Waiting, Caring, and Disability: The Makings of Time for Mothers of Adults with Intellectual Disabilities

For mothers of people with disabilities in Brazil, the centrality of family-based care results in a life of constant searching for adequate of services for their children. A trajectory marked by long waiting moments. Based on fieldwork conducted with of mothers of adults with intellectual disabilities in Brazil and their long waits, I will examine dependencies that occur “over time” and how they are transformed through the life-course. I seek to examine how care time and crip time act on shaping disability and care in Brazil. Finally, I argue that the recognition of these dissident temporalities is essential for the valuing of care work and the experience of disability.

Care; Intellectual disability; Temporalities; Family; Waiting