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Experiences of family care during breast cancer: the perspective of caregivers * * Extracted from the thesis: “Experiencia de familiares de mujeres con Cama en su transición como cuidador”, Programa de Doctorado en Ciencias de Enfermería, Universidad de Guanajuato, Camus Celaya-Salvatierra, División de Ciencias de la Salud e Ingenierías, 2018.

ABSTRACT

Objective

To describe the experience of family care to women with breast cancer during treatment from the perspective of caregivers in the Mexican context.

Method

Qualitative phenomenological study. In-depth interviews were conducted with caregivers of women who survived breast cancer. Participants were selected by intentional, cumulative and sequential sampling. A conventional content analysis was performed.

Results

Participation of seven caregivers, who reported their positive and negative experiences when assuming their role as informal caregivers in the family context. On the strength of the reciprocity of care and its reward, prevailed critical moments, negative feelings, and lack of support resources during the experience. This enables the understanding of the informal care bond in order to enhance it with coping strategies and specific guidance from the nursing staff.

Conclusion

Participants experienced a transformation in their identity as caregivers and by being aware of their experience, they could describe their qualities, which increased their coping strategies with the disease and the care challenges.

Breast Neoplasms; Caregivers: Family; Oncology Nursing

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E-mail: reeusp@usp.br