Acessibilidade / Reportar erro

Human and social rights and occupational therapy: the need for an intersectional perspective

Access to human and social rights and inequalities in social opportunity have persisted throughout human history. Recent global challenges, such as adjusting to the permanence of COVID-19, call for a dynamic understanding of the ways that occupation/daily life interacts with multiple situations where human and social rights are compromised, and inequalities undermine capacities and opportunities for resiliency and recovery. The detrimental effects of these issues most affect is those whose lives are already complex through intersectional marginalisations and vulnerabilities, and who demand and claim services.

The measures governments have employed to control the pandemic have severely affected human interaction and social participation. The controls and required adaptations have created what appear to be an ongoing new normal of living (Buheji et al., 2020Buheji, M., da Costa Cunha, K., Beka, G., Mavric, B., De Souza, Y. L., da Costa Silva, S. S., Hanafi, M., & Yein, T. C. (2020). The extent of covid-19 pandemic socio-economic impact on global poverty: a global integrative multidisciplinary review. American Journal of Economics, 10(4), 213-224. http://dx.doi.org/10.5923/j.economics.20201004.02.
http://dx.doi.org/10.5923/j.economics.20...
). The features of this new complex occupational context did not all originate with COVID-19. They arrived at a time when the reduction in services, infrastructure, and other social welfare measures had already impacted on rising inequalities (Bambra et al., 2020Bambra, C., Riordan, R., Ford, J., & Matthews, F. (2020). The COVID-19 pandemic and health inequalities. Journal of Epidemiology and Community Health, 74(11), 964-968.). Addressing such issues will be delayed by the pandemic and the spikes in public spending associated with it, although governments spent more money on propping up stock markets than addressing social welfare and health measures (Munasinghe, 2020Munasinghe, M. (2020). COVID-19 and sustainable development. International Journal of Sustainable Development, 23(1-2), 1-24.). Government budgets and personal incomes are forecast to be affected for decades (Makin & Layton, 2021Makin, A. J., & Layton, A. (2021). The global fiscal response to COVID-19: risks and repercussions. Economic Analysis and Policy, 69, 340-349.). Other changes which were already a consequence of neoliberal global market developments, were accelerated by COVID-19, such the loss of privacy through contact tracing, state-led data management, and growths and concentration in digital technology sectors (Munasinghe, 2020Munasinghe, M. (2020). COVID-19 and sustainable development. International Journal of Sustainable Development, 23(1-2), 1-24.).

Over time neoliberal policies have compromised democracy and undermined the efficacy of health systems and social care measures (Max-Neef, 2010Max-Neef, M. (2010). Development and human needs. In D. Gasper, & A. L. St Clair (Eds.), Development ethics (pp. 169-186). Farnham: Ashgate.). These combined consequences of economic and political changes have impacted more on vulnerable groups, so that they are left behind in the health and life quality improvements that wealthier groups enjoy (Bambra et al., 2020Bambra, C., Riordan, R., Ford, J., & Matthews, F. (2020). The COVID-19 pandemic and health inequalities. Journal of Epidemiology and Community Health, 74(11), 964-968.). Along with other health and social care professionals, occupational therapists have to relate their work around the social determinants of life. This includes the consequences of social and economic inequalities and violations of human and social rights. While this editorial addresses the pandemic and its consequences to date, the outcomes will unfold over the coming decades and readers will already see that unfolding global events, such as the Ukraine conflict and the humanitarian and food crises it may produce, will contribute further to these complex problems.

An Intersectional Perspective of Occupation/everyday Life and Human and Social Rights

The relationship between participating in doing things that give life meaning and life quality is well established in occupational therapy and occupational science (e.g. Whiteford et al., 2018Whiteford, G., Jones, K., Rahal, C., & Suleman, A. (2018). The Participatory Occupational Justice Framework as a tool for change: three contrasting case narratives. Journal of Occupational Science, 25(4), 497-508.). Occupational therapy practices should be based in justice principles which respect dignity and full participation in everyday life for all. However, the profession has yet to fully develop its understanding of the intersectional (i.e. interconnected) relationship between people and their everyday life/occupations, on the basis of gender, race, class and other expressions of diversity which confer disadvantage or are the focus of marginalisations (Grandón, 2017Grandón, D. E. (2017). Terapia Ocupacional, discapacidad y género: la interseccionalidad como apertura hacia reflexiones pendientes. Revista Ocupación Humana, 17(2), 34-45.), or any of these phenomena in relation to cultural influences (Frank, 2012Frank, G. (2012). The 2010 Ruth Zemke lecture in occupational science occupational therapy/occupational science/occupational justice: moral commitments and global assemblages. Journal of Occupational Science, 19(1), 25-35.).

