ESS [4141. European Social Survey. ESS Round 7 Source Questionnaire. London: ESS ERIC Headquarters, Centre for Comparative Social Surveys; 2014.] |
A survey that assesses the attitudes, beliefs, and behavior patterns of the various populations in Europe. One overall happiness question from ESS included in the study survey (adults only). |
Understanding Society survey [3333. Knies G, Lynn, P. eds. Understanding Society: UK Household Longitudinal Study: Wave 1-5, 2009-2014. Institute for Social and Economic Research University of Essex; 2015.] |
A survey used in the UK Household Longitudinal Study (UKHLS). Five items assessing finances, home, relationship, sleep, and QoL were included in this study (adult caregivers only). Two items (sleep and QoL) were used with adult siblings. One child-specific item (happiness) was used for child siblings. |
WPAI:SHP [3434. Reilly MC, Zbrozek AS, Dukes EM. The validity and reproducibility of a work productivity and activity impairment instrument. Pharmacoeconomics. 1993;4(5):353-365. doi: 10.2165/00019053-199304050-00006 https://doi.org/10.2165/00019053-1993040...
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Six-item measure to assess the number of hours worked, productivity at work, and the ability to do day-to-day activities. Four scores were derived: percentage of absenteeism, percentage of presenteeism (reduced productivity while at work), an overall work impairment score that combines absenteeism and presenteeism, and percentage of impairment in activities performed outside of work. Greater scores indicate greater impairment. |
EQ-5D-5L health questionnaire [3535. Herdman M, Gudex C, Lloyd A, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011;20(10):1727-1736. doi: 10.1007/s11136-011-9903-x https://doi.org/10.1007/s11136-011-9903-...
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A five-dimension measure to assess the level of mobility, self-care, usual activities, pain/discomfort, and anxiety and depression on the day of the survey. The five-level version was used. |
EQ-5D utility score [3535. Herdman M, Gudex C, Lloyd A, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011;20(10):1727-1736. doi: 10.1007/s11136-011-9903-x https://doi.org/10.1007/s11136-011-9903-...
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Combining the dimensions can generate an overall utility score. This is based on a social tariff which applies population preferences to the EQ-5D state [3131. Rodriguez A, King N. The lived experience of parenting a child with a life-limiting condition: a focus on the mental health realm. Palliat Support Care. 2009;7(1):7-12. doi: 10.1017/S1478951509000030 https://doi.org/10.1017/S147895150900003...
]. For Germany, a tariff representing social values or preference weights was available for the three level EQ-5D only. For the UK, a social tariff was available for both versions, but the new EQ-5D-5L social tariff had not yet been endorsed. Therefore, a mapping algorithm was used to predict (cross-walk) the EQ-5D-3L score from the EQ-5D-5L version. Anchored at 0 (equivalent to dead) to 1 (full health). |
EQ-5D VAS [3535. Herdman M, Gudex C, Lloyd A, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011;20(10):1727-1736. doi: 10.1007/s11136-011-9903-x https://doi.org/10.1007/s11136-011-9903-...
] |
A visual analog scale used along with the EQ-5D to assess overall health of the adult participants, where 0 = “worst possible life” and 100 = “best possible life”. |
QOLLTI-F [3737. Cohen R, Leis AM, Kuhl D, Charbonneau C, Ritvo P, Ashbury FD. QOLLTI-F: measuring family carer quality of life. Palliat Med. 2006;20(8):755-767. doi: 10.1177/0269216306072764 https://doi.org/10.1177/0269216306072764...
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A 16-item measure to assess the state of caregiver, patient well-being, quality of care, outlook, environment, finances, and relationships. Used a 0 to 10 Likert scale, with higher values indicating a higher quality of life. |
PedsQL:FIM [3838. Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQLTM Family Impact Module: preliminary reliability and validity. Health Qual Life Outcomes. 2004;2(1):55. doi: 10.1186/1477-7525-2-55 https://doi.org/10.1186/1477-7525-2-55...
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An eight-domain measure to assess physical functioning, emotional functioning, social functioning, cognitive functioning, communication, worry, difficulty for the family in relation to daily activities, and family relationships over the past month. A parent quality-of-life sub-scale measured parent self-reported physical, emotional, social, and cognitive functioning. A modified parent quality-of-life sub-scale also including communication. Score from 0 to 100, with higher scores indicating better quality of life. |
KIDSCREEN-27 [3939. Ravens-Sieberer U, Gosch A, Rajmil L, et al. KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Rev Pharmacoecon Outcomes Res. 2005;5(3):353-364. doi: 10.1586/14737167.5.3.353 https://doi.org/10.1586/14737167.5.3.353...
, 4040. Ravens-Sieberer U, Gosch A, Rajmil L, et al. The KIDSCREEN-52 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. Value Health. 2008;11(4):645-658. doi: 10.1111/j.1524-4733.2007.00291.x https://doi.org/10.1111/j.1524-4733.2007...
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Twenty-seven self-reported items which assess health and physical activities, mood and feelings, family and free time, friends and school, and learning. Validated for individuals aged 8-18 years. The KIDSCREEN-27 was mapped onto CHU-9D. A quality-adjusted life-year (QALY) score was then generated, where 0 corresponded to dead and 1 corresponded to full health-related quality of life. |
CHU9D [4242. Chen G, Stevens K, Rowen D, Ratcliffe J. From KIDSCREEN-10 to CHU9D: creating a unique mapping algorithm for application in economic evaluation. Health Qual Life Outcomes. 2014;12(1):134. doi: 10.1186/s12955-014-0134-z https://doi.org/10.1186/s12955-014-0134-...
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A nine-dimension measure which includes worried, sad, pain, tired, annoyed, school work/homework, sleep, daily routine and ability to join in activities. Each dimension has five levels. Combining the dimensions generates an overall utility score. |