Objective
To describe the experience of the families of children with cerebral palsy concerning their social support network.
Methods
Qualitative research carried out with 19 families of children with cerebral palsy. Focal group sessions were performed and statements were recorded, thoroughly transcribed and assessed by the thematic analysis technique.
Results
The following thematic categories emerged: Experience of the family in caring for the child with cerebral palsy, and Frail social support concerning family bonds.
Conclusion
The social support network of the families of children with cerebral palsy is basically comprised of family members. Families undergo changes in their daily life and experience unfavorable feelings, seeking in the spiritual realm the hope to cope with adversities.
Cerebral palsy; Social support; Pediatric nursing; Nursing primary care; Disabled child