The production of multiple disadvantages and vulnerabilities through economic measures, corporate decisions and government policy often impact the social life or experience of particular groups within a society and threaten fundamental rights to what Max Neef (2010) identifies as ‘a place in which to be’, i.e. a space to occupy, in which one can do, be, become and to which one belongs (Wilcock & Hocking, 2015Wilcock, A. A., & Hocking, C. (2015). An occupational perspective of health (3rd ed.). New Jersey, USA: Slack.). This human and social right to a space may imply everything from compromised land rights to the right to access the means to make a living, or to engage in the occupations/doing that sustain life at a supportable level. Thus, the use of occupation/everyday life as a means for intervention suggests a fundamental relationship to health, to welfare, to education, to justice, and rights (Frank, 2012Frank, G. (2012). The 2010 Ruth Zemke lecture in occupational science occupational therapy/occupational science/occupational justice: moral commitments and global assemblages. Journal of Occupational Science, 19(1), 25-35.; Durocher, Gibson & Rappolt, 2014Durocher, E., Gibson, B. E., & Rappolt, S. (2014). Occupational justice: a conceptual review. Journal of Occupational Science, 21(4), 418-430.).

These practices should operationalize the intersectional relationship between occupation/everyday life and human and social rights. Balanta-Cobo & Padilla-Muñoz (2019)Balanta-Cobo, P., & Padilla-Muñoz, A. (2019). A step beyond direct and indirect discrimination against persons with disability methodological approach to discrimination from the intersectional perspective. Age of Human Rights Journal, (13), 99-124. https://doi.org/10.17561/TAHRJ.N13.6.
https://doi.org/10.17561/TAHRJ.N13.6...
identify five dimensions of these connections to be strategically addressed through the following actions:

  • Validating and attending to the multiple voices, demands, and particular claims of the people and groups with whom occupational therapists work, recognizing that in every occupational scenario, health, education, work, and participation processes converge, generating diverse conditions and environments.

  • Recognizing and emphasizing the pluridiverse occupational histories or different ways of living that guide, motivate and determine occupation/everyday lives.

  • Analyze occupations/doings incorporating particular situations of inequality, exclusions, discriminations or restrictions.

  • Creating alternative ways of understanding, adjusting, changing, and adapting environments by recognizing the diversity proposed in the previous points.

  • Discovering, recognizing, and acting on structural complexity, as a way to begin to address disabling and oppressive situations that demand change or transformation

The Figure 1 bellow illustrates this discussion.

Figure 1
Human and social rights and occupational therapy: an intersectional perspective.

