Needs of family caregivers in home care for older adults. Rev Latino-Am Enfermagem [Internet]. 2017 [cited 2017 Oct 03];25:e2870. Available from: http://dx.doi.org/10.1590/1518-8345.1511.2870
http://dx.doi.org/10.1590/1518-8345.1511...
-2121 Yedidia MJ, Tiedemann A. How do family caregivers describe their needs for professional help? J Soc Work Educ[Internet]. 2008 [cited 2017 Oct 03];44(3-suppl.):43-7. Available from: https://www.nursingcenter.com/upload/static/809507/35-37_yedidia.pdf
https://www.nursingcenter.com/upload/sta...
).

The factors “Capacity to assist with transfers” and “Capacity to assist with positioning” were mapped with NDs in Domain 4-Activity/Rest, Class 2-Activity/Exercise. Patient locomotion or transfer is one of the most common activities performed by informal caregivers of elderly patients at home who become dependent after a stroke(2222 Silva AL, Teixeira HJ, Teixeira MJ, Freitas S. The needs of informal caregivers of elderly people living at home: an integrative review. Scand J Caring Sci [Internet]. 2013 [cited 2017 Oct 04]; 27(4), 792-803. Available from: https://doi.org/10.1111/scs.12019
https://doi.org/10.1111/scs.12019...
). However, another national study with informal caregivers of the elderly identified that they often experience doubts about these activities. Patient transfers are usually learned during daily care, without guidance from health professionals(2020 Bierhals CCBK, Santos NO, Fengler FL, Raubustt KD, Forbes DA, Paskulin LM. Needs of family caregivers in home care for older adults. Rev Latino-Am Enfermagem [Internet]. 2017 [cited 2017 Oct 03];25:e2870. Available from: http://dx.doi.org/10.1590/1518-8345.1511.2870
http://dx.doi.org/10.1590/1518-8345.1511...
).

Lower back pain in older adults reduces functional capacity(2323 Rodrigues CP, Silva RA, Elias NN, Andraus RAC, Fernandes MTP, Fernandes KBP. Analysis of functional capacity in individuals with and without chronic lower back pain. Acta Ortop Bras [Internet]. 2017 [cited 2018 Oct 03];25(4):143-6. Available from: http://dx.doi.org/10.1590/1413-785220172504156564
http://dx.doi.org/10.1590/1413-785220172...
). This finding is in keeping with the present study in that the ECPICID-AVC factor “Capacity to assist with positioning” was mapped with the ND “Acute pain (00132)”. The caregiver should know how to position the older adult stroke survivor in a way that relieves pain and discomfort.

The factors “Capacity to provide technical assistance/technical aids” were mapped with NDs in Domain 7-Role Relationships, Class 1-Caregiving Roles and 3-Role Performance. The term ‘technical aids’ is related to providing physical support and/or providing materials to perform care. These mapped domains are related to family/caregivers, not to stroke survivors. In Brazil, informal care is the main source of home help for elderly adults with functional limitations2424 Lima-Costa MF, Peixoto SV, Malta DC, Szwarcwald CL, Mambrini JVM. Informal and paid care for Brazilian older adults (National Health Survey, 2013). Rev Saúde Pública [Internet]. 2017 [cited 2017 Oct 04];51(Suppl1):6s. Available from: http://dx.doi.org/10.1590/s1518-8787.2017051000013
http://dx.doi.org/10.1590/s1518-8787.201...
). Inadequate social support or lack of support causes caregiver task overload(2525 Silva LCP. Cuidado de Enfermagem à Pessoa Idosa no Domicílio. In: Menezes MR. Enfermagem Gerontológica: um olhar diferenciado no cuidado biopsicossocial e cultural. São Paulo: Martinari; 2016.). Formal support, including rest for the caregiver, support networks, and financial and structural supports reduce caregiver overload, mainly through emotional support(2626 Fernandes CS, Angelo M. Family caregivers: what do they need? an integrative review. Rev Esc Enferm USP [Internet]. 2016 [cited 2017 Oct 03];50(4):675-82. Available from: http://dx.doi.org/10.1590/S0080-623420160000500019
http://dx.doi.org/10.1590/S0080-62342016...
). These findings corroborate our mapping of the factor “Capacity to provide technical assistance/technical aids” on to NDs in the Role Relationships domain. Caregiver quality of life is affected by caregiving stress and can be improved through the provision of social support.

