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Letter to “Access to rehabilitation after stroke in Brazil (AReA study): multicenter study protocol”

Carta a “Acesso à reabilitação após o AVC no Brasil (estudo AReA): protocolo de estudo multicêntrico”

Dear editor,

Cacho et al.11 Cacho RO, Moro CHC, Bazan R, et al; AReA Study Group. Access to rehabilitation after stroke in Brazil (AReA study): multicenter study protocol. Arq Neuropsiquiatr 2022;80(10):1067–1074. Doi: 10.1055/s-0042-1758558
https://doi.org/10.1055/s-0042-1758558...
intend to conduct a nationwide study that focuses on access to rehabilitation for patients after a stroke. This research is fundamental and necessary. However, the primary problem is that they consider physical therapy as the main outcome, stating that other types of rehabilitation (such as speech language pathologists, physiatrists, occupational therapy, etc.) are scarce and probably won't be measured in terms of the number of patients referred to rehabilitation. Consequently, the questionnaire neglects most of these aspects. A questionnaire can be an effective tool to systematically gather this information. By including all aspects of rehabilitation in the questionnaire, stroke patients can provide detailed and accurate feedback about their recovery journey, including their physical symptoms, emotional well-being, and social support.22 Platz T, Ed. Clinical Pathways in Stroke Rehabilitation. Springer; 2021

Furthermore, a comprehensive questionnaire can help healthcare professionals identify the areas where a stroke patient may need additional support or resources. For example, if a patient reports difficulties with their daily activities, such as bathing or dressing, then rehabilitation professionals can provide targeted interventions to help them regain their independence.22 Platz T, Ed. Clinical Pathways in Stroke Rehabilitation. Springer; 2021

Multidisciplinary care is crucial in stroke rehabilitation because it provides a comprehensive approach to addressing the complex needs of stroke patients. Stroke can have a significant impact on multiple areas of a person's life, including their physical, cognitive, emotional, and social functioning.33 Braga LW, Da Paz AC, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj 2005;19(10):819–831 Therefore, a team of healthcare professionals with diverse expertise is needed to address all of these aspects of recovery.

By working together, a multidisciplinary team can ensure that stroke patients receive coordinated and effective care that addresses all of their needs. This can result in improved outcomes, including faster recovery, reduced disability, and a better quality of life for stroke survivors.44 Winstein CJ, Stein J, Arena R, et al; American Heart Association Stroke Council, Council on Cardiovascular and Stroke Nursing, Council on Clinical Cardiology, and Council on Quality of Care and Outcomes Research. Guidelines for Adult Stroke Rehabilitation and Recovery: A Guideline for Healthcare Professionals From the American Heart Association/American Stroke Association. Stroke 2016;47(06):e98–e169. Doi: 10.1161/STR.0000000000000098
https://doi.org/10.1161/STR.000000000000...
Therefore the need for those aspects to be reinforced in the study protocol

Knowing that stroke patients received multidisciplinary care can also provide reassurance to family members and caregivers, who may be concerned about their loved one's recovery.33 Braga LW, Da Paz AC, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj 2005;19(10):819–831 It can help them feel confident that their loved one is receiving the best possible care and support during this challenging time.

Rehabilitation after stroke can involve various interventions, including physical therapy, occupational therapy, speech therapy, psychological support, and social work services. Each of these interventions can have a significant impact on a person's recovery, and neglecting any one of them can result in incomplete or inaccurate conclusions about the effectiveness of stroke rehabilitation.

Furthermore, neglecting some aspects of rehabilitation after stroke can lead to underestimating the true impact of stroke on a person's life. Stroke survivors often face significant challenges in their daily lives, including difficulty with mobility, communication, and daily living activities.44 Winstein CJ, Stein J, Arena R, et al; American Heart Association Stroke Council, Council on Cardiovascular and Stroke Nursing, Council on Clinical Cardiology, and Council on Quality of Care and Outcomes Research. Guidelines for Adult Stroke Rehabilitation and Recovery: A Guideline for Healthcare Professionals From the American Heart Association/American Stroke Association. Stroke 2016;47(06):e98–e169. Doi: 10.1161/STR.0000000000000098
https://doi.org/10.1161/STR.000000000000...
Neglecting these aspects of rehabilitation can result in overlooking the true impact of stroke and its effect on a person's quality of life.

In summary, including all aspects of rehabilitation in a questionnaire for stroke patients is essential to ensure that healthcare professionals have a complete understanding of a patient's recovery needs and experiences. This information can help guide the development of tailored rehabilitation programs that address a patient's individual needs and goals.

References

  • 1
    Cacho RO, Moro CHC, Bazan R, et al; AReA Study Group. Access to rehabilitation after stroke in Brazil (AReA study): multicenter study protocol. Arq Neuropsiquiatr 2022;80(10):1067–1074. Doi: 10.1055/s-0042-1758558
    » https://doi.org/10.1055/s-0042-1758558
  • 2
    Platz T, Ed. Clinical Pathways in Stroke Rehabilitation. Springer; 2021
  • 3
    Braga LW, Da Paz AC, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj 2005;19(10):819–831
  • 4
    Winstein CJ, Stein J, Arena R, et al; American Heart Association Stroke Council, Council on Cardiovascular and Stroke Nursing, Council on Clinical Cardiology, and Council on Quality of Care and Outcomes Research. Guidelines for Adult Stroke Rehabilitation and Recovery: A Guideline for Healthcare Professionals From the American Heart Association/American Stroke Association. Stroke 2016;47(06):e98–e169. Doi: 10.1161/STR.0000000000000098
    » https://doi.org/10.1161/STR.0000000000000098

Publication Dates

  • Publication in this collection
    21 Aug 2023
  • Date of issue
    2023

History

  • Received
    12 Apr 2023
  • Accepted
    21 Apr 2023
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