The pandemic has exposed the political obligation and moral responsibility of occupational therapy to include social protection and citizenship for all as a core aspect of practice (Malfitano et al., 2020Malfitano, A. P. S., Cruz, D. M. C., & Lopes, R. E. (2020). Occupational therapy in times of pandemic: social security and guaranties of possible everyday life for all. British Journal of Occupational Therapy, 28(2), 401-4040. http://dx.doi.org/10.4322/2526-8910.ctoED22802.
http://dx.doi.org/10.4322/2526-8910.ctoE...
, Fransen-Jaïbi et al., 2021Fransen-Jaïbi, H., Kantartzis, S., Pollard, N., & Viana-Moldes, I. (2021). Educational materials on citizenship from an occupational perspective. Coruña: Universidade da Coruña, Servizo de Publicacións. https://doi.org/10.17979/spudc.9788497498142.
https://doi.org/10.17979/spudc.978849749...
). These responsibilities require critical reconfiguration of the principles of the profession (Fransen et al., 2015Fransen, H., Pollard, N., Kantartzis, S., & Viana Moldes, I. (2015). Participatory citizenship: critical perspectives on client-centred occupational therapy. Scandinavian Journal of Occupational Therapy, 22(4), 260-266. http://dx.doi.org/10.3109/11038128.2015.1020338.
http://dx.doi.org/10.3109/11038128.2015....
; Salas et al., 2015Salas, E.N., Cordóba, A.G., Garlito, P.C. & Prado, S.P. (2015). Terapia Ocupacional y Exclusión Social: Hacia una praxis basada en los derechos humanos. Santiago de Chile: Segismundo.; Algado et al., 2016Algado, S. S., Córdoba, A. G., Oliver, F. C., Galheigo, S. M., & García-Ruiz, S. (2016). (Eds.) Terapias ocupacionales desde el sur: derechos humanos, ciudadanía y participación. Santiago de Chile: Universidad de Santiago de Chile.; Farias et al., 2018Farias, L., Laliberte Rudman, D., Pollard, N., Schiller, S., Serrano Malfitano, A. P., Thomas, K., & Bruggen, H. V. (2018). Critical dialogical approach: a methodological direction for occupation-based social transformative work. Scandinavian Journal of Occupational Therapy, 26(4), 235-245. https://dx.doi.org/10.1080/11038128.2018.1469666.
https://dx.doi.org/10.1080/11038128.2018...
; Pollard et al., 2021Pollard, N., Viana-Moldes, I., Fransen-Jaibi, H., & Kartartzis, S. (2021). Occupational Therapy on the move: on contextualizing citizenship and epistemicide (pp. 151-163). In: R. E. Lopes & A. P. S. Malfitano, (Eds.), Social occupational therapy: theoretical and practical designs. Pennsylvania, USA: Elsevier.; Lopes, 2021Lopes, R. E. (2021). Citizenship, rights and social occupational therapy. In R. E. Lopes & A. P. S. Malfitano. Social occupational therapy: Theoretical and practical designs (pp. 1-10). Pennsylvania, USA: Elsevier.; Parraguez et al., 2021Parraguez, V., Zapata, F., Silva, C., Benitez, J. & Quinteros, R. (2021). Terapia Ocupacional: Iniciando el camino hacia la ocupación, cultura y derechos humanos. Santiago de Chile: Universidad Andres Bello.) e.g., being person-centered, critically evaluating the profession’s history, and considering rights and citizenship as elements of occupational therapy in connection with justice.

Contemporary Society and Political Obligation

Occupational therapists have been developing practices around responding to disaster, community development needs, and vulnerabilities throughout the profession’s history. They adapt and change to situations in the environment of practice and work to uncover disabling barriers experienced by individuals. Such obstacles are often the effects of macro issues of class, poverty, culture, and social exclusion which determine practice, and are repeated endlessly in narratives about occupation/everyday life (Marmot et al., 2020Marmot, M., Allan, J., Boyce, T., Goldblatt, P., & Morrison, J. (2020). Health equity in England: the Marmot review 10 years on. London: Institute of Health Equity. Recuperado em 16 de maio de 2022, de https://www.instituteofhealthequity.org/resources-reports/marmot-review-10-years-on/the-marmot-review-10-years-on-full-report.pdf
https://www.instituteofhealthequity.org/...
; Algado et al., 2016Algado, S. S., Córdoba, A. G., Oliver, F. C., Galheigo, S. M., & García-Ruiz, S. (2016). (Eds.) Terapias ocupacionales desde el sur: derechos humanos, ciudadanía y participación. Santiago de Chile: Universidad de Santiago de Chile.; Ikiugu & Pollard, 2015Ikiugu, M., & Pollard, N. (2015). Meaningful living through occupation. London: Whiting and Birch.).

The post-pandemic global dynamic offers opportunities for occupational therapists to work with fellow citizens whether service users, community members, or other professionals using these intersectional dimensions of occupation/everyday life and human rights for practicable and sustainable transformations that promote social participation and inclusion. Such an approach requires continuous reflection concerning the politics of action at every level, from everyday micro level encounters to the creation of programs and public policies. Practice which defends human and social rights must also continue to recognize the ethical foundation of occupational therapy through which all people are dignified beings entitled to meaningful participation in occupation/everyday life: to do, be, become and belong (Wilcock & Hocking, 2015Wilcock, A. A., & Hocking, C. (2015). An occupational perspective of health (3rd ed.). New Jersey, USA: Slack.).