The factor “Capacity to provide technical assistance” was mapped with the NDs “Disabled family coping (00073)” and “Ineffective coping (00069)”. The provision of technical assistance by informal caregivers can generate feelings of doubt because adult children are now parental caregivers. Role reversals make adult children have doubts about what they can and cannot decide for a parent when providing hands-on care on their behalf(2020 Bierhals CCBK, Santos NO, Fengler FL, Raubustt KD, Forbes DA, Paskulin LM. Needs of family caregivers in home care for older adults. Rev Latino-Am Enfermagem [Internet]. 2017 [cited 2017 Oct 03];25:e2870. Available from: http://dx.doi.org/10.1590/1518-8345.1511.2870
http://dx.doi.org/10.1590/1518-8345.1511...
,2727 Jesus MCP, Merighi MAB, Caldeira S, Oliveira DM, Souto RQ, Pinto MA. Taking care of the elderly mother in homecare context: daughters perspective. Texto Contexto Enferm [Internet]. 2013 [cited 2018 Oct 03];22(4):1081-8. Available from: http://dx.doi.org/10.1590/S0104-07072013000400026
http://dx.doi.org/10.1590/S0104-07072013...
). Providing care to a parent is an emotionally-charged experience that can evoke negative feelings in adult children(2020 Bierhals CCBK, Santos NO, Fengler FL, Raubustt KD, Forbes DA, Paskulin LM. Needs of family caregivers in home care for older adults. Rev Latino-Am Enfermagem [Internet]. 2017 [cited 2017 Oct 03];25:e2870. Available from: http://dx.doi.org/10.1590/1518-8345.1511.2870
http://dx.doi.org/10.1590/1518-8345.1511...
).

Impairment in social interactions is a largely negatively perceived aspect of caring for a dependent elderly adult(2828 Oliveira DC, D'elboux MJ. National studies on family caregivers of older persons: integrative review. Rev Bras Enferm [Internet]. 2012[cited 2018 Oct 03];65(5):829-38. Available from: http://dx.doi.org/10.1590/S0034-71672012000500017
http://dx.doi.org/10.1590/S0034-71672012...
). Social isolation is both a common and unwelcome change in caregivers’ lives2929 Morais HCC, Soares AMG, Oliveira ARS, Carvalho CML, Silva MJ, Araujo TL. Burden and modifications in life from the perspective of caregivers for patients after stroke. Rev Latino-Am Enfermagem [Internet]. 2012[cited 2017 Oct 03];20(5):944-53. Available from: http://dx.doi.org/10.1590/S0104-11692012000500017
http://dx.doi.org/10.1590/S0104-11692012...
-3030 Polaro SHO, Gonçalves LHT, Nassar SM, Lopes MMB, Ferreira VF, Monteiro HK. Family dynamics in the caring context of adults on the fourth age. Rev Bras Enferm [Internet]. 2013[cited 2018 Oct 03];66(2):228-33. Available from: http://dx.doi.org/10.1590/S0034-71672013000200012
http://dx.doi.org/10.1590/S0034-71672013...
). Connections between health services and existing social support networks can reduce the social inclusion of informal caregivers(3030 Polaro SHO, Gonçalves LHT, Nassar SM, Lopes MMB, Ferreira VF, Monteiro HK. Family dynamics in the caring context of adults on the fourth age. Rev Bras Enferm [Internet]. 2013[cited 2018 Oct 03];66(2):228-33. Available from: http://dx.doi.org/10.1590/S0034-71672013000200012
http://dx.doi.org/10.1590/S0034-71672013...
).

