Burden on caregivers of patients with sequelae of cerebrovascular accident

a cross-sectional, exploratory, and quantitative study was conducted with 151 caregivers of people with sequelae of stroke, through home interviews between September and December 2017. Results: there was a general mean of low burden. The items that indicated the worst changes were: “My time for social activities with friends,” “My time for family activities,” “My ability to cope with stress,” and “My physical functioning.” There was an association of burden with the female sex and with caregivers who have been assisting for longer.

Conclusions:

the results allow us to reflect on the need to create a policy aimed at family caregivers to reduce the impact of care delivery.

Descriptors:
Caregivers; Stroke; Complications; Population Characteristics; Nursing

Items	Mean	Standard deviation
1. My self-esteem (What I think about myself, my emotions and my behaviors in life)	3.26	1.354
2. My physical health (General condition of the body concerning diseases and the physical capacity to perform daily activities)	3.02	1.191
3. My time for family activities	2.79	1.345
4. My ability to deal with stress (Situations that I perceive as threatening)	2.93	1.365
5. My relationship with friends (Affection, friendship, love, loyalty, and protection)	3.45	1.284
6. My vision of the future (Ability to make plans in the near or distant future)	3.67	1.389
7. My energy level (Willingness to carry out daily activities)	3.18	1.265
8. My emotional well-being (Thoughts of joy and pleasure in everyday experiences)	3.25	1.474
9. Social roles (Mother or father, sister, brother, friend, daughter, son)	3.72	1.293
10. My time for social activities with friends	2.77	1.344
11. My relationship with family (Affection, friendship, love, loyalty, and protection)	3.53	1.269
12. My financial stability (Organization of expenses, control of money, expenses, savings)	3.07	1.335
13. My relationship with the stroke survivor (Affection, friendship, love, loyalty, and protection)	4.00	1.596
14. My physical functioning (Muscle strength and absence of body pain when performing daily activities)	2.97	1.186
15. My general health (State of complete physical, mental and social well-being and not just the absence of disease)	3.03	1.143

Variable	Mean (Standard Deviation)	p value
Gender
Male	3.49 (0.60)	0.044
Female	3.17 (0.89)
Age
≤ 55 years old	3.26 (0.79)	0.897
≥ 56 years old	3.21 (0.91)
Years of education
≤ 4 years of study	3.27 (0.71)	0.817
≥ 5 years of study	3.22 (0.92)
Monthly income
≤ R$ 1,760	3.22 (0.80)	0.663
≥ R$ 1,761	3.27 (0.94)
Duration of caregiving
≤ 2 years	3.50 (0.79)	0.008*
≥ 3 years	3.10 (0.85)

Associação Brasileira de Enfermagem SGA Norte Quadra 603 Conj. "B" - Av. L2 Norte 70830-102 Brasília, DF, Brasil, Tel.: (55 61) 3226-0653, Fax: (55 61) 3225-4473 - Brasília - DF - Brazil
E-mail: reben@abennacional.org.br

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[1] Corresponding author: Tatiana Ferreira da Costa E-mail: tatxianaferreira@hotmail.com