This is a political obligation present in different levels of practice arising from the social responsibilities of professionals working with individuals in a clinical approach, or with communities, asking about social conditions and the services available, and negotiating for resources to address identified demands and claims (Pollard et al., 2008Pollard, N., Sakellariou, D., & Kronenberg, F. (2008) (Eds.), A Political Practice of Occupational Therapy. Edinburgh: Elsevier Science.). In the course of practice, occupational therapists have many opportunities to understand conditions and identify needs through work with different groups, discussing about policies, rights, and laws, employing their professional knowledge to inform negotiations with people and communities. Working with an intersectional perspective can give the profession tools to create new methodologies of working for human and social rights, and developing the person-centered strategies which are needed to accommodate transformation and transition in post-pandemic futures (Munasinghe, 2020Munasinghe, M. (2020). COVID-19 and sustainable development. International Journal of Sustainable Development, 23(1-2), 1-24.). Intersectionality potentially offers a methodological and analytical approach with the potential to provide elements to understand the complexity of different perspectives about occupation and everyday life. It invites occupational therapists to account for and incorporate context, sensitivities, flexibilities, and the promotion of adjustments into a negotiated process for these futures. Such processes, by their very nature, acknowledge and uphold democratic principles, including human and social rights.

  • How to cite: Balanta-Cobo, P., Fransen-Jaïbi, H., Gonzalez, M., Henny, E., Malfitano, A. P. S., & Pollard, N. (2022). Human and social rights and occupational therapy: the need for an intersectional perspective. Cadernos Brasileiros de Terapia Ocupacional, 30, e30202203. https://doi.org/10.1590/2526-8910.ctoED302022032