Five ECPICID-AVC factors (“Capacity to feed/hydrate via nasogastric/gastrostomy tube”, “Capacity to feed/hydrate”, “Capacity to assist with personal hygiene”, “Capacity to assist with bathroom use”, and “Capacity to assist with dressing/undressing”) were mapped into the Domain 4-Activity/Rest, Class 5-Self-Care. Activities falling within the domain of self-care, i.e. bathing, oral and genital hygiene, and dressing, are most often performed by informal caregivers when older adults have decreased functional capacity(2424 Lima-Costa MF, Peixoto SV, Malta DC, Szwarcwald CL, Mambrini JVM. Informal and paid care for Brazilian older adults (National Health Survey, 2013). Rev Saúde Pública [Internet]. 2017 [cited 2017 Oct 04];51(Suppl1):6s. Available from: http://dx.doi.org/10.1590/s1518-8787.2017051000013
http://dx.doi.org/10.1590/s1518-8787.201...
,3131 Floriano LA, Azevedo RCS, Reiners AAO, Sudré MRS. Care performed by family caregivers to dependent elderly, at home, within the context of the family health strategy. Texto Contexto Enferm [Internet]. 2012 [cited 2017 Oct 03];21(3):543-8. Available from: http://dx.doi.org/10.1590/S0104-07072012000300008
http://dx.doi.org/10.1590/S0104-07072012...
). Caregivers often experience doubts or need additional information about self-care activities(2222 Silva AL, Teixeira HJ, Teixeira MJ, Freitas S. The needs of informal caregivers of elderly people living at home: an integrative review. Scand J Caring Sci [Internet]. 2013 [cited 2017 Oct 04]; 27(4), 792-803. Available from: https://doi.org/10.1111/scs.12019
https://doi.org/10.1111/scs.12019...
,2828 Oliveira DC, D'elboux MJ. National studies on family caregivers of older persons: integrative review. Rev Bras Enferm [Internet]. 2012[cited 2018 Oct 03];65(5):829-38. Available from: http://dx.doi.org/10.1590/S0034-71672012000500017
http://dx.doi.org/10.1590/S0034-71672012...
). The nursing team should identify the needs of these older adult patients as well as caregiver doubts to ensure that self-care activities are carried out properly.

“Capacity to feed/hydrate via nasogastric/gastrostomy tube”, “Capacity to feed/hydrate”, “Capacity to assist in transfers”, and “Capacity to assist with positioning” were mapped with Domain 11-Safety/Protection, Class 2-Physical Injury. Some factors may contribute to the development of a pressure injury that compromises skin integrity in elderly adult patients, including impaired mobility in bed, friction during mobilizations, and nutritional deficiencies(3232 Langer G, Fink A. Nutritional Interventions for Preventing and Treating Pressure Ulcers. Cochrane Database Syst Rev[Internet]. 2014 [cited 2017 Apr 17];12(6). Available from: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003216.pub2/abstract
https://www.cochranelibrary.com/cdsr/doi...
-3333 Vieira VAS, Santos MDC, Almeida NA, Souza CC, Bernardes MFVG, Mata LRF. Risco de lesão por pressão em idosos com comprometimento na realização de atividades diárias. Rev Enferm C O Min[Internet]. 2018 [cited 2017 Apr 17];8(2599). Available from: http://dx.doi.org/10.19175/recom.v7i0.2599
http://dx.doi.org/10.19175/recom.v7i0.25...
). Caregivers oversee positioning changes at home. Thus the nursing team should provide support and guidance in regards to positioning changes to prevent pressure injuries.

The factors “Capacity to feed/hydrate via nasogastric/gastrostomy tube”, “Capacity to feed/hydrate”, and “Capacity to assist in transfers” were mapped with Domain 5-Perception/Cognition, Class 4-Cognition. Stroke is the main cause of chronic physical and mental impairments(3434 Fens M, van Heugten CM, Beusmans G, Metsemakers J, Kester A, Limburg M. Effect of a stroke-specific follow-up care model on the quality of life of stroke patients and caregivers: a controlled trial. J Rehabil Med[Internet]. 2014 [cited 2017 Apr 17];46(1):7-15. Available from: https://www.ingentaconnect.com/contentone/mjl/sreh/2014/00000046/00000001/art00002?crawler=true
https://www.ingentaconnect.com/contenton...
). Elderly adults who have a history of stroke are also at nearly double the risk of degenerative dementias such as Alzheimer’s disease(3535 Tosto G, Bird TD, Bennett DA, Boeve BF, Brickman AM, Cruchaga C, et al. The role of cardiovascular risk factors and stroke in familial alzheimer disease. JAMA Neurol. 2016;73(10):1231-7. doi:10.1001/jamaneurol.2016.2539
https://doi.org/10.1001/jamaneurol.2016....
).

