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Feelings, reactions and expectations of mothers of children born with microcephaly by zika virus

Abstract

Background:

In 2015, Brazil was affected by the microcephaly epidemic, when affected families experienced an unknown disease.

Objective:

To analyze the feelings, reactions, and expectations of mothers of children born with microcephaly due to the Zika virus.

Method:

Qualitative approach. Structured and semi-structured interviews were conducted with 19 mothers and a great-grandmother. Content analysis in thematic modality.

Results:

The feelings described were sadness, fear, anxiety and, sometimes, guilt. The reactions reported were shock, despair, search for information, denial, and each interviewee experienced different forms of acceptance. Grieving the desired child was a slow and painful process. Most had unplanned pregnancies, which did not seem to have influenced the feelings and reactions caused by the children's diagnosis. Expectations regarding the child's future involved fear of premature death, concerns about motor development, especially the inability to walk and eat alone, leading to dependence.

Conclusion:

Given the birth of a child with microcephaly, mothers needed to redo their plans in the light of a new reality, which impacted on their quality of life. Professionals need to be prepared to deal with such issues while also ensuring attention to mothers.

Keywords:
emotions; motivation; mothers; microcephaly; zika virus

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