References

  • Algado, S. S., Córdoba, A. G., Oliver, F. C., Galheigo, S. M., & García-Ruiz, S. (2016). (Eds.) Terapias ocupacionales desde el sur: derechos humanos, ciudadanía y participación Santiago de Chile: Universidad de Santiago de Chile.
  • Balanta-Cobo, P., & Padilla-Muñoz, A. (2019). A step beyond direct and indirect discrimination against persons with disability methodological approach to discrimination from the intersectional perspective. Age of Human Rights Journal, (13), 99-124. https://doi.org/10.17561/TAHRJ.N13.6
    » https://doi.org/10.17561/TAHRJ.N13.6
  • Bambra, C., Riordan, R., Ford, J., & Matthews, F. (2020). The COVID-19 pandemic and health inequalities. Journal of Epidemiology and Community Health, 74(11), 964-968.
  • Buheji, M., da Costa Cunha, K., Beka, G., Mavric, B., De Souza, Y. L., da Costa Silva, S. S., Hanafi, M., & Yein, T. C. (2020). The extent of covid-19 pandemic socio-economic impact on global poverty: a global integrative multidisciplinary review. American Journal of Economics, 10(4), 213-224. http://dx.doi.org/10.5923/j.economics.20201004.02
    » http://dx.doi.org/10.5923/j.economics.20201004.02
  • Durocher, E., Gibson, B. E., & Rappolt, S. (2014). Occupational justice: a conceptual review. Journal of Occupational Science, 21(4), 418-430.
  • Farias, L., Laliberte Rudman, D., Pollard, N., Schiller, S., Serrano Malfitano, A. P., Thomas, K., & Bruggen, H. V. (2018). Critical dialogical approach: a methodological direction for occupation-based social transformative work. Scandinavian Journal of Occupational Therapy, 26(4), 235-245. https://dx.doi.org/10.1080/11038128.2018.1469666
    » https://dx.doi.org/10.1080/11038128.2018.1469666
  • Frank, G. (2012). The 2010 Ruth Zemke lecture in occupational science occupational therapy/occupational science/occupational justice: moral commitments and global assemblages. Journal of Occupational Science, 19(1), 25-35.
  • Fransen, H., Pollard, N., Kantartzis, S., & Viana Moldes, I. (2015). Participatory citizenship: critical perspectives on client-centred occupational therapy. Scandinavian Journal of Occupational Therapy, 22(4), 260-266. http://dx.doi.org/10.3109/11038128.2015.1020338
    » http://dx.doi.org/10.3109/11038128.2015.1020338
  • Fransen-Jaïbi, H., Kantartzis, S., Pollard, N., & Viana-Moldes, I. (2021). Educational materials on citizenship from an occupational perspective Coruña: Universidade da Coruña, Servizo de Publicacións. https://doi.org/10.17979/spudc.9788497498142
    » https://doi.org/10.17979/spudc.9788497498142
  • Grandón, D. E. (2017). Terapia Ocupacional, discapacidad y género: la interseccionalidad como apertura hacia reflexiones pendientes. Revista Ocupación Humana, 17(2), 34-45.
  • Ikiugu, M., & Pollard, N. (2015). Meaningful living through occupation London: Whiting and Birch.
  • Lopes, R. E. (2021). Citizenship, rights and social occupational therapy. In R. E. Lopes & A. P. S. Malfitano. Social occupational therapy: Theoretical and practical designs (pp. 1-10). Pennsylvania, USA: Elsevier.
  • Makin, A. J., & Layton, A. (2021). The global fiscal response to COVID-19: risks and repercussions. Economic Analysis and Policy, 69, 340-349.
  • Malfitano, A. P. S., Cruz, D. M. C., & Lopes, R. E. (2020). Occupational therapy in times of pandemic: social security and guaranties of possible everyday life for all. British Journal of Occupational Therapy, 28(2), 401-4040. http://dx.doi.org/10.4322/2526-8910.ctoED22802
    » http://dx.doi.org/10.4322/2526-8910.ctoED22802
  • Marmot, M., Allan, J., Boyce, T., Goldblatt, P., & Morrison, J. (2020). Health equity in England: the Marmot review 10 years on London: Institute of Health Equity. Recuperado em 16 de maio de 2022, de https://www.instituteofhealthequity.org/resources-reports/marmot-review-10-years-on/the-marmot-review-10-years-on-full-report.pdf
    » https://www.instituteofhealthequity.org/resources-reports/marmot-review-10-years-on/the-marmot-review-10-years-on-full-report.pdf
  • Max-Neef, M. (2010). Development and human needs. In D. Gasper, & A. L. St Clair (Eds.), Development ethics (pp. 169-186). Farnham: Ashgate.
  • Munasinghe, M. (2020). COVID-19 and sustainable development. International Journal of Sustainable Development, 23(1-2), 1-24.
  • Parraguez, V., Zapata, F., Silva, C., Benitez, J. & Quinteros, R. (2021). Terapia Ocupacional: Iniciando el camino hacia la ocupación, cultura y derechos humanos Santiago de Chile: Universidad Andres Bello.
  • Pollard, N., Sakellariou, D., & Kronenberg, F. (2008) (Eds.), A Political Practice of Occupational Therapy Edinburgh: Elsevier Science.
  • Pollard, N., Viana-Moldes, I., Fransen-Jaibi, H., & Kartartzis, S. (2021). Occupational Therapy on the move: on contextualizing citizenship and epistemicide (pp. 151-163). In: R. E. Lopes & A. P. S. Malfitano, (Eds.), Social occupational therapy: theoretical and practical designs. Pennsylvania, USA: Elsevier.
  • Salas, E.N., Cordóba, A.G., Garlito, P.C. & Prado, S.P. (2015). Terapia Ocupacional y Exclusión Social: Hacia una praxis basada en los derechos humanos Santiago de Chile: Segismundo.
  • Whiteford, G., Jones, K., Rahal, C., & Suleman, A. (2018). The Participatory Occupational Justice Framework as a tool for change: three contrasting case narratives. Journal of Occupational Science, 25(4), 497-508.
  • Wilcock, A. A., & Hocking, C. (2015). An occupational perspective of health (3rd ed.). New Jersey, USA: Slack.

Publication Dates

  • Publication in this collection
    15 June 2022
  • Date of issue
    2022
Universidade Federal de São Carlos, Departamento de Terapia Ocupacional Rodovia Washington Luis, Km 235, Caixa Postal 676, CEP: , 13565-905, São Carlos, SP - Brasil, Tel.: 55-16-3361-8749 - São Carlos - SP - Brazil
E-mail: cadto@ufscar.br