It should be noted that the ND “Frail elderly syndrome (00257)” (Domain 1, Health Promotion, Class 2, Health management) was mapped with all eight factors of the ECPICID-AVC scale. According to NANDA-I, this diagnosis is defined as “a Dynamic state of unstable equilibrium that affects the elderly individual experiencing deterioration in one or more domains of health (physical, functional, psychological, or social) and leads to increased susceptibility to adverse health effects, in particular disability”1111 Herdman TH, Kamitsuru S. NANDA International nursing diagnoses: definitions and classification, 2018-2020. New York: Thieme; 2017.). The concept of ‘frailty’ in older adults has been widely discussed in the field of aging studies; however, this concept lacks a set definition. ‘Frailty’ is strongly associated with vulnerability and adverse clinical outcomes that deter quality of life, autonomy, and independence(3636 Clegg A, Young J, Iliff S, Rikkert MO, Rockwood K. Frailty in elderly people. Lancet [Internet]. 2013 [cited 2017 Apr 17];381(9868):752-62. Available from: http://dx.doi.org/10.1016/S0140-6736(12)62167-9
http://dx.doi.org/10.1016/S0140-6736(12)...
-3737 Fhon JRS, Diniz MA, Leonardo KC, Kusumota L, Haas VJ, Rodrigues RAP. Frailty syndrome related to disability in the elderly. Acta Paul Enferm [Internet]. 2012 [cited 2017 Oct 03];25(4):589-94. Available from: http://www.scielo.br/pdf/ape/v25n4/en_aop1812.pdf
http://www.scielo.br/pdf/ape/v25n4/en_ao...
). This ND highlights the need for caregiver orientations to ADLs, and behaviors and self-esteem among elderly people after a stroke.

Stroke corroborates the characteristics of ‘frailty’. Cerebrovascular disease is the leading cause of disability in the elderly population because it hinders the capacity to perform basic and complex tasks necessary for independent living3838 Alves LC, Leite IC, Machado CJ. The concept and measurement of functional disability in the elderly population: a literature review. Ciênc Saúde Coletiva [Internet]. 2008[cited 2017 Oct 02];13(4):1199-207. Available from: http://dx.doi.org/10.1590/S1413-81232008000400016
http://dx.doi.org/10.1590/S1413-81232008...
). Disability levels after a stroke determine how dependent older adults would be upon informal caregivers. Post-stroke physical disabilities can negatively affect the day-to-day life quality of elderly adult stroke survivors and their families(44 Rodrigues RAP, Marques S, Kusumota L, Santos EB, Fhon JRS, Fabrício-Wehbe SCC. Transition of care for the elderly after cerebrovascular accidents: from hospital to the home. Rev Latino-Am Enfermagem [Internet]. 2013 [cited 2017 Oct 03];21(1):216-24. Available from: http://dx.doi.org/10.1590/S0104-11692013000700027
http://dx.doi.org/10.1590/S0104-11692013...
,3939 Coco DL, Lopez G, Corrão S. Cognitive impairment and stroke in elderly patients. Vasc Health Risk Manag. 2016;24;12:105-16. doi: 10.2147/VHRM.S75306
https://doi.org/10.2147/VHRM.S75306...
).

Limitation of the study

The limitation of the study lies in the fact that this cross-mapping has been developed at the theoretical level. It is necessary to validate it using the ECPICID-AVC and the nursing diagnoses in clinical practice with the patient receiving care performed by an informal caregiver.

Contributions to the area of nursing, health or public policy

This study demonstrates the importance of identifying nursing diagnoses and their relationship with factors that evaluate caregiving capacity. The ECPICID-AVC can help to generate nursing diagnoses about the needs of the stroke survivor and the caregiver’s capacity to respond such needs. The use of the ECPICID-AVC should help to plan interventions and educational programs for caregivers, especially when preparing a dependent older adult patient for discharge, as a way of improving the quality of care provided at home.

FINAL CONSIDERATIONS

In this study, eight ECPICID-AVC scale factors were mapped on to nine domains of the NANDA-I taxonomy and, relatedly, 19 classes and 72 diagnoses. The ECPICID-AVC encompasses care related to biological aspects of aging. As such it is necessary for nurses to look at aging as a process that encompasses more than the physiological aspects of care, including emotional and subjective aspects related to the caregiver’s role. The diagnoses mapped refer to diagnoses for elderly adults that will have implications for caregiver actions and for diagnoses related to caregivers themselves. The identification of the diagnoses related to each ECPICID-AVC scale factor (cross-mapping) provides “evidence” of clinical knowledge that can be developed by nurses who use this scale.

  • FUNDING
    Fundo de Incentivo à Pesquisa e Eventos of the Hospital de Clínicas de Porto Alegre (FIPE/HCPA) – Grant number 160580 and Programa de Apoio à Pós-Graduação (PROAP) of the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior – Brasil (CAPES).

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    » https://doi.org/10.2147/VHRM.S75306

Publication Dates

  • Publication in this collection
    05 Dec 2019
  • Date of issue
    Nov 2019

History

  • Received
    09 Oct 2018
  • Accepted
    13 Oct 2018
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