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Management of chemotherapy-related symptoms in children and adolescents: family caregivers’ perspectives

Gestión de los síntomas relacionados con la quimioterapia em niños y adolescentes: perspectivas de cuidadores familiars

ABSTRACT

Objective:

To describe the chemotherapy-associated symptoms and the strategies used for their management from the perspective of pediatric cancer patients’ family caregivers.

Methods:

This is a descriptive study with qualitative data analysis. Data collection took place in a pediatric hospital, from December 2017 to December 2018, with family caregivers of pediatric patients undergoing chemotherapy. Semi-structured interviews, subjected to inductive content analysis, were carried out. Concepts from the Symptom Management Theory were used to discuss the results.

Results:

Eighteen family caregivers participated. The participants mentioned: physical symptoms, especially weakness, alopecia, low immunity, pain, mucositis, constipation, nausea, and vomiting; emotional or psychosocial symptoms such as sadness and mood changes; and constitutional symptoms such as loss of appetite and fever. Pharmacological and non-pharmacological measures were mentioned in the management of symptoms and adverse effects.

Conclusion:

Participants demonstrated skills to identify and manage symptoms of chemotherapy. Knowing the experience of these families can help nurses in planning care and interventions to minimize these events.

DESCRIPTORS
Neoplasms; Drug Therapy; Drug-Related Side Effects and Adverse Reactions; Caregivers; Pediatric Nursing

Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br