The experience of tuberculosis treatment in Family Health Units

Linhares, Shirley Ribeiro dos Santos; Paz, Elisabete Pimenta Araújo

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Sumário

RESEARCH • Esc. Anna. Nery 24 (2) • 2020 • https://doi.org/10.1590/2177-9465-EAN-2019-0209 copy

The experience of tuberculosis treatment in Family Health Units

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objectives

To understand the experience of patients having tuberculosis regarding the care received during treatment and their relationship with health professionals.

Method

Phenomenological research carried out with 27 tuberculosis patients in Family Health Strategy Units in the city of Rio de Janeiro. The data were obtained through interviews analyzed by Heidegger's referential.

Results

The analysis of the discourses evidenced that the users are disposed in the mode of being of the inauthenticity characteristic of health services; the existential fear of death dominates the daily lives of the patients and it keeps them following the treatment.

Final considerations and Implications for the practice

There is the possibility of performing a care, which integrates the technical knowledge able to dominate the way of being of professionals with the subjective dimension of those who need treatment, overcoming the ontic tradition of inauthentic care for the authentic care, which frees the other for the healing.

Keywords:
Tuberculosis; Nursing; Family Health Strategy

Meaning Units	Extracts from the Speech
The diagnosis of tuberculosis brings fragility before life	At first, I was scared as hell, I thought I was going to die, that something worse would happen. I already knew tuberculosis at its worst (U5).
	We start thinking it is an evil disease and we will die. I thought of my daughters, my husband [...] I don’t wish to anyone the fear I experienced when I discovered this disease (U22).
	It was a huge scare because I thought tuberculosis would only happen to underprivileged people. I have a good diet, I don’t smoke and I don’t drink and I do physical activity. My house is ventilated and I don’t live in community. So, I don’t know why I got this disease (U25).
	I never thought that I would have tuberculosis, for me it was a disease of the past, extinct [...]. My grandfather was bohemian, drank, smoked and lived without worries, he died of this disease. I don’t do any of that and I got it. I can’t say how, but I got it (U23).
The impersonality of the health service makes the treatment very difficult	[...] you have that obligation to come to the center every day and take bunch of medicine, which is not easy. But, having to come here every day to take medicine is boring! [...] The bad thing is having to wait for them to give me the medicine... and they want to see me taking it... have you seen that?! They think I’m a child (U11).
	[...] sometimes you can’t even blame the agents, in this case the agents who are responsible for giving the medication. You leave home or work, get here to have the medicine or even to take the medicine, and then what happens? [...] starts that feeling of discouragement, because you have to wait [...] then the girl says “wait there I’ll get it”. Then another person arrives and she has to pay attention to that person and I, we both end up waiting (U2).
	Now I’m the one who picks it up at the clinic. But it’s boring because it’s never the same person who attends me and I have to wait for the girl to get my medicine. Sometimes there are a lot of people in front of me to talk to her and I have to keep waiting [...] (U7).
	[...] at this time the unit is closed and she didn’t want to give me the medicine for a week. Finally, it had to be almost a fight for her (professional) to accept it. If I had a weak head, I would have long stopped taking the medicine! People sometimes have to be flexible with situations. There was no point in her sending the CHA to my home at six o’clock in the morning (U25).
Feeling supported by professionals makes a difference in the course of treatment	It was the staff (emphasis), they stay by you side for you to take the medicine! I thought that was bad, but today I recognize that sometimes it’s necessary. If it wasn’t for the nurse, maybe today I wouldn’t be well and finishing the treatment. She made me realize that I also have to want to be healed (U19).
	[...] at first, when I was afraid, they helped me, both the doctor and the nurse. They said I was not going to die and that if I took the medicine every day until the end, I would be healed. Then it encouraged me, I ... I was already thinking that I was going to die [...] (U10).
	What helped me continue were the doctor’s explanations of the disease. I never imagined that we caught it in the air, that we didn’t need to separate things and above all the faith in GOD that I was going to be healed (U21)
	What helped was to see that they care about us. Every time I had some problems I could come here without the appointment, that they would always attend me (U23).

Universidade Federal do Rio de Janeiro Rua Afonso Cavalcanti, 275, Cidade Nova, 20211-110 - Rio de Janeiro - RJ - Brasil, Tel: +55 21 3398-0952 e 3398-0941 - Rio de Janeiro - RJ - Brazil
E-mail: annaneryrevista@gmail.com

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[1] Corresponding author:
Shirley Ribeiro dos Santos Linhares E-mail: shirleyrslinhares@gmail.com